Health-Related Quality of Life in Patients with the Bladder Exstrophy-Epispadias Complex and Relationship to Incontinence and Sexual Factors: A Review of the Recent Literature

被引：4
作者：
Holmdahl, Gundela [1 ,2 ]
Dellenmark-Blom, Michaela [2 ]
Nordenskjold, Agneta [1 ,3 ,4 ]
Sjostrom, Sofia [2 ]
机构：
[1] Karolinska Univ Hosp, Astrid Lindgren Childrens Hosp, Dept Pediat Surg, Stockholm, Sweden
[2] Sahlgrenskas Univ Hosp, Dept Pediat Surg, Pediat Uronephrol Ctr, Queen Silvia Childrens Hosp,Inst Clin Sci, Gothenburg, Sweden
[3] Karolinska Inst, Dept Womens & Childrens Hlth, Stockholm, Sweden
[4] Karolinska Inst, Ctr Mol Med, Stockholm, Sweden
来源：
EUROPEAN JOURNAL OF PEDIATRIC SURGERY | 2020年 / 30卷 / 03期
关键词：
bladder exstrophy; epispadias; health-related quality of life; incontinence; sexual factors; MENTAL-HEALTH; SURVEY SF-36; URINARY; WOMEN; IMPACT; FORM; CONTINENCE; RECONSTRUCTION; INDIVIDUALS; ADOLESCENTS;
D O I：
10.1055/s-0040-1713178
中图分类号：
R72 [儿科学];
学科分类号：
100202 ;
摘要：
The bladder exstrophy-epispadia complex (BEEC) includes malformations with midline closing defects of the lower abdomen and external genitalia. Long-term consequences with urinary incontinence and sexual dysfunction, in spite of multiple surgical interventions, are common and expected to affect the patient's health-related quality of life (HRQOL). The extent and the predictive factors are, however, not known. New patient-reported outcome research is emerging, but valid and reliable condition-specific HRQOL are still missing. The aim of this review is to summarize and discuss the latest published reports (2015-2019) on HRQOL in patients with the BEEC and its relationship to incontinence and sexual factors.
引用
收藏
页码：251 / 260
页数：10
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