The quality of life in boys with Duchenne muscular dystrophy

被引：16

作者：

Zamani, Gholamreza ^{[1
]}

Heidari, Morteza ^{[2
,3
]}

Malamiri, Reza Azizi ^{[4
]}

Ashrafi, Mahmoud Reza ^{[1
]}

Mohammadi, Mahmoud ^{[1
]}

Badv, Reza Shervin ^{[1
]}

Hosseini, Seyed Ahmad ^{[5
]}

Salehi, Soodeh ^{[1
]}

Shahrokhi, Amin ^{[6
]}

Qorbani, Mostafa ^{[7
]}

Fathi, Mohammad Reza ^{[4
]}

机构：

[1] Univ Tehran Med Sci, Childrens Med Ctr, Pediat Ctr Excellence, Dept Pediat Neurol, Tehran, Iran

[2] Alborz Univ Med Sci, Shahid Bahonar Children Hosp, Dept Pediat, Karaj, Iran

[3] Univ Tehran Med Sci, Vali E Asr Hosp, Dept Pediat Neurol, Imam Khomeini Hosp Complex,Bagherkhan St, Tehran 1419733141, Iran

[4] Ahvaz Jundishapur Univ Med Sci, Golestan Med Educ & Res Ctr, Dept Pediat Neurol, Ahvaz, Iran

[5] Golestan Univ Med Sci, Dept Pediat, Gorgan, Iran

[6] Univ Social Welf & Rehabil Sci, Pediat Neurorehabil Res Ctr, Tehran, Iran

[7] Alborz Univ Med Sci, Sch Med, Dept Community Med, Karaj, Iran

来源：

NEUROMUSCULAR DISORDERS | 2016年 / 26卷 / 07期

关键词：

Quality of life; Duchenne muscular dystrophy; KIDSCREEN questionnaire; CHILDREN; ADOLESCENTS;

D O I：

10.1016/j.nmd.2016.05.004

中图分类号：

R74 [神经病学与精神病学];

学科分类号：

摘要：

We conducted a study to evaluate the quality of life in boys with Duchenne muscular dystrophy aged 8-18 years, compared with that in matched healthy controls. A total of 85 boys with Duchenne muscular dystrophy aged 8-18 years and 136 age, sex and living place matched healthy controls were included in this study. Patients and one of their parents separately completed the 27-item Persian version of KIDSCREEN questionnaire (child and adolescent version and parent version). From the children's perspective, the quality of life in patients was found to be lower in two subclasses: "physical activities and health" (p < 0.001) and "friends" (p = 0.005). Parental estimation of their sick child's quality of life was significantly lower than children's own assessment in two subclasses: "physical activities and health" (p < 0.001) and "general mood and feelings" (p < 0.001). Our results indicate that boys with Duchenne muscular dystrophy have quite a satisfactory quality of life. A happier and more hopeful life can be promoted through increasing social support and improving the parental knowledge regarding their child's more positive life perspective. (C) 2016 Elsevier B.V. All rights reserved.

引用

页码：423 / 427

页数：5

共 16 条

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