Development of Generic Quality Indicators for Patient-Centered Cancer Care by Using a RAND Modified Delphi Method

被引:60
作者
Uphoff, Eleonora P. M. M. [1 ]
Wennekes, Lianne [1 ]
Punt, Cornelis J. A. [2 ]
Grol, Richard P. T. M. [1 ]
Wollersheim, Hub C. H. [1 ]
Hermens, Rosella P. M. G. [1 ]
Ottevanger, Petronella B. [2 ]
机构
[1] Radboud Univ Nijmegen, Med Ctr, Sci Inst Qual Healthcare, Nijmegen, Netherlands
[2] Radboud Univ Nijmegen, Med Ctr, Dept Med Oncol, Nijmegen, Netherlands
关键词
Cancer; Oncology; Patient-centered care; Quality indicators; HEALTH-CARE; DECISION-MAKING; ONCOLOGY; GUIDELINES; DIAGNOSIS; RATINGS; IMPLEMENTATION; INTERVENTIONS; STANDARDS; OUTCOMES;
D O I
10.1097/NCC.0b013e318210e3a2
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Background: Despite growing attention to patient-centered care, the needs of cancer patients are not always met. Objective: Using a RAND modified Delphi method, this study aimed to systematically develop evidence-based indicators, to be used to measure the quality of patient-centered cancer care as a first step toward improvement. Methods: First, key recommendations were identified from literature and were distributed over 5 domains of patient-centered cancer care: communication, physical support, psychosocial care, after-care, and organization of care. Generic key recommendations, with best available evidence, were selected from guidelines. A multidisciplinary panel of patients and medical professionals (n = 14) rated and prioritized these recommendations in a written procedure. Subsequently, the panel discussed the recommendations at a consensus meeting. Results: Key recommendations were identified for communication (n = 32), physical support (n = 13), psychosocial care (n = 25), after-care (n = 11), and organization of care (n = 11). For all domains, recommendations based on high-level evidence were identified except for after-care and physical support. The panel developed 17 indicators concerning criteria for communication and informed consent, evaluation of communication skills, provision of information, examination of emotional health, appointment of a care coordinator, physical complaints, follow-up, rehabilitation, psychosocial effects of waiting times, and self-management. Conclusions: A set of 17 indicators for patient-centered cancer care resulted from this study. Evidence support was available for most indicators. Implications for Practice: This set provides an opportunity to measure and improve the quality of patient-centered cancer care. It is generic and therefore applies to many patients.
引用
收藏
页码:29 / 37
页数:9
相关论文
共 47 条
[1]   Cancer survivors' views of work 3 years post diagnosis: A UK perspective6 [J].
Amir, Ziv ;
Neary, David ;
Luke, Karen .
EUROPEAN JOURNAL OF ONCOLOGY NURSING, 2008, 12 (03) :190-197
[2]   Involvement in Decision-Making and Breast Cancer Survivor Quality of Life [J].
Andersen, M. Robyn ;
Bowen, Deborah J. ;
Morea, Jessica ;
Stein, Kevin D. ;
Baker, Frank .
HEALTH PSYCHOLOGY, 2009, 28 (01) :29-37
[3]  
[Anonymous], 2001, Crossing the Quality Chasm: A New Health Care System for the 21st Century
[4]   ESPEN guidelines on enteral nutrition:: Non-surgical oncology [J].
Arends, J. ;
Bodoky, G. ;
Bozzetti, F. ;
Fearon, K. ;
Muscaritoli, M. ;
Selga, G. ;
van Bokhorst-de van der Schuereng, M. A. E. ;
von Meyenfeldt, M. ;
Zuercher, G. ;
Fietkau, R. ;
Aulbert, E. ;
Frick, B. ;
Holm, M. ;
Kneba, M. ;
Mestrom, H. J. ;
Zander, A. .
CLINICAL NUTRITION, 2006, 25 (02) :245-259
[5]   Importance of patient-centered care in enhancing patient well-being: a cancer survivor's perspective [J].
Arora, Neeraj K. .
QUALITY OF LIFE RESEARCH, 2009, 18 (01) :1-4
[6]  
Association of Comprehensive Cancer Centres (VIKC), 2009, RICHTL MANT
[7]  
Association of Comprehensive Cancer Centres (VIKC), 2007, RICHTL MISS BRAK PAL
[8]  
Association of Comprehensive Cancer Centres (VIKC), 2005, RICHTL ALGEM VOED DI
[9]  
Association of Comprehensive Cancer Centres (VIKC), 2004, RICHTL NIET KLEINC L
[10]  
Association of Comprehensive Cancer Centres (VIKC), 2006, RICHTL LYMF