A Patient Reported Outcome Ontology: Conceptual Issues and Challenges Addressed by the Patient-Reported Outcomes Measurement Information System® (PROMIS®)

被引：12
作者：
Cella, David [1 ]
Hays, Ron [2 ]
机构：
[1] Northwestern Univ, Dept Med Social Sci, Chicago, IL 60208 USA
[2] Univ Calif Los Angeles, Dept Med, Los Angeles, CA USA
来源：
PATIENT-RELATED OUTCOME MEASURES | 2022年 / 13卷
关键词：
patient-reported outcomes; quality of life; health-related quality of life; ontology; PROMIS; patient reported outcomes measurement information system; QUALITY-OF-LIFE; INTERNATIONAL CLASSIFICATION; ITEM BANKS; SHORT-FORM; HEALTH; LINKING; MODEL; RESPONSIVENESS; PROMISA(R);
D O I：
10.2147/PROM.S371882
中图分类号：
R19 [保健组织与事业（卫生事业管理）];
学科分类号：
摘要：
We briefly review the history of measuring perceptions of health and quality of life, followed by an examination of conceptual issues related to terminology that have led to potentially conflicting ontologies. Then, we discuss challenges posed by the lack of consensus on common meaning and the proliferation of measures. Next, we suggest a solution grounded in an ontology adopted by the National Institutes of Health (NIH) funded Patient-Reported Outcomes Measurement Information System (PROMIS) project. We conclude by discussing issues associated with mapping the PROMIS domain framework onto other familiar ontologies and recommend a way forward for PROMIS to provide a sustainable ontological structure to enable coherent common measurement.
引用
收藏
页码：189 / 197
页数：9
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