Predictors of quality of life in carers for people with a progressive neurological illness: a longitudinal study

被引:47
作者
O'Connor, Elodie J. [1 ]
McCabe, Marita P. [1 ]
机构
[1] Deakin Univ, Sch Psychol, Burwood, Vic 3125, Australia
关键词
Neurological illness; Carer; Quality of life; Psychosocial; Economic; Family caregiver; AMYOTROPHIC-LATERAL-SCLEROSIS; MULTIPLE-SCLEROSIS; NEGATIVE ADJUSTMENT; HUNTINGTONS-DISEASE; PARKINSONS-DISEASE; CAREGIVER BURDEN; SOCIAL SUPPORT; WHOQOL-BREF; HEALTH; FAMILY;
D O I
10.1007/s11136-010-9804-4
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
The aim of the present research was to determine the predictors of quality of life (QOL) among carers for people living with a chronic degenerative neurological illness, with comparisons of the differences in significant predictors of QOL between illness groups. Psychosocial and economic variables were examined among 192 carers for people living at home with motor neurone disease, Huntington's disease, multiple sclerosis, and Parkinson's, over a twelve-month period, to determine their contribution to the prediction of carer QOL. Mood was the only consistent predictor of carer QOL across groups; however, marital relationship satisfaction, social support satisfaction, income, and economic pressure significantly predicted carer QOL for at least one of the illness groups, in addition to mood. The findings highlight the importance of recognising the varying roles that psychosocial and economic variables play on the prediction of carer QOL within each of these illness groups.
引用
收藏
页码:703 / 711
页数:9
相关论文
共 50 条
[1]   Caregiver education in Parkinson's disease: formative evaluation of a standardized program in seven European countries [J].
A'Campo, L. E. I. ;
Spliethoff-Kamminga, N. G. A. ;
Macht, M. ;
Roos, R. A. C. .
QUALITY OF LIFE RESEARCH, 2010, 19 (01) :55-64
[2]   Quality of life among persons with multiple sclerosis and their caregivers [J].
Aronson, KJ .
NEUROLOGY, 1997, 48 (01) :74-80
[3]   Quality of life in patients with Parkinson's disease [J].
Behari, A ;
Srivastava, AK ;
Pandey, RM .
PARKINSONISM & RELATED DISORDERS, 2005, 11 (04) :221-226
[4]   A hereditary disorder in the family and the family life cycle: Huntington disease as a paradigm [J].
Brouwer-DudokdeWit, AC ;
Savenije, A ;
Zoeteweij, MW ;
Maat-Kievit, A ;
Tibben, A .
FAMILY PROCESS, 2002, 41 (04) :677-692
[5]   The burden of illness of cancer: Economic cost and quality of life [J].
Brown, ML ;
Lipscomb, J ;
Snyder, C .
ANNUAL REVIEW OF PUBLIC HEALTH, 2001, 22 :91-113
[6]   Assessment of caregiver burden in families of persons with multiple sclerosis [J].
Buhse, Marijean .
JOURNAL OF NEUROSCIENCE NURSING, 2008, 40 (01) :25-31
[7]   Assessing individual quality of life in amyotrophic lateral sclerosis [J].
Clarke, S ;
Hickey, A ;
O'Boyle, C ;
Hardiman, O .
QUALITY OF LIFE RESEARCH, 2001, 10 (02) :149-158
[8]   A FAMILY PROCESS MODEL OF ECONOMIC HARDSHIP AND ADJUSTMENT OF EARLY ADOLESCENT BOYS [J].
CONGER, RD ;
CONGER, KJ ;
ELDER, GH ;
LORENZ, FO ;
SIMONS, RL ;
WHITBECK, LB .
CHILD DEVELOPMENT, 1992, 63 (03) :526-541
[9]   SHORT-FORM OF THE PROFILE OF MOOD STATES (POMS-SF) - PSYCHOMETRIC INFORMATION [J].
CURRAN, SL ;
ANDRYKOWSKI, MA ;
STUDTS, JL .
PSYCHOLOGICAL ASSESSMENT, 1995, 7 (01) :80-83
[10]  
DUPONT S, 1996, SEXUAL MARITAL THERA, V11, P359, DOI DOI 10.1080/02674659608404450