Implementation of thyroid-related patient-reported outcomes in routine clinical practice

被引:10
作者
Cramon, Per Karkov [1 ,2 ]
Bjorner, Jakob Bue [3 ,4 ]
Groenvold, Mogens [3 ,5 ]
Boesen, Victor Brun [6 ]
Bonnema, Steen Joop [7 ]
Hegedus, Laszlo [7 ]
Feldt-Rasmussen, Ulla [1 ,8 ]
Rasmussen, Ase Krogh [1 ]
Watt, Torquil [6 ,8 ]
机构
[1] Copenhagen Univ Hosp, Rigshosp, Dept Med Endocrinol & Metab, Copenhagen, Denmark
[2] Copenhagen Univ Hosp, Rigshosp, Dept Clin Physiol & Nucl Med, Copenhagen, Denmark
[3] Univ Copenhagen, Dept Publ Hlth, Copenhagen, Denmark
[4] QualityMetr Inc LLC, Johnston, RI USA
[5] Bispebjerg & Frederiksberg Hosp, Palliat Care Res Unit, Copenhagen, Denmark
[6] Copenhagen Univ Hosp Herlev Gentofte, Dept Internal Med, Copenhagen, Denmark
[7] Odense Univ Hosp, Dept Endocrinol & Metab, Odense, Denmark
[8] Univ Copenhagen, Fac Hlth & Clin Sci, Dept Clin Med, Copenhagen, Denmark
关键词
patient-reported outcomes; quality of life; thyroid disease; thyroid dysfunction; routine; clinical practice; EMA; QUALITY-OF-LIFE; HEALTH SURVEY SF-36; MEASURE THYPRO; GRAVES OPHTHALMOPATHY; EXCESS MORTALITY; NODULAR GOITER; GO-QOL; QUESTIONNAIRE; HYPOTHYROIDISM; VALIDITY;
D O I
10.3389/fendo.2022.1000682
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Patient-reported outcomes (PROs) are increasingly used in clinical practice to improve clinical care. Multiple studies show that systematic use of PROs can enhance communication with patients and improve patient satisfaction, symptom management and quality of life. Further, such data can be aggregated to examine health levels for patient groups, improve quality of care, and compare patient outcomes at the institutional, regional or national level. However, there are barriers and challenges that should be handled appropriately to achieve successful implementation of PROs in routine clinical practice. This paper briefly overviews thyroid-related PROs, describes unsolved quality of life issues in benign thyroid diseases, provides examples of routine collection of PROs, and summarizes key points facilitating successful implementation of thyroid-related PROs in routine clinical practice. Finally, the paper touches upon future directions of PRO research.
引用
收藏
页数:10
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