Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life

被引:53
作者
Atherton, Gray [1 ]
Edisbury, Emma [1 ]
Piovesan, Andrea [2 ]
Cross, Liam [1 ]
机构
[1] Edge Hill Univ, Dept Psychol, St Helens Rd, Ormskirk L39 4QP, Lancs, England
[2] Univ Iuav Venezia, I-30135 Venice, VE, Italy
关键词
Autism; Adulthood; Mental health; Autism quotient; Quality of life; Mixed methods; MALE BRAIN THEORY; SPECTRUM DISORDER; GENDER-DIFFERENCES; COLLEGE-STUDENTS; SOCIAL SUPPORT; ADULTS; PERCEPTIONS; EXPERIENCES; CHILDREN; IDENTITY;
D O I
10.1007/s10803-021-05235-x
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults.
引用
收藏
页码:3639 / 3654
页数:16
相关论文
共 83 条
[31]   Aging in Autism Spectrum Disorders: A Mini-Review [J].
Happe, Francesca ;
Charlton, Rebecca A. .
GERONTOLOGY, 2012, 58 (01) :70-78
[32]   Development of the World Health Organization WHOQOL-BREF quality of life assessment [J].
Harper, A ;
Power, M .
PSYCHOLOGICAL MEDICINE, 1998, 28 (03) :551-558
[33]   Emotional expressivity in men and women: Stereotypes and self-perceptions [J].
Hess, U ;
Senecal, S ;
Kirouac, G ;
Herrera, P ;
Philippot, P ;
Kleck, RE .
COGNITION & EMOTION, 2000, 14 (05) :609-642
[34]   Investigating Bullying as a Predictor of Suicidality in a Clinical Sample of Adolescents with Autism Spectrum Disorder [J].
Holden, Rachel ;
Mueller, Joanne ;
McGowan, John ;
Sanyal, Jyoti ;
Kikoler, Maxim ;
Simonoff, Emily ;
Velupillai, Sumithra ;
Downs, Johnny .
AUTISM RESEARCH, 2020, 13 (06) :988-997
[35]   Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports [J].
Hong, Jinkuk ;
Bishop-Fitzpatrick, Lauren ;
Smith, Leann E. ;
Greenberg, Jan S. ;
Mailick, Marsha R. .
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2016, 46 (04) :1368-1378
[36]   Cognitive and language skills in adults with autism: a 40-year follow-up [J].
Howlin, Patricia ;
Savage, Sarah ;
Moss, Philippa ;
Tempier, Althea ;
Rutter, Michael .
JOURNAL OF CHILD PSYCHOLOGY AND PSYCHIATRY, 2014, 55 (01) :49-58
[37]   Diagnosis of autism in adulthood: A scoping review [J].
Huang, Yunhe ;
Arnold, Samuel R. C. ;
Foley, Kitty-Rose ;
Trollor, Julian N. .
AUTISM, 2020, 24 (06) :1311-1327
[38]   The Female Autism Phenotype and Camouflaging: a Narrative Review [J].
Hull, Laura ;
Petrides, K. V. ;
Mandy, William .
REVIEW JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2020, 7 (04) :306-317
[39]   "Putting on My Best Normal": Social Camouflaging in Adults with Autism Spectrum Conditions [J].
Hull, Laura ;
Petrides, K. V. ;
Allison, Carrie ;
Smith, Paula ;
Baron-Cohen, Simon ;
Lai, Meng-Chuan ;
Mandy, William .
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS, 2017, 47 (08) :2519-2534
[40]   Examining social competence, self-perception, quality of life, and internalizing and externalizing symptoms in adolescent females with and without autism spectrum disorder: a quantitative design including between-groups and correlational analyses [J].
Jamison, T. Rene ;
Schuttler, Jessica Oeth .
MOLECULAR AUTISM, 2015, 6