Traversing the Aging Research and Health Equity Divide: Toward Intersectional Frameworks of Research Justice and Participation

被引:66
|
作者
Gilmore-Bykovskyi, Andrea [1 ,2 ]
Croff, Raina [3 ]
Glover, Crystal M. [4 ,5 ]
Jackson, Jonathan D. [6 ,7 ]
Resendez, Jason [8 ]
Perez, Adriana [9 ]
Zuelsdorff, Megan [1 ]
Green-Harris, Gina [2 ]
Manly, Jennifer J. [10 ,11 ]
机构
[1] Univ Wisconsin, Ctr Hlth Dispar Res, Madison, WI 53705 USA
[2] Univ Wisconsin, Sch Nursing, 3173 Cooper Hall,701 Highland Ave, Madison, WI 53705 USA
[3] Oregon Hlth & Sci Univ, NIA Layton Aging & Alzheimers Dis Ctr, Portland, OR 97201 USA
[4] Rush Med Coll, Div Behav Sci, Chicago, IL 60612 USA
[5] Rush Univ Med Ctr, Rush Alzheimers Dis Ctr, Chicago, IL USA
[6] Massachusetts Gen Hosp, Community Access Recruitment & Engagement CARE Re, Boston, MA 02114 USA
[7] Harvard Med Sch, Boston, MA 02115 USA
[8] UsAgainstAlzheimers, Washington, DC USA
[9] Univ Penn, Sch Nursing, Philadelphia, PA 19104 USA
[10] Columbia Univ, Vagelos Coll Phys & Surg, Dept Neurol, New York, NY USA
[11] Columbia Univ, Taub Inst Res Alzheimers Dis & Aging Brain, New York, NY USA
基金
美国国家卫生研究院;
关键词
Chronic illness; Disparities (health; racial); Diversity and ethnicity; Research participation; UNDERREPRESENTED POPULATIONS; RECRUITMENT; RETENTION; TUSKEGEE; MISTRUST; FACILITATORS; BARRIERS; SCIENCE; TRUST; RACE;
D O I
10.1093/geront/gnab107
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
Meaningful reductions in racial and ethnic inequities in chronic diseases of aging remain unlikely without major advancements in the inclusion of minoritized populations in aging research. While sparse, studies investigating research participation disparities have predominantly focused on individual-level factors and behavioral change, overlooking the influence of study design, structural factors, and social determinants of health on participation. This is also reflected in conventional practices that consistently fail to address established participation barriers, such as study requirements that impose financial, transportation, linguistic, and/or logistical barriers that disproportionately burden participants belonging to minoritized populations. These shortcomings not only risk exacerbating distrust toward research and researchers, but also introduce significant selection biases, diminishing our ability to detect differential mechanisms of risk, resilience, and response to interventions across subpopulations. This forum article examines the intersecting factors that drive both health inequities in aging and disparate participation in aging research among minoritized populations. Using an intersectional, social justice, and emancipatory lens, we characterize the role of social determinants, historical contexts, and contemporaneous structures in shaping research accessibility and inclusion. We also introduce frameworks to accelerate transformative theoretical approaches to fostering equitable inclusion of minoritized populations in aging research.
引用
收藏
页码:711 / 720
页数:10
相关论文
共 50 条
  • [1] Directing Research Toward Health Equity: a Health Equity Research Impact Assessment
    Castillo, Enrico G.
    Harris, Christina
    JOURNAL OF GENERAL INTERNAL MEDICINE, 2021, 36 (09) : 2803 - 2808
  • [2] Conducting Health Disparities Research with Criminal Justice Populations: Examining Research, Ethics, and Participation
    Valera, Pamela
    Cook, Stephanie
    Macklin, Ruth
    Chang, Yvonne
    ETHICS & BEHAVIOR, 2014, 24 (02) : 164 - 174
  • [3] The role of patient ergonomics in improving health research participation
    Zayas-Caban, Teresa
    Rogers, Courtney C.
    APPLIED ERGONOMICS, 2025, 125
  • [4] Intersectional Approaches to Minority Aging Research
    Tobin, Courtney S. Thomas S.
    Gutierrez, Angela
    Farmer, Heather R.
    Erving, Christy L.
    Hargrove, Taylor W.
    CURRENT EPIDEMIOLOGY REPORTS, 2023, 10 (1) : 33 - 43
  • [5] Toward a Fourth Generation of Disparities Research to Achieve Health Equity
    Thomas, Stephen B.
    Quinn, Sandra Crouse
    Butler, James
    Fryer, Craig S.
    Garza, Mary A.
    ANNUAL REVIEW OF PUBLIC HEALTH, VOL 32, 2011, 32 : 399 - 416
  • [6] For Aging Research and Equity: Lessons Learned in Undergraduate Research Education
    Roberts, Lindsay R.
    Ririe, Criss J.
    Myers, Marcella J.
    Guggenheimer, Joshua D.
    Campbell, Katherine A.
    INTERNATIONAL JOURNAL OF AGING & HUMAN DEVELOPMENT, 2023, 96 (01) : 91 - 105
  • [7] Age-Specific Barriers and Facilitators to Research Participation Amongst African Americans in Observational Studies of Memory and Aging
    Nissim, Nicole R.
    Fudge, Michelle R.
    Lachner, Christian
    Babulal, Ganesh M.
    Allyse, Megan A.
    Graff-Radford, Neill R.
    Lucas, John A.
    Day, Gregory S.
    JOURNAL OF RACIAL AND ETHNIC HEALTH DISPARITIES, 2023, 11 (5) : 2796 - 2805
  • [8] Toward Equity in Research on Intellectual and Developmental Disabilities
    Kover, Sara T.
    Abbeduto, Leonard
    AJIDD-AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, 2023, 128 (05): : 350 - 370
  • [9] Intersectional Principles of Community Partnership and Social Justice in Qualitative Research in Migration
    Fernandez-Sanchez, Higinio
    INTERNATIONAL JOURNAL OF QUALITATIVE METHODS, 2023, 22
  • [10] Activism for intersectional justice in sport sociology: Using intersectionality in research and in the classroom
    Calow, Emma
    FRONTIERS IN SPORTS AND ACTIVE LIVING, 2022, 4