Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature

被引：4

作者：

Holmdahl, Gundela ^{[1
,2
]}

Dellenmark-Blom, Michaela ^{[2
]}

Nordenskjold, Agneta ^{[1
,3
,4
]}

Sjostrom, Sofia ^{[2
]}

机构：

[1] Karolinska Univ Hosp, Astrid Lindgren Childrens Hosp, Dept Pediat Surg, Stockholm, Sweden

[2] Sahlgrenskas Univ Hosp, Dept Pediat Surg, Pediat Uronephrol Ctr, Queen Silvia Childrens Hosp,Inst Clin Sci, Gothenburg, Sweden

[3] Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden

[4] Karolinska Inst, Ctr Mol Med, Stockholm, Sweden

来源：

EUROPEAN JOURNAL OF PEDIATRIC SURGERY | 2020年 / 30卷 / 03期

关键词：

bladder exstrophy; epispadias; health-related quality of life; incontinence; sexual factors; MENTAL-HEALTH; SURVEY SF-36; URINARY; WOMEN; IMPACT; FORM; CONTINENCE; RECONSTRUCTION; INDIVIDUALS; ADOLESCENTS;

D O I：

10.1055/s-0040-1713178

中图分类号：

R72 [儿科学];

学科分类号：

100202 ;

摘要：

The bladder exstrophy-epispadia complex (BEEC) includes malformations with midline closing defects of the lower abdomen and external genitalia. Long-term consequences with urinary incontinence and sexual dysfunction, in spite of multiple surgical interventions, are common and expected to affect the patient's health-related quality of life (HRQOL). The extent and the predictive factors are, however, not known. New patient-reported outcome research is emerging, but valid and reliable condition-specific HRQOL are still missing. The aim of this review is to summarize and discuss the latest published reports (2015-2019) on HRQOL in patients with the BEEC and its relationship to incontinence and sexual factors.

引用

页码：251 / 260

页数：10

共 54 条

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