Decision-Making in People With Dementia or Mild Cognitive Impairment: A Narrative Review of Decision-Making Tools

被引:16
作者
Ho, Mu-Hsing [1 ,2 ,3 ]
Chang, Hui-Chen [2 ,3 ]
Liu, Megan F. [4 ]
Chien, Hui-Wen [5 ]
Tang, Li-Yu [6 ]
Chan, Su-Yuan [6 ]
Liu, Su-Hui [4 ]
John, Shibu [7 ]
Traynor, Victoria [2 ,3 ]
机构
[1] Taipei Med Univ Hosp, Dept Nursing, Taipei, Taiwan
[2] Univ Wollongong, Fac Sci Med & Hlth, Sch Nursing, Northfields Ave, Wollongong, NSW 2522, Australia
[3] Illawarra Hlth & Med Res Inst IHMRI, Wollongong, NSW, Australia
[4] Taipei Med Univ, Coll Nursing, Sch Gerontol Hlth Management, Taipei, Taiwan
[5] Asia Univ, Coll Nursing, Dept Nursing, Taichung, Taiwan
[6] Taiwan Alzheimers Dis Assoc, Taipei, Taiwan
[7] Hunter New England Local Hlth Dist, Rankin Pk Ctr, New Lambton, NSW, Australia
关键词
Capacity; decision-making; decision aids; dementia; mild cognitive impairment; narrative review; ALZHEIMERS-DISEASE PATIENTS; COMPETENCE ASSESSMENT-TOOL; CHINESE OLDER PERSONS; FAMILY BOOKLET; COMFORT CARE; FEEDING OPTIONS; CAPACITY; CONSENT; AID; INTERVENTION;
D O I
10.1016/j.jamda.2021.06.034
中图分类号
R592 [老年病学]; C [社会科学总论];
学科分类号
03 ; 0303 ; 100203 ;
摘要
Objectives: This review summarized the applicability of various decision-making tools for helping people with dementia or mild cognitive impairment (MCI) and their families make decisions. Design: This study was a narrative literature review. The protocol of this review was registered in the International Prospective Register of Systematic Reviews (PROSPERO ID: CRD42020182259). Setting and Participants: People with dementia or MCI and their families were included in this study. Methods: This review was conducted according to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses statement. We searched the Cochrane Library, PubMed, Embase, Cumulative Index to Nursing and Allied Health Literature, and Chinese Electronic Periodical Services databases from inception to May 2021. The Joanna Briggs Institute Critical Appraisal Checklists for a variety of study designs were used. Results: Topics related to decision-making were categorized as everyday activity decisions or medical treatment decisions. Various types of decision-making tools were identified, and we observed that decision aids can be modified and used for both everyday activity decisions and medical treatment decisions. In addition to highlighting decision aids for specific decisional issues and topics, we also elucidated other validated tools that can be used to facilitate the decision-making process. Conclusions and Implications: This study highlighted the topics involved in decision-making and using decision-making tools. The current review provides information that can help individuals and health care professionals choose optimal decision-making tools. On the basis of our findings, future studies can determine the most appropriate tools for intervention or outcome measures. (c) 2021 AMDA -The Society for Post-Acute and Long-Term Care Medicine.
引用
收藏
页码:2056 / +
页数:11
相关论文
共 54 条
[1]  
[Anonymous], 2011, Encycl. Clin. Neuropsychol, DOI DOI 10.1007/978-0-387-79948-3_1613
[2]   Educating families about end-of-life care in advanced dementia: acceptability of a Canadian family booklet to nurses from Canada, France, and Japan [J].
Arcand, Marcel ;
Brazil, Kevin ;
Nakanishi, Miharu ;
Nakashima, Taeko ;
Alix, Michel ;
Desson, Jean-Francois ;
Morello, Remy ;
Belzile, Louise ;
Beaulieu, Marie ;
Hertogh, Cees M. P. M. ;
Toscani, Franco ;
van der Steen, Jenny T. .
INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2013, 19 (02) :67-74
[3]  
Aromataris E., 2017, JBI MANUAL EVIDENCE
[4]   User-Centered Design and Evaluation of a Web-Based Decision Aid for Older Adults Living With Mild Cognitive Impairment and Their Health Care Providers: Mixed Methods Study [J].
Bogza, Laura-Mihaela ;
Patry-Lebeau, Cassandra ;
Farmanova, Elina ;
Witteman, Holly O. ;
Elliott, Jacobi ;
Stolee, Paul ;
Hudon, Carol ;
Giguere, Anik M. C. .
JOURNAL OF MEDICAL INTERNET RESEARCH, 2020, 22 (08)
[5]   Development and pilot testing of a decision aid for drivers with dementia [J].
Carmody, John ;
Potter, Jan ;
Lewis, Kate ;
Bhargava, Sanjay ;
Traynor, Victoria ;
Iverson, Don .
BMC MEDICAL INFORMATICS AND DECISION MAKING, 2014, 14
[6]   Decision aids to support decision-making in dementia care: a systematic review [J].
Davies, Nathan ;
Schiowitz, Brooke ;
Rait, Greta ;
Vickerstaff, Victoria ;
Sampson, Elizabeth L. .
INTERNATIONAL PSYCHOGERIATRICS, 2019, 31 (10) :1403-1419
[7]   Advance Care Planning in Dementia: Do Family Carers Know the Treatment Preferences of People with Early Dementia? [J].
Dening, Karen Harrison ;
King, Michael ;
Jones, Louise ;
Vickestaff, Victoria ;
Sampson, Elizabeth L. .
PLOS ONE, 2016, 11 (07)
[8]   "Thinking About It for Somebody Else": Alzheimer's Disease Research and Proxy Decision Makers' Translation of Ethical Principles Into Practice [J].
Dunn, Laura B. ;
Fisher, Stephanie Reyes ;
Hantke, Melinda ;
Appelbaum, Paul S. ;
Dohan, Daniel ;
Young, Jenifer P. ;
Roberts, Laura Weiss .
AMERICAN JOURNAL OF GERIATRIC PSYCHIATRY, 2013, 21 (04) :337-345
[9]   Challenges in the assessment of decision-making capacity [J].
Edelstein, B .
JOURNAL OF AGING STUDIES, 2000, 14 (04) :423-437
[10]   Development and Testing of a Decision Aid on Goals of Care for Advanced Dementia [J].
Einterz, Seth F. ;
Gilliam, Robin ;
Lin, Feng Chang ;
McBride, J. Marvin ;
Hanson, Laura C. .
JOURNAL OF THE AMERICAN MEDICAL DIRECTORS ASSOCIATION, 2014, 15 (04) :251-255