Traversing the Aging Research and Health Equity Divide: Toward Intersectional Frameworks of Research Justice and Participation

被引:76
作者
Gilmore-Bykovskyi, Andrea [1 ,2 ]
Croff, Raina [3 ]
Glover, Crystal M. [4 ,5 ]
Jackson, Jonathan D. [6 ,7 ]
Resendez, Jason [8 ]
Perez, Adriana [9 ]
Zuelsdorff, Megan [1 ]
Green-Harris, Gina [2 ]
Manly, Jennifer J. [10 ,11 ]
机构
[1] Univ Wisconsin, Ctr Hlth Dispar Res, Madison, WI 53705 USA
[2] Univ Wisconsin, Sch Nursing, 3173 Cooper Hall,701 Highland Ave, Madison, WI 53705 USA
[3] Oregon Hlth & Sci Univ, NIA Layton Aging & Alzheimers Dis Ctr, Portland, OR 97201 USA
[4] Rush Med Coll, Div Behav Sci, Chicago, IL 60612 USA
[5] Rush Univ Med Ctr, Rush Alzheimers Dis Ctr, Chicago, IL USA
[6] Massachusetts Gen Hosp, Community Access Recruitment & Engagement CARE Re, Boston, MA 02114 USA
[7] Harvard Med Sch, Boston, MA 02115 USA
[8] UsAgainstAlzheimers, Washington, DC USA
[9] Univ Penn, Sch Nursing, Philadelphia, PA 19104 USA
[10] Columbia Univ, Vagelos Coll Phys & Surg, Dept Neurol, New York, NY USA
[11] Columbia Univ, Taub Inst Res Alzheimers Dis & Aging Brain, New York, NY USA
基金
美国国家卫生研究院;
关键词
Chronic illness; Disparities (health; racial); Diversity and ethnicity; Research participation; UNDERREPRESENTED POPULATIONS; RECRUITMENT; RETENTION; TUSKEGEE; MISTRUST; FACILITATORS; BARRIERS; SCIENCE; TRUST; RACE;
D O I
10.1093/geront/gnab107
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
Meaningful reductions in racial and ethnic inequities in chronic diseases of aging remain unlikely without major advancements in the inclusion of minoritized populations in aging research. While sparse, studies investigating research participation disparities have predominantly focused on individual-level factors and behavioral change, overlooking the influence of study design, structural factors, and social determinants of health on participation. This is also reflected in conventional practices that consistently fail to address established participation barriers, such as study requirements that impose financial, transportation, linguistic, and/or logistical barriers that disproportionately burden participants belonging to minoritized populations. These shortcomings not only risk exacerbating distrust toward research and researchers, but also introduce significant selection biases, diminishing our ability to detect differential mechanisms of risk, resilience, and response to interventions across subpopulations. This forum article examines the intersecting factors that drive both health inequities in aging and disparate participation in aging research among minoritized populations. Using an intersectional, social justice, and emancipatory lens, we characterize the role of social determinants, historical contexts, and contemporaneous structures in shaping research accessibility and inclusion. We also introduce frameworks to accelerate transformative theoretical approaches to fostering equitable inclusion of minoritized populations in aging research.
引用
收藏
页码:711 / 720
页数:10
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