Ethical, legal and social issues for personal health records and applications

被引:38
作者
Cushman, Reid [1 ]
Froomkin, A. Michael [2 ]
Cava, Anita [3 ]
Abril, Patricia [3 ]
Goodman, Kenneth W. [4 ]
机构
[1] Univ Miami Hlth Syst, Sch Med, Dept Med Informat Technol, Miami, FL 33136 USA
[2] Univ Miami, Sch Law, Coral Gables, FL 33124 USA
[3] Univ Miami, Sch Business Adm, Coral Gables, FL 33124 USA
[4] Univ Miami, Eth Programs, Miami, FL 33136 USA
关键词
Ethics; Personal; Health; Record; Application; PHR; PHA; ELSI;
D O I
10.1016/j.jbi.2010.05.003
中图分类号
TP39 [计算机的应用];
学科分类号
081203 ; 0835 ;
摘要
Robert Wood Johnson Foundation's Project HealthDesign included funding of an ethical, legal and social issues (ELSI) team, to serve in an advisory capacity to the nine design projects. In that capacity, the authors had the opportunity to analyze the personal health record (PHR) and personal health application (PHA) implementations for recurring themes. PHRs and PHAs invert the long-standing paradigm of health care institutions as the authoritative data-holders and data-processors in the system. With PHRs and PHAs, the individual is the center of his or her own health data universe, a position that brings new benefits but also entails new responsibilities for patients and other parties in the health information infrastructure. Implications for law, policy and practice follow from this shift. This article summarizes the issues raised by the first phase of Project HealthDesign projects, categorizing them into four topics: privacy and confidentiality, data security, decision support, and HIPAA and related legal-regulatory requirements. Discussion and resolution of these issues will be critical to successful PHR/PHA implementations in the years to come. (C) 2010 Elsevier Inc. All rights reserved.
引用
收藏
页码:S51 / S55
页数:5
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