Measurement of health status, functional status, and quality of life in children with juvenile idiopathic arthritis: Clinical science for the pediatrician

被引:13
作者
Duffy, Ciaran M.
机构
[1] Montreal Childrens Hosp, Div Paediat Rheumatol, Montreal, PQ H3H 1P3, Canada
[2] McGill Univ, Ctr Hlth, Montreal, PQ H3G 1A4, Canada
[3] McGill Univ, Montreal, PQ H3A 2T5, Canada
关键词
D O I
10.1016/j.rdc.2007.07.003
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Several groups have undertaken research on health status, functional status, and quality of life in the pediatric rheumatic diseases, particularly juvenile idiopathic arthritis (JIA) and juvenile rheumatoid arthritis. This article highlights the principles involved in this type of measurement, discusses the measures that have been developed for JIA, and describes the outcomes determined from recent retrospective and prospective longitudinal outcome studies. These studies suggest that although there has been improvement in overall outcomes, significant numbers of individuals persist with active disease into adulthood and have significant damage, reduced functional ability, and disability.
引用
收藏
页码:389 / +
页数:15
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