The Americleft Study: An Inter-Center Study of Treatment Outcomes for Patients With Unilateral Cleft Lip and Palate Part 1. Principles and Study Design

被引：86

作者：

Long, Ross E., Jr. ^{[1
,2
]}

Hathaway, Ronald ^{[1
,3
]}

Daskalogiannakis, John ^{[1
,4
,5
]}

Mercado, Ana ^{[1
,6
]}

Russell, Kathleen ^{[1
,7
,8
]}

Cohen, Marilyn ^{[1
,9
]}

Semb, Gunvor ^{[1
,10
,11
,12
]}

Shaw, William ^{[1
,12
]}

机构：

[1] Dalhousie Univ, Fac Dent, Div Orthodont, Halifax, NS B3H 3J5, Canada

[2] Penn State Coll Med, Dept Surg, Lancaster Cleft Palate Clin, Lancaster, PA USA

[3] Peyton Manning Childrens Hosp St Vincent, Craniofacial Ctr, Indianapolis, IN USA

[4] Univ Toronto, SickKids Hosp, Toronto, ON, Canada

[5] Univ Toronto, Dept Orthodont, Toronto, ON, Canada

[6] Ohio State Univ, Coll Dent, Div Orthodont, Columbus, OH 43210 USA

[7] Dalhousie Univ, Div Orthodont, Halifax, NS, Canada

[8] IWK Hlth Ctr, Cleft Palate Team, Halifax, NS, Canada

[9] Cooper Univ Hosp, Reg Cleft Craniofacial Program, Moorestown, NJ USA

[10] Univ Oslo, Fac Dent, Oslo, Norway

[11] Oslo Cleft Team, Dept Plast Surg, Oslo, Norway

[12] Univ Manchester, Manchester, Lancs, England

来源：

CLEFT PALATE CRANIOFACIAL JOURNAL | 2011年 / 48卷 / 03期

关键词：

Americleft; cleft lip and palate; intercenter study; treatment outcome measures;

D O I：

10.1597/09-180.1

中图分类号：

R78 [口腔科学];

学科分类号：

1003 ;

摘要：

Objective: The Americleft study is a North American initiative to undertake an intercenter outcome study for patients with repaired complete unilateral cleft lip and palate from five well-established North American cleft centers. Design: Retrospective cohort study. Setting: Five cleft palate centers in North America. Methods: This is the first paper in a series of five that outlines the overall goals of the study and sets the basis for the clinical outcome studies that are reported in the following four papers. The five centers' samples and treatment protocols as well as the methods used for each study are reported. The challenges encountered and possible mechanisms to resolve them and reduce methodological error with intercenter studies are also reviewed.

引用

页码：239 / 243

页数：5

共 50 条

[41] Long-term treatment outcome of patients with complete bilateral cleft lip and palate: a retrospective cohort study [J].

Hattori, Yoshitsugu ;

Pai, Betty C. -J. ;

Saito, Takafumi ;

Chou, Pang-Yun ;

Lu, Ting-Chen ;

Chang, Chun-Shin ;

Chen, Yu-Ray ;

Lo, Lun-Jou .

INTERNATIONAL JOURNAL OF SURGERY, 2023, 109 (06) :1656-1667

[42] A Multicenter Study Using the SWAG Scale to Compare Secondary Alveolar Bone Graft Outcomes for Patients With Cleft Lip and Palate [J].

Russell, Kathleen ;

Long, Ross E., Jr. ;

Daskalogiannakis, John ;

Mercado, Ana ;

Hathaway, Ronald ;

Semb, Gunvor ;

Shaw, William .

CLEFT PALATE CRANIOFACIAL JOURNAL, 2016, 53 (02) :180-186

[43] Speech in 5-year-olds born with unilateral cleft lip and palate: a Prospective Swedish Intercenter Study [J].

Klinto, Kristina ;

Brunnegard, Karin ;

Havstam, Christina ;

Appelqvist, Malin ;

Hagberg, Emilie ;

Taleman, Ann-Sofie ;

Lohmander, Anette .

JOURNAL OF PLASTIC SURGERY AND HAND SURGERY, 2019, 53 (05) :309-315

[44] Centre-level variation of treatment and outcome in 5-year-old children with non-syndromic unilateral cleft lip and palate: The Cleft Care UK study. Part 1: Methodology andresults for dento-facial outcomes [J].

Wills, A. K. ;

Mahmoud, O. ;

Hall, A. ;

Sell, D. ;

Smallridge, J. ;

Southby, L. ;

Toms, S. ;

Waylen, A. ;

Wren, Y. ;

Ness, A. R. ;

Sandy, J. R. .

ORTHODONTICS & CRANIOFACIAL RESEARCH, 2017, 20 :1-7

[45] Parent's Experiences During Orthodontic Treatment of Their Children With Cleft Lip and Palate: Phenomenological Study [J].

Imani, Mohammad Moslem ;

Jalali, Amir ;

Nouri, Prichehr ;

Golshah, Amin .

CLEFT PALATE CRANIOFACIAL JOURNAL, 2021, 58 (09) :1135-1141

[46] Range and timing of surgery, and surgical sequences used, in primary repair of complete unilateral cleft lip and palate: The Cleft Care UK study [J].

Slator, Rona ;

Perisanidou, Lydia Iyamu ;

Waylen, Andrea ;

Sandy, Jonathan ;

Ness, Andy ;

Wills, Andrew K. .

ORTHODONTICS & CRANIOFACIAL RESEARCH, 2020, 23 (02) :166-173

[47] Hearing Status and Ventilation Tube at Time of Palatoplasty in Cleft Lip and Palate Patients: A Retrospective Study [J].

Frisina, Antonio ;

Piacentile, Katherine ;

Frosolini, Andrea ;

Saetti, Roberto ;

Baciliero, Ugo ;

Lovato, Andrea .

MEDICINA-LITHUANIA, 2023, 59 (03)

[48] Enamel defects in permanent teeth of patients with cleft lip and palate: a cross-sectional study [J].

Shen, Chia-An ;

Guo, Runzhi ;

Li, Weiran .

JOURNAL OF INTERNATIONAL MEDICAL RESEARCH, 2019, 47 (05) :2084-2096

[49] Short-term surgical outcomes in patients with unilateral complete cleft lip and palate after presurgical nasoalveolar molding therapy: A three-dimensional anthropometric study [J].

Yin, Jiayi ;

Zhang, Shiming ;

Huang, Ning ;

Shi, Bing ;

Zheng, Qian ;

Yang, Chao .

FRONTIERS IN PEDIATRICS, 2022, 10

[50] Implant-borne prosthetic rehabilitation in patients with cleft lip and palate: A retrospective study on 43 patients [J].

Borgnat, F. ;

Martin, P. ;

Paulus, C. .

REVUE DE STOMATOLOGIE DE CHIRURGIE MAXILLO-FACIALE ET DE CHIRURGIE ORALE, 2015, 116 (04) :229-234

← 1 2 3 4 5 →