Patient participation in multidisciplinary tumor conferences: How is it implemented? What is the patients' role? What are patients' experiences?

被引：8

作者：

Ansmann, Lena ^{[1
]}

Heuser, Christian ^{[2
]}

Diekmann, Annika ^{[2
]}

Schellenberger, Barbara ^{[2
]}

Biehl, Claudia ^{[3
]}

Danaei, Mahmoud ^{[4
]}

Eichler, Christian ^{[5
]}

Heinz, Dina ^{[7
]}

Hocke, Andrea ^{[8
]}

Malter, Wolfram ^{[5
,6
]}

Melekian, Badrig ^{[7
]}

Metin, Havva ^{[4
]}

Mustea, Alexander ^{[8
]}

Palatty, Jenci ^{[3
]}

Peisker, Uwe ^{[9
]}

Petschat, Ines ^{[9
]}

Ernstmann, Nicole ^{[2
]}

机构：

[1] Carl von Ossietzky Univ Oldenburg, Sch Med & Hlth Sci, Div Org Hlth Serv Res, Ammerlaender Heerstr 140, D-26129 Oldenburg, Germany

[2] Univ Hosp Bonn, Dept Psychosomat Med & Psychotherapy, Ctr Integrated Oncol CIO Bonn, Ctr Hlth Commun & Hlth Serv Res CHSR, Bonn, Germany

[3] Klinikum Dortmund gGmbH, Westfalisches Brustzentrum, Dept Gynecol & Obstet, Dortmund, Germany

[4] Marienhosp Aachen, Breast Ctr, Aachen, Germany

[5] Univ Cologne, Fac Med, Dept Obstet & Gynecol, Breast Ctr, Cologne, Germany

[6] Univ Hosp Cologne, Cologne, Germany

[7] St Mary Hosp Siegen, Ctr Gynecol & Breast Canc, Siegen, Germany

[8] Univ Hosp Bonn, Dept Gynecol & Gynecol Oncol, Bonn, Germany

[9] Hermann Josef Hosp, Breast Canc Ctr Aachen Dist Heinsberg, Clin Gynecol Obstet & Senol, Erkelenz, Germany

来源：

CANCER MEDICINE | 2021年 / 10卷 / 19期

关键词：

breast cancer; decision-making; multidisciplinary team meeting; patient participation; Tumor board; tumor conference; BREAST-CANCER PATIENTS; TEAM MEETINGS; DECISION-MAKING; MANAGEMENT; DISEASE; IMPACT;

D O I：

10.1002/cam4.4213

中图分类号：

R73 [肿瘤学];

学科分类号：

100214 ;

摘要：

Background Prior research has shown that around 5%-7% of patients in breast cancer centers in Germany participate in the discussion of their own case within a multidisciplinary tumor conference (MTC). The PINTU study is one of the first to research this practice. The objective is to describe (a) how patient participation in MTCs is implemented, (b) what is the role of patients, and (c) how patients experience MTCs. Methods MTCs in six breast and gynecological cancer centers in North Rhine-Westphalia, Germany, with and without patient participation, are studied prospectively by (non)participatory, structured observation. Breast and gynecological cancer patients completed surveys before, directly after, and 4 weeks after MTC participation. Data are analyzed descriptively. Results Case discussions of a sample of n = 317 patients (n = 95 with MTC participation and n = 222 without) were observed. Survey data were obtained from n = 242 patients (n = 87 and n = 155). Observational data showed heterogeneity in the ways MTC participation was practiced. Among participating patients, 89% had the opportunity to express their opinion and 61% were involved in decision-making. Whereas most patients reported positive experiences and would recommend participation, some had negative experiences and regretted participating. Conclusions Due to a lack of recommendations, hospitals implement patient participation in MTCs in many different ways. So far, it is unknown which setting and procedures of MTC participation are beneficial for patients. However, existing evidence on communication in cancer care together with this exploratory study's findings can build the basis for developing recommendations for hospitals that invite their patients to MTCs. Clinical trial registration number German Clinical Trials Register Nr. DRKS00012552.

引用

页码：6714 / 6724

页数：11

共 24 条

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