Predictive genetic testing of children for adult-onset diseases and psychological harm

被引:40
作者
Malpas, P. J. [1 ]
机构
[1] Univ Auckland, Dept Philosophy, Auckland, New Zealand
关键词
D O I
10.1136/jme.2006.019802
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
One of the central arguments given to resist testing currently healthy, asymptomatic children for adult-onset diseases is that they may be psychologically harmed by the knowledge gained from such tests. In this discussion I examine two of the most serious arguments: children who are tested may face limited futures, and that testing may result in damage to the child's self esteem (where the test result returns a positive diagnosis). I claim that these arguments do not stand up to critical evaluation. In conclusion, whilst I do not suggest that all at-risk children should be tested for adult-onset diseases we ought to listen carefully to some parental requests for such testing because the putative psychological harms may not be as significant or likely as initially thought. This is because parents generally have the best interests of their children at heart and if they are properly supported and educated about predictive genetic testing and the possible consequences, then the risk of psychological harms occurring may be ameliorated.
引用
收藏
页码:275 / 278
页数:4
相关论文
共 20 条
[1]  
BLOCH M, 1990, AM J HUM GENET, V46, P1
[2]   Parental attitudes regarding newborn screening of PKU and DMD [J].
Campbell, E ;
Ross, LF .
AMERICAN JOURNAL OF MEDICAL GENETICS PART A, 2003, 120A (02) :209-214
[3]  
*CEJA, 1995, 4A95 CEJA
[4]   THE GENETIC TESTING OF CHILDREN [J].
CLARKE, A .
JOURNAL OF MEDICAL GENETICS, 1994, 31 (10) :785-797
[5]  
CLARKE A, 1996, TROUBLED HELIX SOCIA
[6]  
Clayton EW, 1997, J MED PHILOS, V22, P233
[7]  
Coopersmith S., 1967, ANTECEDENTS SELF-EST
[9]   An international survey of predictive genetic testing in children for adult onset conditions [J].
Duncan, RE ;
Savulescu, J ;
Gillam, L ;
Williamson, R ;
Delatycki, MB .
GENETICS IN MEDICINE, 2005, 7 (06) :390-396
[10]   Inappropriate genetic testing of children [J].
Fryer, A .
ARCHIVES OF DISEASE IN CHILDHOOD, 2000, 83 (04) :283-285