Quality of Life and Socioeconomic Status: A Comparative Study among Mothers of Children with and without Disabilities in Saudi Arabia

被引:18
作者
Alwhaibi, Reem Mohammed [1 ,2 ]
Zaidi, Uzma [3 ]
Alzeiby, Ibtisam [4 ]
Alhusaini, Adel [5 ]
机构
[1] Princess Nourah Bint Abdulrahman Univ, Coll Hlth & Rehabil Sci, Rehabil Sci Dept, POB 25058, Riyadh 11466, Saudi Arabia
[2] Princess Nourah Bint Abdulrahman Univ, Deanship Sci Res, POB 25058, Riyadh 11466, Saudi Arabia
[3] Princess Nourah Bint Abdulrahman Univ, Coll Hlth & Rehabil Sci, Hlth Sci Dept, Riyadh, Saudi Arabia
[4] Princess Nourah Bint Abdulrahman Univ, Coll Educ, Psychol Dept, Riyadh, Saudi Arabia
[5] King Saud Univ, Coll Appl Med Sci, Rehabil Sci Dept, Riyadh, Saudi Arabia
关键词
Quality of life; socioeconomic status; Saudi Arabia; children with disabilities; parents of children with disabilities; GROSS MOTOR FUNCTION; CEREBRAL-PALSY; DOWN-SYNDROME; PARENTS; DEPRESSION; CLASSIFICATION; PREVALENCE; STRESS; SYSTEM; AUTISM;
D O I
10.1080/13575279.2018.1512951
中图分类号
D669 [社会生活与社会问题]; C913 [社会生活与社会问题];
学科分类号
1204 ;
摘要
A child's disability affects not only that child but also their caregivers. This study compares the quality of life (QoL) of Saudi mothers (primary caregivers) of children with Cerebral Palsy (CP) and Down Syndrome (DS) and mothers whose children do not have a disability, and explores its relationship with socioeconomic status. Two hundred mothers of children with disabilities and 99 mothers of children without disabilities were recruited from rehabilitation centers and regular schools, respectively. Information on their sociodemographic, social support, and QoL information was collected using the Quality of Life Index (QLI) - Generic Version III. The independent-samples t-test and Welch's test for QoL indicate that the mothers of children with disabilities have less satisfaction (QLI Part 1) in the social and economic subscale compared to the mothers of children without disabilities (p = 0.0068) but no differences were found in the other domains. For QLI Part 2 (Importance), the mothers of children with disabilities were found to attribute more importance to health and functioning than mothers of children without disabilities (p = 0.003). The former were also found to attribute less importance to their psychological/spiritual status than the latter (p < 0.01). There was no significant difference in total score or in the family or socioeconomic domains. It is concluded that Saudi mothers of children with disabilities need more social support and professional help to improve their quality of life.
引用
收藏
页码:62 / 80
页数:19
相关论文
共 87 条
[61]   Relation Between Quality of Life of Mothers of Children With Cerebral Palsy and the Children's Motor Functioning, After Ten Months of Rehabilitation [J].
Martins Prudente, Cejane Oliveira ;
Barbosa, Maria Alves ;
Porto, Celmo Celeno .
REVISTA LATINO-AMERICANA DE ENFERMAGEM, 2010, 18 (02) :149-155
[62]  
Michalos A. C., 2014, ENCY QUALITY LIFE WE, P2194
[63]  
Ministry of Labor and Social Development, 2015, IMPL REG SOC SEC SYS
[64]  
National Center for Educational Statistics, 2008, COND ED
[65]  
Neely-Barnes S.L., 2008, Journal of Early and Intensive Behavior Intervention, V5, P93, DOI [10.1037/h0100425, DOI 10.1037/H0100425]
[66]   The epidemiology of cerebral palsy: Incidence, impairments and risk factors [J].
Odding, E ;
Roebroeck, ME ;
Stam, HJ .
DISABILITY AND REHABILITATION, 2006, 28 (04) :183-191
[67]  
Oliveira Emilia de Faria, 2011, J Soc Bras Fonoaudiol, V23, P321
[68]   Assessment of the quality of life of mothers of children with cerebral palsy - (Primary caregivers) [J].
Ones, K ;
Yilmaz, E ;
Cetinkaya, B ;
Caglar, N .
NEUROREHABILITATION AND NEURAL REPAIR, 2005, 19 (03) :232-237
[69]   Development and reliability of a system to classify gross motor function in children with cerebral palsy [J].
Palisano, R ;
Rosenbaum, P ;
Walter, S ;
Russell, D ;
Wood, E ;
Galuppi, B .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 1997, 39 (04) :214-223
[70]   Stability of the Gross Motor Function Classification System [J].
Palisano, RJ ;
Cameron, D ;
Rosenbaum, PL ;
Russell, D .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2006, 48 (06) :424-428