Symptoms, Comorbidities, and Health Care in Advanced Chronic Obstructive Pulmonary Disease or Chronic Heart Failure

被引:144
作者
Janssen, Daisy J. A. [1 ,3 ]
Spruit, Martijn A. [1 ]
Uszko-Lencer, Nicole H. [1 ,4 ]
Schols, Jos M. G. A. [2 ]
Wouters, Emiel F. M. [1 ,5 ]
机构
[1] Ctr Expertise Chron Organ Failure, CIRO, Program Dev Ctr, NL-6085 NM Horn, Netherlands
[2] Maastricht Univ, Fac Hlth Med & Life Sci, Dept Gen Practice, CAPHRI, Maastricht, Netherlands
[3] Prote Thuis, Horn, Netherlands
[4] MUMC, Dept Cardiol, Maastricht, Netherlands
[5] MUMC, Dept Resp Med, Maastricht, Netherlands
关键词
SUSTAINED-RELEASE MORPHINE; QUALITY-OF-LIFE; PALLIATIVE CARE; ELDERLY-PATIENTS; PAIN INTENSITY; BREATHLESSNESS; BURDEN; MORTALITY; COPD; END;
D O I
10.1089/jpm.2010.0479
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Patients with advanced chronic obstructive pulmonary disease (COPD) or chronic heart failure (CHF) may experience significant symptom distress. For development of palliative care programs that adequately address symptoms of patients with COPD or CHF, it is necessary to know severity of symptom distress and to gain insight in comorbidities and current provision of health care. Objective of the present cross-sectional observational study was to assess severity of symptoms, presence of comorbidities, and current provision of health care in outpatients with advanced COPD or CHF. Methods: A total of 105 outpatients with clinically stable but advanced COPD (Global initiative for chronic Obstructive Lung Disease [GOLD] stage III or IV) and 80 patients with advanced CHF (New York Heart Association [NYHA] class III or IV) were assessed for demographics, clinical characteristics, self-reported comorbidities, and severity of symptoms using visual analogue scales. In addition, current health care and symptom-related interventions have been assessed. Results: Comorbidities were reported by 96.3% of the CHF patients and 61.9% of the COPD patients. Patients suffered from multiple symptoms, like dyspnea, fatigue, muscle weakness, coughing, low mood, sleeplessness, and frequent micturition. For most symptoms, only the minority of patients had received symptom-related treatment. Involvement of allied health care professionals was low. The majority of COPD and CHF patients had received home adaptation and medical aids. Conclusions: Patients with advanced COPD or CHF experience comorbidities and suffer from multiple symptoms, which are often under treated. Further development and implementation of palliative care programs, consisting of regular assessment of the patients' comorbidities and symptoms as well as the provision of patient-tailored interventions is needed.
引用
收藏
页码:735 / 743
页数:9
相关论文
共 41 条
[21]   Daily symptom burden in end-stage chronic organ failure: a systematic review [J].
Janssen, D. J. A. ;
Spruit, M. A. ;
Wouters, E. F. M. ;
Schols, J. M. G. A. .
PALLIATIVE MEDICINE, 2008, 22 (08) :938-948
[22]  
Janssen Daisy J A, 2010, Chron Respir Dis, V7, P147, DOI 10.1177/1479972310369285
[23]   Self-perceived symptoms and care needs of patients with severe to very severe chronic obstructive pulmonary disease, congestive heart failure or chronic renal failure and its consequences for their closest relatives: The research protocol [J].
Janssen D.J.A. ;
Wouters E.F.M. ;
Schols J.M.G.A. ;
Spruit M.A. .
BMC Palliative Care, 7 (1)
[24]  
JANSSEN DJ, 2010, CHEST IN PRESS
[25]   THE MEASUREMENT OF CLINICAL PAIN INTENSITY - A COMPARISON OF 6 METHODS [J].
JENSEN, MP ;
KAROLY, P ;
BRAVER, S .
PAIN, 1986, 27 (01) :117-126
[26]   Morphine for the relief of breathlessness in patients with chronic heart failure - a pilot study [J].
Johnson, MJ ;
McDonagh, TA ;
Harkness, A ;
McKay, SE ;
Dargie, HJ .
EUROPEAN JOURNAL OF HEART FAILURE, 2002, 4 (06) :753-756
[27]   Symptom Assessment in Palliative Medicine: Complexities and Challenges [J].
Kirkova, Jordanka ;
Walsh, Declan ;
Russel, Mitchell ;
Hauser, Katherine ;
Lasheen, Wael .
AMERICAN JOURNAL OF HOSPICE & PALLIATIVE MEDICINE, 2010, 27 (01) :75-83
[28]  
Lacasse Y, 2001, J Cardiopulm Rehabil, V21, P80, DOI 10.1097/00008483-200103000-00004
[29]   A clinical practice guideline for physiotherapists treating patients with chronic obstructive pulmonary disease based on a systematic review of available evidence [J].
Langer, D. ;
Hendriks, E. J. M. ;
Burtin, C. ;
Probst, V. ;
van der Schans, C. P. ;
Paterson, W. J. ;
Verhoef-de Wijk, M. C. E. ;
Straver, R. V. M. ;
Klaassen, M. ;
Troosters, T. ;
Decramer, M. ;
Ninane, V. ;
Delguste, P. ;
Muris, J. ;
Gosselink, R. .
CLINICAL REHABILITATION, 2009, 23 (05) :445-462
[30]   An official American Thoracic Society clinical policy statement: Palliative care for patients with respiratory diseases and critical illnesses [J].
Lanken, Paul N. ;
Terry, Peter B. ;
DeLisser, Horace M. ;
Fahy, Bonnie F. ;
Hansen-Flaschen, John ;
Heffner, John E. ;
Levy, Mitchell ;
Mularski, Richard A. ;
Osborne, Molly L. ;
Prendergast, Thomas J. ;
Rocker, Graeme ;
Sibbald, William J. ;
Wilfond, Benjamin ;
Yankaskas, James R. .
AMERICAN JOURNAL OF RESPIRATORY AND CRITICAL CARE MEDICINE, 2008, 177 (08) :912-927