共 83 条
Autism Through the Ages: A Mixed Methods Approach to Understanding How Age and Age of Diagnosis Affect Quality of Life
被引:53
作者:

Atherton, Gray
论文数: 0 引用数: 0
h-index: 0
机构:
Edge Hill Univ, Dept Psychol, St Helens Rd, Ormskirk L39 4QP, Lancs, England Edge Hill Univ, Dept Psychol, St Helens Rd, Ormskirk L39 4QP, Lancs, England

Edisbury, Emma
论文数: 0 引用数: 0
h-index: 0
机构:
Edge Hill Univ, Dept Psychol, St Helens Rd, Ormskirk L39 4QP, Lancs, England Edge Hill Univ, Dept Psychol, St Helens Rd, Ormskirk L39 4QP, Lancs, England

Piovesan, Andrea
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Iuav Venezia, I-30135 Venice, VE, Italy Edge Hill Univ, Dept Psychol, St Helens Rd, Ormskirk L39 4QP, Lancs, England

Cross, Liam
论文数: 0 引用数: 0
h-index: 0
机构:
Edge Hill Univ, Dept Psychol, St Helens Rd, Ormskirk L39 4QP, Lancs, England Edge Hill Univ, Dept Psychol, St Helens Rd, Ormskirk L39 4QP, Lancs, England
机构:
[1] Edge Hill Univ, Dept Psychol, St Helens Rd, Ormskirk L39 4QP, Lancs, England
[2] Univ Iuav Venezia, I-30135 Venice, VE, Italy
关键词:
Autism;
Adulthood;
Mental health;
Autism quotient;
Quality of life;
Mixed methods;
MALE BRAIN THEORY;
SPECTRUM DISORDER;
GENDER-DIFFERENCES;
COLLEGE-STUDENTS;
SOCIAL SUPPORT;
ADULTS;
PERCEPTIONS;
EXPERIENCES;
CHILDREN;
IDENTITY;
D O I:
10.1007/s10803-021-05235-x
中图分类号:
B844 [发展心理学(人类心理学)];
学科分类号:
040202 ;
摘要:
A significant proportion of autistic adults today were not diagnosed until later in life, a group referred to as the 'lost generation,' which may affect mental health. In Study 1 we explored quality of life and autistic trait levels in 420 autistic and TD adults, and in Study 2 we explored the experiences of 8 autistic adults diagnosed as adults. We found that autistic adults had lower quality of life outcomes and higher autistic trait levels which related to age of diagnosis, and qualitative findings indicated that while adults were empowered by their new diagnosis, they still require specialized supports. Our findings are discussed, emphasizing future directions and implications for the current care system in place for autistic adults.
引用
收藏
页码:3639 / 3654
页数:16
相关论文
共 83 条
[31]
Aging in Autism Spectrum Disorders: A Mini-Review
[J].
Happe, Francesca
;
Charlton, Rebecca A.
.
GERONTOLOGY,
2012, 58 (01)
:70-78

Happe, Francesca
论文数: 0 引用数: 0
h-index: 0
机构:
Kings Coll London, Inst Psychiat, MRC Social Genet & Dev Psychiat Ctr, London SE5 8AF, England Kings Coll London, Inst Psychiat, MRC Social Genet & Dev Psychiat Ctr, London SE5 8AF, England

Charlton, Rebecca A.
论文数: 0 引用数: 0
h-index: 0
机构:
Univ London, London, England
Univ Illinois, Dept Psychiat, Chicago, IL 60612 USA Kings Coll London, Inst Psychiat, MRC Social Genet & Dev Psychiat Ctr, London SE5 8AF, England
[32]
Development of the World Health Organization WHOQOL-BREF quality of life assessment
[J].
Harper, A
;
Power, M
.
PSYCHOLOGICAL MEDICINE,
1998, 28 (03)
:551-558

Harper, A
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Edinburgh, Royal Edinburgh Hosp, Dept Psychiat, Edinburgh EH10 5HF, Midlothian, Scotland Univ Edinburgh, Royal Edinburgh Hosp, Dept Psychiat, Edinburgh EH10 5HF, Midlothian, Scotland

论文数: 引用数:
h-index:
机构:
[33]
Emotional expressivity in men and women: Stereotypes and self-perceptions
[J].
Hess, U
;
Senecal, S
;
Kirouac, G
;
Herrera, P
;
Philippot, P
;
Kleck, RE
.
COGNITION & EMOTION,
2000, 14 (05)
:609-642

Hess, U
论文数: 0 引用数: 0
h-index: 0
机构: Univ Quebec, Dept Psychol, Montreal, PQ H3C 3P8, Canada

Senecal, S
论文数: 0 引用数: 0
h-index: 0
机构: Univ Quebec, Dept Psychol, Montreal, PQ H3C 3P8, Canada

Kirouac, G
论文数: 0 引用数: 0
h-index: 0
机构: Univ Quebec, Dept Psychol, Montreal, PQ H3C 3P8, Canada

Herrera, P
论文数: 0 引用数: 0
h-index: 0
机构: Univ Quebec, Dept Psychol, Montreal, PQ H3C 3P8, Canada

Philippot, P
论文数: 0 引用数: 0
h-index: 0
机构: Univ Quebec, Dept Psychol, Montreal, PQ H3C 3P8, Canada

Kleck, RE
论文数: 0 引用数: 0
h-index: 0
机构: Univ Quebec, Dept Psychol, Montreal, PQ H3C 3P8, Canada
[34]
Investigating Bullying as a Predictor of Suicidality in a Clinical Sample of Adolescents with Autism Spectrum Disorder
[J].
Holden, Rachel
;
Mueller, Joanne
;
McGowan, John
;
Sanyal, Jyoti
;
Kikoler, Maxim
;
Simonoff, Emily
;
Velupillai, Sumithra
;
Downs, Johnny
.
AUTISM RESEARCH,
2020, 13 (06)
:988-997

Holden, Rachel
论文数: 0 引用数: 0
h-index: 0
机构:
NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England
Canterbury Christ Church Univ, Canterbury, Kent, England NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England

Mueller, Joanne
论文数: 0 引用数: 0
h-index: 0
机构:
NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England
Kings Coll London, Inst Psychiat Psychol & Neurosci, Dept Child & Adolescent Psychiat, Box P084,16 De Crespigny Pk, London SE5 8AF, England NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England

McGowan, John
论文数: 0 引用数: 0
h-index: 0
机构:
Canterbury Christ Church Univ, Canterbury, Kent, England NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England

Sanyal, Jyoti
论文数: 0 引用数: 0
h-index: 0
机构:
NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England

Kikoler, Maxim
论文数: 0 引用数: 0
h-index: 0
机构:
Canterbury Christ Church Univ, Canterbury, Kent, England NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England

Simonoff, Emily
论文数: 0 引用数: 0
h-index: 0
机构:
NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England
Kings Coll London, Inst Psychiat Psychol & Neurosci, Dept Child & Adolescent Psychiat, Box P084,16 De Crespigny Pk, London SE5 8AF, England NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England

Velupillai, Sumithra
论文数: 0 引用数: 0
h-index: 0
机构:
NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England
Kings Coll London, Inst Psychiat Psychol & Neurosci, Dept Psychol Med, London, England NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England

Downs, Johnny
论文数: 0 引用数: 0
h-index: 0
机构:
NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England
Kings Coll London, Inst Psychiat Psychol & Neurosci, Dept Child & Adolescent Psychiat, Box P084,16 De Crespigny Pk, London SE5 8AF, England NIHR South London & Maudsley NHS Fdn Trust, Biomed Res Ctr, London, England
[35]
Factors Associated with Subjective Quality of Life of Adults with Autism Spectrum Disorder: Self-Report Versus Maternal Reports
[J].
Hong, Jinkuk
;
Bishop-Fitzpatrick, Lauren
;
Smith, Leann E.
;
Greenberg, Jan S.
;
Mailick, Marsha R.
.
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS,
2016, 46 (04)
:1368-1378

Hong, Jinkuk
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Wisconsin, Waisman Ctr, 1500 Highland Ave, Madison, WI 53705 USA Univ Wisconsin, Waisman Ctr, 1500 Highland Ave, Madison, WI 53705 USA

Bishop-Fitzpatrick, Lauren
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Wisconsin, Waisman Ctr, 1500 Highland Ave, Madison, WI 53705 USA Univ Wisconsin, Waisman Ctr, 1500 Highland Ave, Madison, WI 53705 USA

Smith, Leann E.
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Wisconsin, Waisman Ctr, 1500 Highland Ave, Madison, WI 53705 USA Univ Wisconsin, Waisman Ctr, 1500 Highland Ave, Madison, WI 53705 USA

Greenberg, Jan S.
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Wisconsin, Waisman Ctr, 1500 Highland Ave, Madison, WI 53705 USA Univ Wisconsin, Waisman Ctr, 1500 Highland Ave, Madison, WI 53705 USA

Mailick, Marsha R.
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Wisconsin, Waisman Ctr, 1500 Highland Ave, Madison, WI 53705 USA Univ Wisconsin, Waisman Ctr, 1500 Highland Ave, Madison, WI 53705 USA
[36]
Cognitive and language skills in adults with autism: a 40-year follow-up
[J].
Howlin, Patricia
;
Savage, Sarah
;
Moss, Philippa
;
Tempier, Althea
;
Rutter, Michael
.
JOURNAL OF CHILD PSYCHOLOGY AND PSYCHIATRY,
2014, 55 (01)
:49-58

Howlin, Patricia
论文数: 0 引用数: 0
h-index: 0
机构:
Inst Psychiat, Dept Psychol, London, England
Univ Sydney, Fac Hlth Sci, Sydney, NSW 2006, Australia Inst Psychiat, Dept Psychol, London, England

Savage, Sarah
论文数: 0 引用数: 0
h-index: 0
机构:
Inst Psychiat, Dept Psychol, London, England Inst Psychiat, Dept Psychol, London, England

Moss, Philippa
论文数: 0 引用数: 0
h-index: 0
机构:
Inst Psychiat, Dept Psychol, London, England Inst Psychiat, Dept Psychol, London, England

Tempier, Althea
论文数: 0 引用数: 0
h-index: 0
机构:
Inst Psychiat, Dept Psychol, London, England Inst Psychiat, Dept Psychol, London, England

Rutter, Michael
论文数: 0 引用数: 0
h-index: 0
机构:
Inst Psychiat, MRC Social Genet & Dev Psychiat Ctr, London, England Inst Psychiat, Dept Psychol, London, England
[37]
Diagnosis of autism in adulthood: A scoping review
[J].
Huang, Yunhe
;
Arnold, Samuel R. C.
;
Foley, Kitty-Rose
;
Trollor, Julian N.
.
AUTISM,
2020, 24 (06)
:1311-1327

Huang, Yunhe
论文数: 0 引用数: 0
h-index: 0
机构:
Univ New South Wales, Sydney, NSW, Australia
Cooperat Res Ctr Living Autism Autism CRC, St Lucia, Qld, Australia Univ New South Wales, Sydney, NSW, Australia

Arnold, Samuel R. C.
论文数: 0 引用数: 0
h-index: 0
机构:
Univ New South Wales, Sydney, NSW, Australia
Cooperat Res Ctr Living Autism Autism CRC, St Lucia, Qld, Australia Univ New South Wales, Sydney, NSW, Australia

Foley, Kitty-Rose
论文数: 0 引用数: 0
h-index: 0
机构:
Univ New South Wales, Sydney, NSW, Australia
Southern Cross Univ, Lismore, NSW, Australia Univ New South Wales, Sydney, NSW, Australia

Trollor, Julian N.
论文数: 0 引用数: 0
h-index: 0
机构:
Univ New South Wales, Sydney, NSW, Australia
Cooperat Res Ctr Living Autism Autism CRC, St Lucia, Qld, Australia Univ New South Wales, Sydney, NSW, Australia
[38]
The Female Autism Phenotype and Camouflaging: a Narrative Review
[J].
Hull, Laura
;
Petrides, K. V.
;
Mandy, William
.
REVIEW JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS,
2020, 7 (04)
:306-317

Hull, Laura
论文数: 0 引用数: 0
h-index: 0
机构:
UCL, Res Dept Clin Educ & Hlth Psychol, London, England
UCL, Dept Psychol, 26 Bedford Way, London WC1H 0AP, England UCL, Res Dept Clin Educ & Hlth Psychol, London, England

Petrides, K. V.
论文数: 0 引用数: 0
h-index: 0
机构:
UCL, London Psychometr Lab, London, England UCL, Res Dept Clin Educ & Hlth Psychol, London, England

Mandy, William
论文数: 0 引用数: 0
h-index: 0
机构:
UCL, Res Dept Clin Educ & Hlth Psychol, London, England UCL, Res Dept Clin Educ & Hlth Psychol, London, England
[39]
"Putting on My Best Normal": Social Camouflaging in Adults with Autism Spectrum Conditions
[J].
Hull, Laura
;
Petrides, K. V.
;
Allison, Carrie
;
Smith, Paula
;
Baron-Cohen, Simon
;
Lai, Meng-Chuan
;
Mandy, William
.
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS,
2017, 47 (08)
:2519-2534

Hull, Laura
论文数: 0 引用数: 0
h-index: 0
机构:
UCL, Res Dept Clin Educ & Hlth Psychol, London, England
UCL, Dept Psychol, 26 Bedford Way, London WC1H 0AP, England UCL, Res Dept Clin Educ & Hlth Psychol, London, England

Petrides, K. V.
论文数: 0 引用数: 0
h-index: 0
机构:
UCL, London Psychometr Lab, London, England UCL, Res Dept Clin Educ & Hlth Psychol, London, England

Allison, Carrie
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Cambridge, Dept Psychiat, Autism Res Ctr, Cambridge, England UCL, Res Dept Clin Educ & Hlth Psychol, London, England

Smith, Paula
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Cambridge, Dept Psychiat, Autism Res Ctr, Cambridge, England UCL, Res Dept Clin Educ & Hlth Psychol, London, England

Baron-Cohen, Simon
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Cambridge, Dept Psychiat, Autism Res Ctr, Cambridge, England UCL, Res Dept Clin Educ & Hlth Psychol, London, England

Lai, Meng-Chuan
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Cambridge, Dept Psychiat, Autism Res Ctr, Cambridge, England
Univ Toronto, Ctr Addict & Mental Hlth, Child & Youth Mental Hlth Collaborat, Toronto, ON, Canada
Univ Toronto, Hosp Sick Children, Dept Psychiat, Toronto, ON, Canada
Natl Taiwan Univ Hosp, Dept Psychiat, Taipei, Taiwan
Coll Med, Taipei, Taiwan UCL, Res Dept Clin Educ & Hlth Psychol, London, England

Mandy, William
论文数: 0 引用数: 0
h-index: 0
机构:
UCL, Res Dept Clin Educ & Hlth Psychol, London, England UCL, Res Dept Clin Educ & Hlth Psychol, London, England
[40]
Examining social competence, self-perception, quality of life, and internalizing and externalizing symptoms in adolescent females with and without autism spectrum disorder: a quantitative design including between-groups and correlational analyses
[J].
Jamison, T. Rene
;
Schuttler, Jessica Oeth
.
MOLECULAR AUTISM,
2015, 6

Jamison, T. Rene
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Kansas, Med Ctr, Ctr Child Hlth & Dev, Kansas City, KS 66160 USA Univ Kansas, Med Ctr, Ctr Child Hlth & Dev, Kansas City, KS 66160 USA

Schuttler, Jessica Oeth
论文数: 0 引用数: 0
h-index: 0
机构:
Univ Kansas, Med Ctr, Ctr Child Hlth & Dev, Kansas City, KS 66160 USA Univ Kansas, Med Ctr, Ctr Child Hlth & Dev, Kansas City, KS 66160 USA