Spirituality in Primary Palliative Care and Beyond: A 20-Year Longitudinal Qualitative Study of Interacting Factors Impacting Physicians' Spiritual Care Provision Over Time

被引:8
作者
Anandarajah, Gowri [1 ,2 ]
Roseman, Janet [3 ]
Mennillo, Leela G. [4 ]
Kelley, Brendan [1 ]
机构
[1] Brown Univ, Warren Alpert Med Sch, 222 Richmond St, Providence, RI 02912 USA
[2] Hope Hosp & Palliat Care Rhode Isl, Providence, RI USA
[3] Nova Southeastern Coll Osteopath Med, Ft Lauderdale, FL USA
[4] Coll Holy Cross, Worcester, MA USA
关键词
Spiritual care; primary palliative care; end-of-life; palliative care; primary care physicians; ADDRESSING SPIRITUALITY; DISCUSSING RELIGION; ADVANCED CANCER; LIFE; END; BELIEFS; SCIENCE; DOCTORS; FAMILY; STATE;
D O I
10.1016/j.jpainsymman.2021.05.013
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Context. Spiritual care (SC) is central to palliative care. However, a mismatch between patients' desire for SC and physicians' SC provision remains. The shortage of specialty-trained palliative physicians, necessitates that all physicians provide primary palliative care, including SC. Although several quantitative studies explore physicians' barriers to SC, few qualitative studies and no longitudinal studies exist. Objective. To gain in-depth understanding of factors influencing physicians' ability to provide SC over time. Methods. A 20-year longitudinal, individual interview study. In study year-1, we interviewed all residents in a USA primary care residency (full study-group) regarding SC beliefs, experiences and skills. The longitudinal study-group (PGY1 subgroup) was interviewed again in study-years 3, 11, and 20. Interviews were audio-recorded and transcribed. Four researchers analyzed transcripts using a grounded theory approach. IRB approval was obtained. Results. We analyzed 66 interviews from 34 physicians. Physicians had diverse personal spiritual beliefs. Seven themes emerged from both groups (response rate 89%) : patients' needs; practice setting; beliefs regarding physician's role; personal spiritual beliefs; SC training; life experiences (professional, personal); self-care and reflection. Longitudinal interviews revealed thematic evolution and interactions over 20-years: patients' needs and physicians' belief in whole-person care remained primary motivators; cross-cultural SC communication training diminished impact of personal spiritual beliefs and worries; life experiences enhanced SC skills; work environment helped or hindered SC provision; and spiritual self-care/reflection fostered patient-centered, compassionate SC. Conclusion. Facilitating SC provision by nonpalliative care specialists is complex and may require both individual and systems level interventions fostering motivation, SC skill development, and supportive work environments. (C) 2021 American Academy of Hospice and Palliative Medicine. Published by Elsevier Inc. All rights reserved.
引用
收藏
页码:1216 / 1228
页数:13
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