Establishing best practices in cancer online support groups: protocol for a realist review

被引：12

作者：

Bender, Jacqueline L. ^{[1
,2
,3
]}

Babinski, Stephanie ^{[1
]}

Wong, Geoff ^{[4
]}

Tricco, Andrea C. ^{[5
]}

Englesakis, Marina ^{[6
]}

Cyr, Alaina B. ^{[7
]}

Potts, Henry ^{[8
]}

Perski, Olga ^{[9
]}

Esplen, Mary Jane ^{[10
]}

Young, Colleen ^{[11
]}

Wassersug, Richard ^{[12
]}

Forster, Victoria ^{[13
]}

Papadakos, Janet ^{[14
]}

Soobiah, Charlene ^{[3
]}

Fox, Colleen ^{[15
]}

Gothard-Huang, Alison ^{[1
]}

Witteman, Holly ^{[16
]}

机构：

[1] Univ Hlth Network, Princess Margaret Canc Ctr, Dept Support Care, Canc Rehabil & Survivorship Program, Toronto, ON, Canada

[2] Univ Toronto, Dalla Lana Sch Publ Hlth, Toronto, ON, Canada

[3] Univ Toronto, Inst Hlth Policy Management & Evaluat, Toronto, ON, Canada

[4] Univ Oxford, Nuffield Dept Primary Care Hlth Sci, Oxford, England

[5] Unity Hlth Toronto, Li Ka Shing Knowledge Inst, St Michaels Hosp, Toronto, ON, Canada

[6] Univ Hlth Network, Lib & Informat Serv, Toronto, ON, Canada

[7] Univ Hlth Network, Patient Educ & Engagement, Toronto, ON, Canada

[8] UCL, Ctr Hlth Informat & Multiprofess Educ, London, England

[9] UCL, Dept Behav Sci & Hlth, London, England

[10] Univ Toronto, Dept Psychiat, Toronto, ON, Canada

[11] Mayo Clin, Dept Artificial Intelligence & Informat, Rochester, MN USA

[12] Univ British Columbia, Dept Cellular & Physiol Sci, Vancouver, BC, Canada

[13] Hosp Sick Children SickKids, Arthur & Sonia Labatt Brain Tumour Res Ctr, Toronto, ON, Canada

[14] Univ Hlth Network, Princess Margaret Canc Ctr, Canc Educ, Toronto, ON, Canada

[15] Ontario Hlth Canc Care Ontario, Patient Educ, Toronto, ON, Canada

[16] Univ Laval, Fac Med, Quebec City, PQ, Canada

来源：

BMJ OPEN | 2021年 / 11卷 / 11期

基金：

加拿大健康研究院;

关键词：

oncology; health informatics; health services administration & management; BREAST-CANCER; PROSTATE-CANCER; SYSTEMATIC REVIEWS; LONG-TERM; PEER; HEALTH; SURVIVORS; WOMEN; COMMUNITIES; USABILITY;

D O I：

10.1136/bmjopen-2021-053916

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

Introduction Considerable observational evidence suggests that cancer online support groups reduce feelings of isolation, depression and anxiety, enhance coping and self-management, and lead to better informed patients. Other studies indicate that cancer online support groups can increase distress. Yet no studies theorise the complex, context-dependent mechanisms by which cancer online support groups generate their-sometimes contrasting-outcomes. Methods and analysis Guided by an integrated knowledge translation approach and the strategy for patient-oriented research, we will conduct a realist review of cancer online support groups in partnership with stakeholders. We will follow Pawson's five steps and existing quality standards to develop a program theory that explains how cancer online support groups work, for whom and in what circumstances. The specific research questions will be: what positive and negative outcomes have been reported on cancer online support groups? What are the mechanisms that are associated with these outcomes, in which contexts and for whom? Through a rigorous review of relevant scientific and grey literature, as well as ongoing dialogue with stakeholders, a program theory will be developed to explain who benefits from cancer online support groups and who does not, what benefits they derive (or do not), and the factors that affect these outcomes. Ethics and dissemination The use of secondary data for this review precludes the need for ethical approval. Dissemination will be informed by the knowledge-to-action framework and will consist of tailored knowledge products that are conceived of collaboratively with stakeholders. These will include peer-reviewed publications on how cancer online support groups can be optimised and best practice recommendations to maximise the benefits experienced by people with cancer. These traditional scientific outputs, along with their respective evidence summaries, will be amplified through strategic social media events hosted and promoted by knowledge users. PROSPERO registration number CRD42021250046.

引用

页数：8

共 59 条

[1] Supporting quality public and patient engagement in health system organizations: development and usability testing of the Public and Patient Engagement Evaluation Tool [J].

Abelson, Julia ;

Li, Kathy ;

Wilson, Geoff ;

Shields, Kristin ;

Schneider, Colleen ;

Boesveld, Sarah .

HEALTH EXPECTATIONS, 2016, 19 (04) :817-827

[2] THE THEORY OF PLANNED BEHAVIOR [J].

AJZEN, I .

ORGANIZATIONAL BEHAVIOR AND HUMAN DECISION PROCESSES, 1991, 50 (02) :179-211

[3]

[Anonymous], 2020, Global Cancer Statistics

[4]

[Anonymous], 2015, GUID KNOWL TRANSL PL

[5] Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly disgnosed with breast cancer [J].

Arora, Neeraj K. ;

Rutten, Lila J. Finney ;

Gustafson, David H. ;

Moser, Richard ;

Hawkins, Robert P. .

PSYCHO-ONCOLOGY, 2007, 16 (05) :474-486

[6]

Bender J., 2018, Novel Applications of Virtual Communities in Healthcare Settings, P56

[7]

Bender J L, 2008, Curr Oncol, V15 Suppl 2

[8] What is the role of online support from the perspective of facilitators of face-to-face support groups? A multi-method study of the use of breast cancer online communities [J].

Bender, Jacqueline L. ;

Katz, Joel ;

Ferris, Lorraine E. ;

Jadad, Alejandro R. .

PATIENT EDUCATION AND COUNSELING, 2013, 93 (03) :472-479

[9] From social integration to health: Durkheim in the new millennium [J].

Berkman, LF ;

Glass, T ;

Brissette, I ;

Seeman, TE .

SOCIAL SCIENCE & MEDICINE, 2000, 51 (06) :843-857

[10] Towards a methodology for cluster searching to provide conceptual and contextual "richness" for systematic reviews of complex interventions: case study (CLUSTER) [J].

Booth, Andrew ;

Harris, Janet ;

Croot, Elizabeth ;

Springett, Jane ;

Campbell, Fiona ;

Wilkins, Emma .

BMC MEDICAL RESEARCH METHODOLOGY, 2013, 13

← 1 2 3 4 5 6 →