A narrative review of current evidence supporting the implementation of electronic patient-reported outcome measures in the management of chronic diseases

被引:41
作者
Aiyegbusi, Olalekan Lee [1 ,2 ]
Nair, Devika [3 ,4 ]
Peipert, John Devin [5 ]
Schick-Makaroff, Kara [6 ]
Mucsi, Istvan [7 ,8 ]
机构
[1] Univ Birmingham, Inst Appl Hlth Res, Ctr Patient Reported Outcomes Res, Birmingham B15 2TT, W Midlands, England
[2] UK Natl Inst Hlth Res NIHR, Appl Res Ctr, West Midlands, England
[3] Vanderbilt Univ, Med Ctr, Div Nephrol & Hypertens, Nashville, TN USA
[4] Vanderbilt OBrien Ctr Kidney Dis, Nashville, TN USA
[5] Northwestern Univ, Feinberg Sch Med, Dept Med Social Sci, Chicago, IL 60611 USA
[6] Univ Alberta, Fac Nursing, Edmonton, AB, Canada
[7] Univ Hlth Network, Transplant Program, Toronto, ON, Canada
[8] Univ Toronto, Dept Med, Div Nephrol, Toronto, ON, Canada
基金
加拿大健康研究院; “创新英国”项目;
关键词
Patient-reported outcomes; PROs; Quality of life; Outcome assessment; Electronic patient-reported outcomes; ePROs; ePROM systems; Digital health; Chronic diseases; Symptom monitoring; QUALITY-OF-LIFE; SYMPTOM MONITORING INTERVENTION; HEALTH-CARE PROFESSIONALS; COST-EFFECTIVENESS; FOLLOW-UP; CANCER; TRIAL; CHEMOTHERAPY; CLINICIAN; STRATEGY;
D O I
10.1177/20406223211015958
中图分类号
R9 [药学];
学科分类号
1007 ;
摘要
An application of telemedicine of growing interest and relevance is the use of personal computers and mobile devices to collect patient-reported outcomes (PROs). PROs are self-reports of patients' health status without interpretation by anyone else. The tools developed to assess PROs are known as patient-reported outcomes measures (PROMs). The technological innovations that have led to an increased ownership of electronic devices have also facilitated the development of electronic PROMs (ePROMs). ePROMs are a conduit for telemedicine in the care of patients with chronic diseases. Various studies have demonstrated that the use of ePROMs in routine clinical practice is both acceptable and feasible with patients increasingly expressing a preference for an electronic mode of administration. There is increasing evidence that the use of electronic patient-reported outcome (ePROMs) could have significant impacts on outcomes valued by patients, healthcare providers and researchers. Whilst the development and implementation of these systems may be initially costly and resource-intensive, patient preferences and existing evidence to support their implementation suggests the need for continued research prioritisation in this area. This narrative review summarises and discusses evidence of the impact of ePROMs on clinical parameters and outcomes relevant to chronic diseases. We also explore recently published literature regarding issues that may influence the robust implementation of ePROMs for routine clinical practice.
引用
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页数:22
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