Iranian future healthcare professionals' knowledge and opinions about rare diseases: cross-sectional study

被引：4

作者：

Jahanshahi, Reza ^{[1
]}

Nasirzadeh, Amirreza ^{[2
]}

Farzan, Mahan ^{[3
]}

Domaradzki, Jan ^{[4
]}

Jouybari, Leila ^{[5
]}

Sanagoo, Akram ^{[5
]}

Farzan, Mahour ^{[3
]}

Aghazadeh-Habashi, Komeil ^{[6
]}

Faraghe, Ahmadreza Fallah ^{[7
]}

Bagheri, Sadegh ^{[8
]}

Samiee, Marziyeh ^{[9
]}

Ansari, Arina ^{[10
]}

Eskandari, Kimia ^{[11
]}

Namakkoobi, Negar ^{[12
]}

Soltanimoghadam, Fatemeh ^{[13
]}

Mashali, Hadi ^{[14
]}

Yavari, Erfan ^{[15
]}

Bay, Saba ^{[16
]}

Memaripanah, Nafiseh ^{[17
]}

Meftah, Elahe ^{[18
]}

Amanzadeh, Saeed ^{[19
]}

Talati, Fatemeh ^{[20
]}

Bahramzadeh, Sasan ^{[21
]}

机构：

[1] Golestan Univ Med Sci, Sayad Shirazi Hosp, Clin Res Dev Unit CRDU, Gorgan, Golestan, Iran

[2] Mashhad Univ Med Sci, Student Res Comm, Mashhad, Razavi Khorasan, Iran

[3] Shahrekord Univ Med Sci, Student Res Comm, Shahrekord, Iran

[4] Poznan Univ Med Sci, Dept Social Sci & Humanities, Poznan, Poland

[5] Golestan Univ Med Sci, Sch Nursing & Midwifery, Gorgan, Golestan, Iran

[6] Tabriz Univ Med Sci, Student Res Comm, Tabriz, Iran

[7] Shahid Sadoughi Univ Med Sci, Sch Nursing & Midwifery, Student Res Comm, Yazd, Iran

[8] Gonabad Univ Med Sci, Sch Nursing & Midwifery, Dept Nursing, Gonabad, Iran

[9] Univ Tehran Med Sci, Sch Allied Med Sci, Dept Med Lab Sci, Tehran, Iran

[10] North Khorasan Univ Med Sci, Sch Med, Student Res Comm, Bojnurd, Iran

[11] Torbat Heydariyeh Univ Med Sci, Student Res Comm, Torbat Heydariyeh, Iran

[12] Rafsanjan Univ Med Sci, Student Res Comm, Rafsanjan, Iran

[13] Sci & Art Univ, Dept Biol, Yazd, Iran

[14] Shiraz Univ Med Sci, Student Res Comm, Shiraz, Iran

[15] Univ Tehran Med Sci, Sch Nursing, Student Res Comm, Tehran, Iran

[16] Golestan Univ Med Sci, Student Res Comm, Gorgan, Golestan, Iran

[17] Semnan Univ Med Sci, Student Res Comm, Semnan, Iran

[18] Univ Tehran Med Sci, Students Sci Res Ctr, Tehran, Iran

[19] Golestan Univ Med Sci, Students Res Comm, Gorgan, Golestan, Iran

[20] Islamic Azad Univ, Dept Nutr, Sarvestan Branch, Sarvestan, Iran

[21] Hamadan Univ Med Sci, Student Res Comm, Hamadan, Iran

来源：

ORPHANET JOURNAL OF RARE DISEASES | 2022年 / 17卷 / 01期

关键词：

Rare diseases; Education; Awareness; Healthcare professionals;

D O I：

10.1186/s13023-022-02458-8

中图分类号：

Q3 [遗传学];

学科分类号：

071007 ; 090102 ;

摘要：

Background Rare diseases are a new global health priority, requiring evidence-based estimates of the global prevalence of diseases to inform public policymakers and provide a serious challenge to the healthcare system that must not be ignored. The purpose of this study is to investigate Iranian future healthcare professionals' knowledge and opinions about rare diseases. Results A total of 6838 students responded to the questionnaire. Nursing and medical students had the highest participation. Almost 85% of participants rated their knowledge about rare diseases as poor or insufficient. While nearly 70 percent of participants took courses about rare diseases at university. Finally, 72.7% of future healthcare professionals did not feel ready to take care of a patient with a rare disease. Conclusion The present study has indicated a gap in Iranian medical students' knowledge of rare diseases. The researchers believe that health science policymakers should make a joint effort to improve knowledge about rare diseases. Including courses with regard to rare diseases would be of benefit to future healthcare professionals.

引用

页数：9