End-of-life care for HIV-infected patients with malignancies: A questionnaire-based survey

被引:4
作者
Kojima, Yuki [1 ,2 ]
Iwasaki, Nami [2 ]
Yanaga, Yuriko [3 ]
Tanuma, Junko [4 ]
Koizumi, Yusuke [5 ]
Uehira, Tomoko [6 ]
Yotsumoto, Mihoko [7 ]
Ajisawa, Atsushi [8 ]
Hagiwara, Shotaro [9 ]
Okada, Seiji [10 ]
Nagai, Hirokazu [2 ]
机构
[1] Nagoya Univ, Dept Hematol & Oncol, Grad Sch Med, Nagoya, Aichi, Japan
[2] Natl Hosp Org, Dept Hematol, Nagoya Med Ctr, Nagoya, Aichi, Japan
[3] Keio Univ, Ctr Infect Dis & Infect Control, Tokyo, Japan
[4] Natl Ctr Global Hlth & Med, AIDS Clin Ctr, Tokyo, Japan
[5] Shiga Univ, Dept Hematol, Med Sci Hosp, Hikone, Shiga, Japan
[6] Natl Hosp Org, Dept Infect Dis, Osaka Natl Hosp, Osaka, Japan
[7] Tokyo Med Univ, Dept Lab Med, Tokyo, Japan
[8] Komagome Hosp, Dept Infect Dis, Tokyo Metropolitan Canc & Infect Dis Ctr, Tokyo, Japan
[9] Natl Ctr Global Hlth & Med, Dept Hematol, Internal Med, Tokyo, Japan
[10] Kumamoto Univ, Ctr AIDS Res, Kumamoto, Japan
关键词
Palliative care; terminal care; AIDS; HIV; neoplasms; hospice; ACTIVE ANTIRETROVIRAL THERAPY; AIDS-DEFINING CANCERS; PALLIATIVE CARE; LUNG-CANCER; DEATH; DISEASE; TRENDS; EPIDEMIOLOGY; INTEGRATION; MORTALITY;
D O I
10.1177/0269216316635881
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: The number of HIV-infected patients who require palliative or end-of-life care is increasing, and the status of end-of-life care for HIV patients with malignancies is unclear. Aim: This study aimed to evaluate the end-of-life care provided to HIV patients with malignancies in Japan. Design: National cross-sectional questionnaire-based survey. Setting/participants: Questionnaires were delivered to the medical staff of 378 regional core hospitals/core hospitals for AIDS and 285 palliative care units in Japan. Data were collected between August and October 2013. Results: Overall, 226 regional core hospitals/core hospitals for AIDS (59.8%) responded. A total of 55 institutions (24.3%) provided end-of-life care to HIV patients with malignancies. Regarding the place of death of the patients, 69.1% died at the institution whereas 18.2% were transferred to palliative care units. The requests of 16 (29.1%) institutions to transfer patients to palliative care units were rejected. Of the 378 palliative care units, 179 (62.8%) responded. While 13 palliative care units (4.6%) provided care to hospitalized HIV patients with malignancies, 20 (11.2%) refused to accept these patients for treatment because of a lack of experience in treating these patients and a lack of knowledge regarding HIV infection. Conclusion: Our findings suggest that in Japan, HIV patients with malignancies have difficulties obtaining hospitalization at a palliative care unit, which is likely due to a lack of experience among the professionals in treating such patients as well as a lack of knowledge about HIV.
引用
收藏
页码:869 / 876
页数:8
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