Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders

被引:63
作者
Frazier, Thomas W. [1 ]
Dawson, Geraldine [2 ]
Murray, Donna [1 ]
Shih, Andy [3 ]
Sachs, Jessica Snyder [4 ]
Geiger, Angela [4 ]
机构
[1] Autism Speaks, Sci Dept, 1 East 33rd St 4th Floor, New York, NY 10016 USA
[2] Duke Univ, Dept Psychiat & Behav Sci, Durham, NC USA
[3] Autism Speaks, Global Autism Publ Hlth, New York, NY USA
[4] Autism Speaks, New York, NY USA
关键词
Autism; Research priorities; Caregivers; Funding; Stakeholders; Adult transition; PARTICIPATORY RESEARCH;
D O I
10.1007/s10803-018-3642-6
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
Inclusion of stakeholder voices in the allocation of research funding can increase the relevance of results and improve community engagement in research. We describe the results of an online survey that gathered input from community stakeholders regarding autism research priorities. A demographically diverse sample of respondents (N = 6004; 79.1% female; 72.5% ages 30-59; 86.4% USA) completed the survey. Results indicated a preference for applied relative to basic science topics, though both basic and applied science areas were rated as important. Respondents gave their highest ratings to research focused on co-occurring conditions, health and well-being, adult transition, and lifespan issues. These results can guide decision-making by public and private funders when developing science funding priorities and engaging in science dissemination activities.
引用
收藏
页码:3965 / 3971
页数:7
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