Significant others' perspectives on experiences of meal-oriented support and diet counselling for adults with intellectual disabilities who live in supported housing

被引:3
作者
Adolfsson, Paivi [1 ,2 ]
Umb Carlsson, Ole [3 ]
Ek, Pia [4 ]
机构
[1] Uppsala Univ, Dept Publ Hlth & Caring Sci, Hlth Equ & Working Life HEAL, Box 564, SE-75122 Uppsala, Sweden
[2] Uppsala Univ, Dept Publ Hlth & Caring Sci, Ctr Disabil Res, Uppsala, Sweden
[3] Uppsala Univ, Dept Publ Hlth & Caring Sci, Disabil & Habilitat, Uppsala, Sweden
[4] Uppsala Univ, Dept Med Biochem & Microbiol, Uppsala, Sweden
关键词
person centred care; parent; staff; registered dietitian; focus group; community living; food related support; PATIENT-CENTERED CARE; PEOPLE; NUTRITION; KNOWLEDGE;
D O I
10.1080/20473869.2022.2095860
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
The quality of meal-oriented support for people with intellectual disabilities is important for their health. The aim of the present study was to explore the experiences of meal-oriented support and diet counselling for adults with intellectual disabilities living in supported housing, from the perspective of housing staff and mothers. Five focus group interviews, including nine supporting staff members and nine mothers, were conducted. The interviews were analyzed using systematic text condensation. Five themes appeared; Extensive needs of the individual, Staff skills determine the food intake, Informal caregivers make up for shortage of support, Effective collaboration with a registered dietitian is needed and Responsibility of the organization state that professionalization of staff is needed. Lacking resources, such as time and nutritional knowledge, insufficient considerations of individual needs, and high staff turnover influence the meal-orientated services negatively. This study brings to the fore, staff working practices and the complexity of providing meal-oriented support for people with intellectual disabilities. Staff need skills to perform individually tailored support. This is best accomplished through effective collaboration between housing staff and relatives underpinned by knowledge from a registered dietitian. The working practices must be structured at the organizational level of the services.
引用
收藏
页码:435 / 443
页数:9
相关论文
共 33 条
[1]   Dietitians' challenges when consulting to adults with intellectual disabilities [J].
Adolfsson, Paivi ;
Ek, Pia ;
Carlsson, Oie Umb .
TIZARD LEARNING DISABILITY REVIEW, 2019, 24 (04) :153-162
[2]   Foodwork among people with intellectual disabilities and dietary implications depending on staff involvement [J].
Adolfsson, Paivi ;
Fjellstrom, Christina ;
Lewin, Barbro ;
Sydner, Ylva Mattsson .
SCANDINAVIAN JOURNAL OF DISABILITY RESEARCH, 2012, 14 (01) :40-55
[3]  
Adolfsson Paivi, 2008, Food Nutr Res, V52, DOI 10.3402/fnr.v52i0.1857
[4]  
[Anonymous], 1993, 1993387 SFS
[5]   Improving Nutrition Students' Knowledge and Perceived Competence to Provide Nutrition Education to Adults with Disabilities via Experiential Learning [J].
Baker, Sandra ;
Trabulsi, Jillian ;
Evans, Taylor ;
Smith, Elizabeth .
JOURNAL OF THE ACADEMY OF NUTRITION AND DIETETICS, 2018, 118 (01) :23-29
[6]   The extent and nature of need for mealtime support among adults with intellectual disabilities [J].
Ball, S. L. ;
Panter, S. G. ;
Redley, M. ;
Proctor, C. -A. ;
Byrne, K. ;
Clare, I. C. H. ;
Holland, A. J. .
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2012, 56 (04) :382-401
[7]   Survey of disability-related content in Australian dietetics programs [J].
Butler, Shannon ;
Kellett, Jane ;
Bacon, Rachel ;
Byron, Annette .
NUTRITION & DIETETICS, 2018, 75 (04) :406-410
[8]   Health-promotion intervention in a group home: Perspectives of residents, staff and rehabilitation professionals [J].
Carlsson, Oie Umb .
JOURNAL OF INTELLECTUAL DISABILITIES, 2021, 25 (02) :210-229
[9]  
Cuskelly M, 2006, FAMILY MATTERS, P20
[10]   Workforce development: perspectives from people with learning disabilities [J].
Davies, Jill ;
Matuska, George .
TIZARD LEARNING DISABILITY REVIEW, 2018, 23 (04) :165-172