Staffs' documentation of participation for adults with profound intellectual disability or profound intellectual and multiple disabilities

被引:13
作者
Talman, Lena [1 ]
Gustafsson, Christine [1 ]
Stier, Jonas [2 ]
Wilder, Jenny [3 ]
机构
[1] Malardalen Univ, Sch Hlth Care & Social Welf, Eskilstuna, Sweden
[2] Malardalen Univ, Sch Hlth Care & Social Welf, Vasteras, Sweden
[3] Malardalen Univ, Sch Educ Culture & Commun, Vasteras, Sweden
关键词
Everyday life; ICF; implementation plan; participation; profound intellectual disability; profound intellectual and multiple disabilities; QUALITY-OF-LIFE; INTERNATIONAL CLASSIFICATION; COMMUNITY PARTICIPATION; ACTIVE PARTICIPATION; GROUP HOMES; PEOPLE; HEALTH; ICF; ATTITUDES; SERVICES;
D O I
10.1080/09638288.2017.1340979
中图分类号
R49 [康复医学];
学科分类号
100215 ;
摘要
Purpose: This study investigated what areas of International Classification of Functioning, Disability and Health were documented in implementation plans for adults with profound intellectual disability or profound intellectual and multiple disabilities with focus on participation. Methods: A document analysis of 17 implementation plans was performed and International Classification of Functioning, Disability and Health was used as an analytic tool. Results: One hundred and sixty-three different codes were identified, especially in the components Activities and participation and Environmental factors. Participation was most frequently coded in the chapters Community, social and civic life and Self-care. Overall, the results showed that focus in the implementation plans concerned Self-care and Community, social and civic life. The other life areas in Activities and participation were seldom, or not at all, documented. Conclusions: A deeper focus on participation in the implementation plans and all life areas in the component Activities and participation is needed. It is important that the documentation clearly shows what the adult wants, wishes, and likes in everyday life. It is also important to ensure that the job description for staff contains both life areas and individual preferences so that staff have the possibility to work to fulfill social and individual participation for the target group.
引用
收藏
页码:2527 / 2537
页数:11
相关论文
共 38 条
[1]  
Abebrese J, 2014, We need to back that dialogue with some action: programme and practice of decent work in Ghana
[2]  
ADOLFSSON M, 2011, THESIS
[3]  
[Anonymous], 2004, ATT VARA SARKLASS DE
[4]   Quality of Life and Quality of Support for People with Severe Intellectual Disability and Complex Needs [J].
Beadle-Brown, J. ;
Leigh, J. ;
Whelton, B. ;
Richardson, L. ;
Beecham, J. ;
Baumker, T. ;
Bradshaw, J. .
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2016, 29 (05) :409-421
[5]   The effects of response cards on active participation and social behavior of students with moderate and severe disabilities [J].
Berrong, Amy Ketterer ;
Schuster, John W. ;
Morse, Timothy E. ;
Collins, Belva C. .
JOURNAL OF DEVELOPMENTAL AND PHYSICAL DISABILITIES, 2007, 19 (03) :187-199
[6]   Models of disablement, universalism and the international classification of impairments, disabilities and handicaps [J].
Bickenbach, JE ;
Chatterji, S ;
Badley, EM ;
Üstün, TB .
SOCIAL SCIENCE & MEDICINE, 1999, 48 (09) :1173-1187
[7]   'It's pretty hard with our ones, they can't talk, the more able bodied can participate': staff attitudes about the applicability of disability policies to people with severe and profound intellectual disabilities [J].
Bigby, C. ;
Clement, T. ;
Mansell, J. ;
Beadle-Brown, J. .
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2009, 53 :363-376
[8]   Mediating Community Participation: Practice of Support Workers in Initiating, Facilitating or Disrupting Encounters between People with and without Intellectual Disability [J].
Bigby, Christine ;
Wiesel, Ilan .
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2015, 28 (04) :307-318
[9]   'We Just Call Them People': Positive Regard as a Dimension of Culture in Group Homes for People with Severe Intellectual Disability [J].
Bigby, Christine ;
Knox, Marie ;
Beadle-Brown, Julie ;
Clement, Tim .
JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2015, 28 (04) :283-295
[10]   Uncovering Dimensions of Culture in Underperforming Group Homes for People with Severe Intellectual Disability [J].
Bigby, Christine ;
Knox, Marie ;
Beadle-Brown, Julie ;
Clement, Tim ;
Mansell, Jim .
INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, 2012, 50 (06) :452-467