The Portuguese Rheumatoid Arthritis Impact of Disease (RAID) score and its measurement equivalence in three countries: validation study using Rasch Models

被引:7
作者
Ferreira, Ricardo J. O. [1 ,2 ]
Gossec, Laure [3 ,4 ]
Duarte, Catia [1 ,5 ]
Nicklin, Joanne K. [6 ]
Hewlett, Sarah [6 ,7 ]
da Silva, J. A. P. [1 ,5 ]
Ndosi, Mwidimi [6 ,7 ]
机构
[1] Ctr Hosp & Univ Coimbra, Dept Rheumatol, Coimbra, Portugal
[2] Escola Super Enfermagem Coimbra, Hlth Sci Res Unit: Nursing UICiSA E, Coimbra, Portugal
[3] UPMC Univ Paris 06, Sorbonne Univ, GRC UPMC, Inst Pierre Louis Epidemiol & Sante Publ, Paris, France
[4] Hop La Pitie Salpetriere, AP HP, Dept Rheumatol, Paris, France
[5] Univ Coimbra, Coimbra Inst Clin & Biomed Res iCBR, Fac Med, Coimbra, Portugal
[6] Univ West England, Dept Nursing & Midwifery, Bristol, Avon, England
[7] Univ Hosp Bristol, Acad Rheumatol Unit, Bristol, Avon, England
关键词
Rheumatoid arthritis; Health-related quality of life; Patient-reported outcome measures; Validation studies; Cross-Cultural comparison; Disease impact; PATIENT-REPORTED OUTCOMES; RHEUMATOLOGY/EUROPEAN LEAGUE; AMERICAN-COLLEGE; SCALE; CLASSIFICATION; FATIGUE; PERSPECTIVE; REGISTER; VALIDITY; CRITERIA;
D O I
10.1007/s11136-018-1959-4
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
PurposeThe Rheumatoid Arthritis Impact of Disease (RAID) score assesses seven impact domains of interest for people with RA. This study aimed to test patients' understanding of the Portuguese RAID and evaluate its cross-cultural validity for use in Portugal.MethodsThis was a mixed methods study comprising two phases: (i) cognitive debriefing to determine patient's comprehension of the Portuguese RAID and (ii) cross-cultural validation using Rasch analysis. Construct validity was determined by fit to the model, invariance culture (compared with France and UK datasets) and evidence of convergent and divergent validity.ResultsPatients' input (n=38) led to minor changes in the phrasing of two items to ensure conceptual equivalence between the Portuguese and the original RAID. In Rasch analysis (n=288), two items Sleep' and Physical well-being' in the Portuguese dataset did not adequately fit the model specifications, suggesting multidimensionality (sleepnot necessarily associated with RA) and redundancy (physical well-being overlapping with functional disability). Despite the imperfections, the scale had high internal consistency, evidence of convergent and divergent validity and invariance to culture (compared to France n=195 and UK n=205 datasets). The scale was well targeted for patients with different levels of disease impact.ConclusionsThe RAID has been successfully adapted into Portuguese and it can be used with confidence in clinical practice. Further research will be required to ensure it captures the full range of sleep problems in RA. Meanwhile, data across the three countries (Portugal, France and the UK) are comparable except for the two items (sleep and physical well-being).
引用
收藏
页码:2909 / 2921
页数:13
相关论文
共 48 条
[1]   Sleep and rheumatologic disorders [J].
Abad, Vivien C. ;
Sarinas, Priscilla S. A. ;
Guilleminault, Christian .
SLEEP MEDICINE REVIEWS, 2008, 12 (03) :211-228
[2]  
Aletaha D, 2010, ANN RHEUM DIS, V69, P1580, DOI [10.1136/ard.2010.138461, 10.1002/art.27584]
[3]  
[Anonymous], 1971, THEORY PROCEDURE SCA, DOI DOI 10.1515/9783110813203
[4]   THE AMERICAN-RHEUMATISM-ASSOCIATION 1987 REVISED CRITERIA FOR THE CLASSIFICATION OF RHEUMATOID-ARTHRITIS [J].
ARNETT, FC ;
EDWORTHY, SM ;
BLOCH, DA ;
MCSHANE, DJ ;
FRIES, JF ;
COOPER, NS ;
HEALEY, LA ;
KAPLAN, SR ;
LIANG, MH ;
LUTHRA, HS ;
MEDSGER, TA ;
MITCHELL, DM ;
NEUSTADT, DH ;
PINALS, RS ;
SCHALLER, JG ;
SHARP, JT ;
WILDER, RL ;
HUNDER, GG .
ARTHRITIS AND RHEUMATISM, 1988, 31 (03) :315-324
[5]   Sleep disturbance in patients with rheumatoid arthritis is related to fatigue, disease activity, and other patient-reported outcomes [J].
Austad, C. ;
Kvien, T. K. ;
Olsen, I. C. ;
Uhlig, T. .
SCANDINAVIAN JOURNAL OF RHEUMATOLOGY, 2017, 46 (02) :95-103
[7]   One size fits all? What counts as quality practice in (reflexive) thematic analysis? [J].
Braun, Virginia ;
Clarke, Victoria .
QUALITATIVE RESEARCH IN PSYCHOLOGY, 2021, 18 (03) :328-352
[8]  
Canhao H, 2011, ACTA REUMATOL PORT, V36, P45
[9]  
Cella D, 2005, J RHEUMATOL, V32, P811
[10]   Burden of disease in treated rheumatoid arthritis patients: Going beyond the joint [J].
Cutolo, Maurizio ;
Kitas, George D. ;
van Riel, Piet L. C. M. .
SEMINARS IN ARTHRITIS AND RHEUMATISM, 2014, 43 (04) :479-488