Provider Perspectives on the Feasibility and Utility of Routine Patient-Reported Outcomes Assessment in Heart Failure: A Qualitative Analysis

被引:35
作者
Wohlfahrt, Peter [1 ]
Zickmund, Susan L. [1 ]
Slager, Stacey [1 ]
Allen, Larry A. [2 ]
Nicolau, Jose Nativi [1 ]
Kfoury, Abdallah G. [3 ]
Felker, G. Michael [4 ]
Conte, Jorge [1 ]
Flint, Kelsey [2 ,5 ]
DeVore, Adam D. [4 ]
Selzman, Craig H. [1 ]
Hess, Rachel [1 ]
Spertus, John A. [6 ]
Stehlik, Josef [1 ]
机构
[1] Univ Utah, Sch Med, Salt Lake City, UT USA
[2] Univ Colorado, Anschutz Med Campus, Aurora, CO USA
[3] Intermt Med Ctr, Murray, UT USA
[4] Duke Univ, Med Ctr, Div Cardiol, Durham, NC 27710 USA
[5] Rocky Mt Reg VA Med Ctr, Aurora, CO USA
[6] Lukes Mid Amer Heart Inst, Kansas City, MO USA
来源
JOURNAL OF THE AMERICAN HEART ASSOCIATION | 2020年 / 9卷 / 02期
关键词
patient reported outcome; qualitative research; quality of life; HEALTH-STATUS; CLINICAL-PRACTICE; OF-LIFE; HOSPITALIZATION; ASSOCIATION; PREFERENCES; RISK;
D O I
10.1161/JAHA.119.013047
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Background Patient-reported outcomes (PROs) objectively measure health-related quality of life and provide prognostic information. Advances in technology now allow for rapid, patient-friendly PRO assessment and scoring, yet the adoption of PROs in clinic has been slow. We conducted a multicenter qualitative study of diverse providers to describe the barriers and facilitators of routine PRO use in heart failure clinics. Methods and Results Sixty heart failure providers from 5 institutions participated in 8 focus groups to explore provider perspectives on the use of heart failure-specific and generic PROs in clinical practice. A qualitative editing approach was used to analyze the data, whereby a coding dictionary was iteratively developed and applied using the qualitative software program Altas.ti. Three main themes, supporting and impeding PRO use, emerged: (1) data collection; (2) presentation and interpretation; and (3) utility and value. For each construct, we identified perspectives that highlighted both barriers and facilitators. Providers identified burden, survey fatigue, and language/health literacy barriers as potentially impeding data collection. Optimal workflow, PRO frequency and length, use of PRO translations, and assistance of a patient's proxy were suggested as facilitators. Focus group discussions provided insight on how to display PROs to support its interpretability and sharing. Furthermore, the need to educate providers on the utility and value PROs over and above current clinical approaches emerged. Conclusions Overcoming the barriers and supporting facilitators of PRO adoption could potentially lead to more successful adoption of PROs in heart failure clinics.
引用
收藏
页数:25
相关论文
共 50 条
  • [41] Heart Failure and Patient-Reported Outcomes in Adults With Congenital Heart Disease from 15 Countries
    Lu, Chun-Wei
    Wang, Jou-Kou
    Yang, Hsiao-Ling
    Kovacs, Adrienne H.
    Luyckx, Koen
    Ruperti-Repilado, Francisco Javier
    Van de Bruaene, Alexander
    Enomoto, Junko
    Sluman, Maayke A.
    Jackson, Jamie L.
    Khairy, Paul
    Cook, Stephen C.
    Chidambarathanu, Shanthi
    Alday, Luis
    Oechslin, Erwin
    Eriksen, Katrine
    Dellborg, Mikael
    Berghammer, Malin
    Johansson, Bengt
    Mackie, Andrew S.
    Menahem, Samuel
    Caruana, Maryanne
    Veldtman, Gruschen
    Soufi, Alexandra
    Fernandes, Susan M.
    White, Kamila
    Callus, Edward
    Kutty, Shelby
    Apers, Silke
    Moons, Philip
    JOURNAL OF THE AMERICAN HEART ASSOCIATION, 2022, 11 (09):
  • [42] A nomogram based on a patient-reported outcomes measure: predicting the risk of readmission for patients with chronic heart failure
    Han, Qiang
    Ren, Jia
    Tian, Jing
    Yang, Hong
    Zhang, Qing
    Wang, Ruoya
    Zhao, Jinghua
    Han, Linai
    Li, Chenhao
    Yan, Jingjing
    Wang, Ke
    Zheng, Chu
    Han, Qinghua
    Zhang, Yanbo
    HEALTH AND QUALITY OF LIFE OUTCOMES, 2020, 18 (01)
  • [43] Impact of Patient-Reported Outcomes in Oncology: A Longitudinal Analysis of Patient-Physician Communication
    Takeuchi, Elena E.
    Keding, Ada
    Awad, Noha
    Hofmann, Ursula
    Campbell, Lyndsay J.
    Selby, Peter J.
    Brown, Julia M.
    Velikova, Galina
    JOURNAL OF CLINICAL ONCOLOGY, 2011, 29 (21) : 2910 - 2917
  • [44] Tackling Patient-Reported Outcomes in Atrial Fibrillation and Heart Failure Identifying Disease-Specific Symptoms?
    Steinberg, Benjamin A.
    Piccini, Jonathan P., Sr.
    CARDIOLOGY CLINICS, 2019, 37 (02) : 139 - +
  • [45] Assessment of chronic disease self-management in patients with chronic heart failure based on the MCID of patient-reported outcomes by the multilevel model
    Tian, Jing
    Zhao, Jinghua
    Zhang, Qing
    Ren, Jia
    Han, Linai
    Li, Jing
    Zhang, Yanbo
    Han, Qinghua
    BMC CARDIOVASCULAR DISORDERS, 2021, 21 (01)
  • [46] Assessment of patient-reported outcomes in retinal diseases: a systematic review
    Senthil, Mallika Prem
    Khadka, Jyoti
    Pesudovs, Konrad
    SURVEY OF OPHTHALMOLOGY, 2017, 62 (04) : 546 - 582
  • [47] Patient-Reported Outcomes Following Ventral Hernia Repair: Designing a Qualitative Assessment Tool
    Carney, Martin J.
    Golden, Kate E.
    Weissler, Jason M.
    Lanni, Michael A.
    Bauder, Andrew R.
    Cakouros, Brigid
    Enriquez, Fabiola
    Broach, Robyn
    Barg, Frances K.
    Schapira, Marilyn M.
    Fischer, John P.
    PATIENT-PATIENT CENTERED OUTCOMES RESEARCH, 2018, 11 (02) : 225 - 234
  • [48] Measuring psychosocial outcomes of men living with prostate cancer: feasibility of regular assessment of patient-reported outcomes
    Ettridge, Kerry
    Wright, Kathleen
    Smith, David
    Chambers, Suzanne
    Corsini, Nadia
    Evans, Susan
    Moretti, Kim
    Roder, David
    Scuffham, Paul
    Miller, Caroline
    EUROPEAN JOURNAL OF CANCER CARE, 2021, 30 (04)
  • [49] Patient perspectives on patient-reported outcomes in multiple sclerosis treatment trajectories: A qualitative study of why, what, and how?
    Westergaard, Katrine
    Skovgaard, Lasse
    Magyari, Melinda
    Kristiansen, Maria
    MULTIPLE SCLEROSIS AND RELATED DISORDERS, 2022, 58
  • [50] Device-detected congestion is associated with worse patient-reported outcomes in heart failure
    Auld, Jonathan P.
    Mudd, James O.
    Gelow, Jill M.
    Lyons, Karen S.
    Hiatt, Shirin O.
    Lee, Christopher S.
    HEART & LUNG, 2019, 48 (03): : 208 - 214