Assessing Patient-Reported Outcomes in Pediatric Rheumatic Diseases Considerations and Future Directions

被引：1
作者：
Zigler, Christina K. [1 ]
Randell, Rachel L. [2 ]
Reeve, Bryce B. [1 ,3 ]
机构：
[1] Duke Univ, Ctr Hlth Measurement, Dept Populat Hlth Sci, Sch Med, 215 Morris St,Suite 235,DUMC 104023, Durham, NC 27701 USA
[2] Duke Univ, Dept Pediat, Div Pediat Rheumatol, Sch Med, 2301 Erwin Rd, Durham, NC 27705 USA
[3] Duke Univ, Pediat, Sch Med, 215 Morris St,Suite 230,DUMC 104023, Durham, NC 27701 USA
来源：
RHEUMATIC DISEASE CLINICS OF NORTH AMERICA | 2022年 / 48卷 / 01期
基金：
美国国家卫生研究院;
关键词：
Pediatric rheumatic diseases; Patient-reported outcomes; Patient-reported outcome measures; Clinical trials; Clinical care; Future directions; QUALITY-OF-LIFE; JUVENILE IDIOPATHIC ARTHRITIS; PSYCHOMETRIC EVALUATION; HEALTH-STATUS; SELF-REPORT; CHILDREN; PARENT; CANCER; VALIDATION; INSTRUMENTS;
D O I：
10.1016/j.rdc.2021.09.008
中图分类号：
R5 [内科学];
学科分类号：
1002 ; 100201 ;
摘要：
[No abstract available]
引用
收藏
页码：15 / 29
页数：15
相关论文
共 80 条
  • [1] Aaronson N, 2002, QUAL LIFE RES, V11, P193
  • [2] Measuring quality of life - Who should measure quality of life?
    Addington-Hall, J
    Kalra, L
    [J]. BRITISH MEDICAL JOURNAL, 2001, 322 (7299): : 1417 - 1420
  • [3] [Anonymous], GUIDANCE IND PATIENT
  • [4] Psychometric properties of the Children's Dermatology Life Quality Index in pediatric localized scleroderma
    Ardalan, Kaveh
    Switzer, Galen E.
    Zigler, Christina K.
    Hershey, Nicole M.
    Torok, Kathryn S.
    [J]. JOURNAL OF SCLERODERMA AND RELATED DISORDERS, 2018, 3 (02) : 175 - 181
  • [5] Ardalan KCD, 2017, ARTHRITIS RHEUMATOL, V69
  • [6] Patient-Reported Outcomes Predict Mortality in Lupus
    Azizoddin, Desiree R.
    Jolly, Meenakshi
    Arora, Shilpa
    Yelin, Ed
    Katz, Patricia
    [J]. ARTHRITIS CARE & RESEARCH, 2019, 71 (08) : 1028 - 1035
  • [7] Reliability and Validity of Selected PROMIS Measures in People with Rheumatoid Arthritis
    Bartlett, Susan J.
    Orbai, Ana-Maria
    Duncan, Trisha
    DeLeon, Elaine
    Ruffing, Victoria
    Clegg-Smith, Katherine
    Bingham, Clifton O., III
    [J]. PLOS ONE, 2015, 10 (09):
  • [8] Patient-Reported Outcome Measures in Routine Pediatric Clinical Care: A Systematic Review
    Bele, Sumedh
    Chugh, Ashton
    Mohamed, Bijan
    Teela, Lorynn
    Haverman, Lotte
    Santana, Maria J.
    [J]. FRONTIERS IN PEDIATRICS, 2020, 8
  • [9] Cross-cultural adaptation and psychometric evaluation of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) in 54 languages across 52 countries: review of the general methodology
    Bovis, Francesca
    Consolaro, Alessandro
    Pistorio, Angela
    Garrone, Marco
    Scala, Silvia
    Patrone, Elisa
    Rinaldi, Mariangela
    Villa, Luca
    Martini, Alberto
    Ravelli, Angelo
    Ruperto, Nicolino
    [J]. RHEUMATOLOGY INTERNATIONAL, 2018, 38 : 5 - 17
  • [10] Patient-Reported Outcomes Measurement Information System Tools for Collecting Patient-Reported Outcomes in Children With Juvenile Arthritis
    Brandon, Timothy G.
    Becker, Brandon D.
    Bevans, Katherine B.
    Weiss, Pamela F.
    [J]. ARTHRITIS CARE & RESEARCH, 2017, 69 (03) : 393 - 402
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