Quality of life of families and mothers of children with cerebral palsy, with or without epilepsy

被引:0
作者
Sucuoglu, Hamza [1 ,2 ]
机构
[1] Istanbul Gelisim Univ, Sch Hlth Sci, Istanbul, Turkey
[2] Private Nisa Hosp, Phys Med & Rehabil, Istanbul, Turkey
来源
ANNALS OF CLINICAL AND ANALYTICAL MEDICINE | 2021年 / 12卷 / 09期
关键词
Cerebral palsy; Rehabilitation; Epilepsy; Quality of life; Family; Mother; IMPACT; VALIDITY;
D O I
10.4328/ACAM.20585
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Aim: The effects of the presence of epilepsy in Cerebral palsy (CP) on the quality of life (QOL) of mothers and their families are not clear. In this regard, our study aimed to evaluate the effects of the presence of epilepsy in CP on the QOL of mothers and families. Material and Methods: The study was conducted with 61 mothers whose children had CP, and 25 mothers with healthy children as the control group. Mothers whose children had CP were divided into two groups: children with epilepsy (n = 22) and children without epilepsy (n = 39). All mothers assessed their QOL using the Short Form-36 (SF-36) questionnaire, and their family life qualities were assessed with the Beach Center Family Quality of Life (BC-FQOL) scale. Results: Despite the fact that mothers of children with CP had the lowest scores on the SF-36 for the physical component summary (PCS) and for the mental component summary (MCS) scores compared with the epilepsy group, there was no significant difference between the groups (p> 0.05). In the BC-FQOL, emotional well-being and disability-related support scores were significantly lower in the epilepsy group (p <0.05). Discussion: Mothers of epileptic children with CP have a worse QOL tendency in both physical and mental health, but there is no significant difference compared to the other mothers.
引用
收藏
页码:1049 / 1054
页数:6
相关论文
共 26 条
[1]  
Brown I., 2006, FAMILY QUALITY LIFE
[2]   Determinants of quality of life in children with cerebral palsy: A comprehensive biopsychosocial approach [J].
Chen, Kuan-Lin ;
Tseng, Mei-Hui ;
Shieh, Jeng-Yi ;
Lu, Lu ;
Huang, Chien-Yu .
RESEARCH IN DEVELOPMENTAL DISABILITIES, 2014, 35 (02) :520-528
[3]   Comprehensive management of epilepsy in persons with mental retardation [J].
Coulter, DL .
EPILEPSIA, 1997, 38 :S24-S31
[4]   The impact of child, family, and professional support characteristics on the quality of life in families of young children with disabilities [J].
Davis, Kate ;
Gavidia-Payne, Susana .
JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY, 2009, 34 (02) :153-162
[5]   Quality of life in mothers of children with cerebral palsy: The role of children's gross motor function [J].
Dehghan, Leila ;
Dalvand, Hamid ;
Feizi, Awat ;
Samadi, Sayyed Ali ;
Hosseini, Seyed Ali .
JOURNAL OF CHILD HEALTH CARE, 2016, 20 (01) :17-26
[6]   Health-related quality of life in children with cerebral palsy and their families [J].
Dobhal, Manjusha ;
Juneja, Monica ;
Jain, Rahul ;
Sairam, Smitha ;
Thiagarajan, D. .
INDIAN PEDIATRICS, 2014, 51 (05) :385-387
[7]   Meta-analysis of family-centered helpgiving practices research [J].
Dunst, Carl J. ;
Trivette, Carol M. ;
Hamby, Deborah W. .
MENTAL RETARDATION AND DEVELOPMENTAL DISABILITIES RESEARCH REVIEWS, 2007, 13 (04) :370-378
[8]   The Manual Ability Classification System (MACS) for children with cerebral palsy:: scale development and evidence of validity and reliability [J].
Eliasson, Ann-Christin ;
Krumlinde-Sundholm, Lena ;
Rosblad, Birgit ;
Beckung, Eva ;
Arner, Marianne ;
Ohrvall, Ann-Marie ;
Rosenbaum, Peter .
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY, 2006, 48 (07) :549-554
[9]  
Erdoganoglu Y, 2007, TOPLUM HEKIMLIGI B, P35
[10]   Reference curves, for the gross motor function measure: Percentiles for clinical description and tracking over time among children with cerebral palsy [J].
Hanna, Steven E. ;
Bartlett, Doreen J. ;
Rivard, Lisa M. ;
Russell, Dianne J. .
PHYSICAL THERAPY, 2008, 88 (05) :596-607