Patient and caregiver perspectives on burnout in peritoneal dialysis

被引：18

作者：

Oveyssi, Justin ^{[1
]}

Manera, Karine E. ^{[2
,3
]}

Baumgart, Amanda ^{[2
,3
]}

Cho, Yeoungjee ^{[4
,5
,6
]}

Forfang, Derek ^{[7
]}

Saxena, Anjali ^{[8
]}

Craig, Jonathan C. ^{[2
,3
,9
]}

Fung, Samuel K. S. ^{[10
]}

Harris, David ^{[11
]}

Johnson, David W. ^{[4
,5
,6
]}

Kerr, Peter G. ^{[12
]}

Lee, Achilles ^{[13
]}

Ruiz, Lorena ^{[14
]}

Tong, Matthew ^{[15
]}

Wang, Angela Yee-Moon ^{[16
]}

Yip, Terence ^{[17
]}

Tong, Allison ^{[2
,3
]}

Shen, Jenny, I ^{[14
,18
]}

机构：

[1] St Marys Hosp, Long Beach, CA USA

[2] Univ Sydney, Sydney Sch Publ Hlth, Sydney, NSW, Australia

[3] Childrens Hosp Westmead, Ctr Kidney Res, Sydney, NSW, Australia

[4] Princess Alexandra Hosp, Dept Nephrol, Brisbane, Qld, Australia

[5] Univ Queensland, Ctr Kidney Dis Res, Princess Alexandra Hosp, Brisbane, Qld, Australia

[6] Univ Queensland, Australasian Kidney Trials Network, Brisbane, Qld, Australia

[7] Natl Forum ESRD Networks, San Pablo, CA USA

[8] Stanford Univ, Dept Med, Div Nephrol, Sch Med, Palo Alto, CA USA

[9] Flinders Univ S Australia, Coll Med & Publ Hlth, Adelaide, SA, Australia

[10] Princess Margaret Hosp, Jockey Club Nephrol & Urol Ctr, Dept Med & Geriatr, Div Nephrol,Kowloon, Hong Kong, Peoples R China

[11] Univ Sydney, Sydney Med Sch, Sydney, NSW, Australia

[12] Monash Hlth, Dept Nephrol, Clayton, Vic, Australia

[13] Tuen Mun Hosp, Dept Med & Geriatr, Hong Kong, Peoples R China

[14] Harbor UCLA Med Ctr, Lundquist Inst, Torrance, CA 90509 USA

[15] Pok Oi Hosp, Dept Med & Geriatr, Hong Kong, Peoples R China

[16] Univ Hong Kong, Queen Mary Hosp, Dept Med, Hong Kong, Peoples R China

[17] Tung Wah Hosp, Dept Med, Hong Kong, Peoples R China

[18] UCLA, David Geffen Sch Med, Los Angeles, CA 90095 USA

来源：

PERITONEAL DIALYSIS INTERNATIONAL | 2021年 / 41卷 / 05期

基金：

澳大利亚国家健康与医学研究理事会; 英国医学研究理事会;

关键词：

Burden; burnout; dialysis; peritoneal dialysis; qualitative; QUALITY-OF-LIFE; HEMODIALYSIS; OUTCOMES; BURDEN; CARE;

D O I：

10.1177/0896860820970064

中图分类号：

R5 [内科学]; R69 [泌尿科学（泌尿生殖系疾病）];

学科分类号：

1002 ; 100201 ;

摘要：

Background: Peritoneal dialysis (PD) can offer patients more autonomy and flexibility compared with in-center hemodialysis (HD). However, burnout - defined as mental, emotional, or physical exhaustion that leads to thoughts of discontinuing PD - is associated with an increased risk of transfer to HD. We aimed to describe the perspectives of burnout among patients on PD and their caregivers. Methods: In this focus group study, 81 patients and 45 caregivers participated in 14 focus groups from 9 dialysis units in Australia, Hong Kong, and the United States. Transcripts were analyzed thematically. Results: We identified two themes. Suffering an unrelenting responsibility contributed to burnout, as patients and caregivers felt overwhelmed by the daily regimen, perceived their life to be coming to a halt, tolerated the PD regimen for survival, and had to bear the burden and uncertainty of what to expect from PD alone. Adapting and building resilience against burnout encompassed establishing a new normal, drawing inspiration and support from family, relying on faith and hope for motivation, and finding meaning in other activities. Conclusions: For patients on PD and their caregivers, burnout was intensified by perceiving PD as an unrelenting, isolating responsibility that they had no choice but to endure, even if it held them back from doing other activities in life. More emphasis on developing strategies to adapt and build resilience could prevent or minimize burnout.

引用

页码：484 / 493

页数：10

共 41 条

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