Symptoms, Comorbidities, and Health Care in Advanced Chronic Obstructive Pulmonary Disease or Chronic Heart Failure

被引:144
作者
Janssen, Daisy J. A. [1 ,3 ]
Spruit, Martijn A. [1 ]
Uszko-Lencer, Nicole H. [1 ,4 ]
Schols, Jos M. G. A. [2 ]
Wouters, Emiel F. M. [1 ,5 ]
机构
[1] Ctr Expertise Chron Organ Failure, CIRO, Program Dev Ctr, NL-6085 NM Horn, Netherlands
[2] Maastricht Univ, Fac Hlth Med & Life Sci, Dept Gen Practice, CAPHRI, Maastricht, Netherlands
[3] Prote Thuis, Horn, Netherlands
[4] MUMC, Dept Cardiol, Maastricht, Netherlands
[5] MUMC, Dept Resp Med, Maastricht, Netherlands
关键词
SUSTAINED-RELEASE MORPHINE; QUALITY-OF-LIFE; PALLIATIVE CARE; ELDERLY-PATIENTS; PAIN INTENSITY; BREATHLESSNESS; BURDEN; MORTALITY; COPD; END;
D O I
10.1089/jpm.2010.0479
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Patients with advanced chronic obstructive pulmonary disease (COPD) or chronic heart failure (CHF) may experience significant symptom distress. For development of palliative care programs that adequately address symptoms of patients with COPD or CHF, it is necessary to know severity of symptom distress and to gain insight in comorbidities and current provision of health care. Objective of the present cross-sectional observational study was to assess severity of symptoms, presence of comorbidities, and current provision of health care in outpatients with advanced COPD or CHF. Methods: A total of 105 outpatients with clinically stable but advanced COPD (Global initiative for chronic Obstructive Lung Disease [GOLD] stage III or IV) and 80 patients with advanced CHF (New York Heart Association [NYHA] class III or IV) were assessed for demographics, clinical characteristics, self-reported comorbidities, and severity of symptoms using visual analogue scales. In addition, current health care and symptom-related interventions have been assessed. Results: Comorbidities were reported by 96.3% of the CHF patients and 61.9% of the COPD patients. Patients suffered from multiple symptoms, like dyspnea, fatigue, muscle weakness, coughing, low mood, sleeplessness, and frequent micturition. For most symptoms, only the minority of patients had received symptom-related treatment. Involvement of allied health care professionals was low. The majority of COPD and CHF patients had received home adaptation and medical aids. Conclusions: Patients with advanced COPD or CHF experience comorbidities and suffer from multiple symptoms, which are often under treated. Further development and implementation of palliative care programs, consisting of regular assessment of the patients' comorbidities and symptoms as well as the provision of patient-tailored interventions is needed.
引用
收藏
页码:735 / 743
页数:9
相关论文
共 41 条
[1]   Randomised, double blind, placebo controlled crossover trial of sustained release morphine for the management of refractory dyspnoea [J].
Abernethy, AP ;
Currow, DC ;
Frith, P ;
Fazekas, BS ;
McHugh, A ;
Bui, C .
BRITISH MEDICAL JOURNAL, 2003, 327 (7414) :523-526
[2]   STATISTICAL GUIDELINES FOR CONTRIBUTORS TO MEDICAL JOURNALS [J].
ALTMAN, DG ;
GORE, SM ;
GARDNER, MJ ;
POCOCK, SJ .
BRITISH MEDICAL JOURNAL, 1983, 286 (6376) :1489-1493
[4]   Differences in health care utilization at the end of life among patients with chronic obstructive pulmonary disease and patients with lung cancer [J].
Au, DH ;
Udris, EM ;
Fihn, SD ;
McDonell, MB ;
Curtis, JR .
ARCHIVES OF INTERNAL MEDICINE, 2006, 166 (03) :326-331
[5]   Recruiting older people into a large, community-based study of heart failure [J].
Barnes, Sarah ;
Gott, Merryn ;
Payne, Sheila ;
Parker, Chris ;
Seamark, David ;
Gariballa, Salah ;
Small, Neil .
CHRONIC ILLNESS, 2005, 1 (04) :321-329
[6]   Understanding Breathlessness: Cross-Sectional Comparison of Symptom Burden and Palliative Care Needs in Chronic Obstructive Pulmonary Disease and Cancer [J].
Bausewein, Claudia ;
Booth, Sara ;
Gysels, Marjolein ;
Kuehnbach, Robert ;
Haberland, Birgit ;
Higginson, Irene J. .
JOURNAL OF PALLIATIVE MEDICINE, 2010, 13 (09) :1109-1118
[7]   Symptom distress and quality of life in patients with advanced congestive heart failure [J].
Blinderman, Craig D. ;
Hornel, Peter ;
Billings, J. Andrew ;
Portenoy, Russell K. ;
Tennstedt, Sharon L. .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2008, 35 (06) :594-603
[8]   Symptom Distress and Quality of Life in Patients with Advanced Chronic Obstructive Pulmonary Disease [J].
Blinderman, Craig D. ;
Homel, Peter ;
Billings, J. Andrew ;
Tennstedt, Sharon ;
Portenoy, Russell K. .
JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2009, 38 (01) :115-123
[9]   Dietary advice for reducing cardiovascular risk [J].
Brunner, E. J. ;
Thorogood, M. ;
Rees, K. ;
Hewitt, G. .
COCHRANE DATABASE OF SYSTEMATIC REVIEWS, 2005, (04)
[10]   International variation in the prevalence of COPD (The BOLD Study): a population-based prevalence study [J].
Buist, A. Sonia ;
McBurnie, Mary Ann ;
Vollmer, William M. ;
Gillespie, Suzanne ;
Burney, Peter ;
Mannino, David M. ;
Menezes, Ana M. B. ;
Sullivan, Sean D. ;
Lee, Todd A. ;
Weiss, Kevin B. ;
Jensen, Robert L. ;
Marks, Guy B. ;
Gulsvik, Amund ;
Nizankowska-Mogilnicka, Ewa .
LANCET, 2007, 370 (9589) :741-750