Public involvement in research about environmental change and health: A case study

被引:7
作者
Maguire, Kath [1 ]
Garside, Ruth [1 ]
Poland, Jo [2 ]
Fleming, Lora E. [1 ]
Alcock, Ian [1 ]
Taylor, Tim [1 ]
Macintyre, Helen [3 ]
Lo Iacono, Gianni [4 ]
Green, Andrew [2 ]
Wheeler, Benedict W. [1 ]
机构
[1] Univ Exeter, Truro, Cornwall, England
[2] Hlth & Environm Publ Engagement HEPE, Exeter, Devon, England
[3] Publ Hlth England, London, England
[4] Univ Surrey, Guildford, Surrey, England
来源
HEALTH | 2019年 / 23卷 / 02期
关键词
environment and health; health policy; issues in research methodology; theory; PATIENT; ENGAGEMENT; KNOWLEDGE;
D O I
10.1177/1363459318809405
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Involving and engaging the public are crucial for effective prioritisation, dissemination and implementation of research about the complex interactions between environments and health. Involvement is also important to funders and policy makers who often see it as vital for building trust and justifying the investment of public money. In public health research, 'the public' can seem an amorphous target for researchers to engage with, and the short-term nature of research projects can be a challenge. Technocratic and pedagogical approaches have frequently met with resistance, so public involvement needs to be seen in the context of a history which includes contested truths, power inequalities and political activism. It is therefore vital for researchers and policy makers, as well as public contributors, to share best practice and to explore the challenges encountered in public involvement and engagement. This article presents a theoretically informed case study of the contributions made by the Health and Environment Public Engagement Group to the work of the National Institute for Health Research (NIHR) Health Protection Research Unit in Environmental Change and Health (HPRU-ECH). We describe how Health and Environment Public Engagement Group has provided researchers in the HPRU-ECH with a vehicle to support access to public views on multiple aspects of the research work across three workshops, discussion of ongoing research issues at meetings and supporting dissemination to local government partners, as well as public representation on the HPRU-ECH Advisory Board. We conclude that institutional support for standing public involvement groups can provide conduits for connecting public with policy makers and academic institutions. This can enable public involvement and engagement, which would be difficult, if not impossible, to achieve in individual short-term and unconnected research projects.
引用
收藏
页码:215 / 233
页数:19
相关论文
共 45 条
  • [21] Healthy publics: enabling cultures and environments for health
    Hinchliffe S.
    Jackson M.A.
    Wyatt K.
    Barlow A.E.
    Barreto M.
    Clare L.
    Depledge M.H.
    Durie R.
    Fleming L.E.
    Groom N.
    Morrissey K.
    Salisbury L.
    Thomas F.
    [J]. Palgrave Communications, 4 (1)
  • [22] Jasanoff S., 2000, DESIGNS NATURE SCI D
  • [23] Is it safe to go back into the water? A systematic review and meta-analysis of the risk of acquiring infections from recreational exposure to seawater
    Leonard, Anne F. C.
    Singer, Andrew
    Ukoumunne, Obioha C.
    Gaze, William H.
    Garside, Ruth
    [J]. INTERNATIONAL JOURNAL OF EPIDEMIOLOGY, 2018, 47 (02) : 572 - 586
  • [24] Human recreational exposure to antibiotic resistant bacteria in coastal bathing waters
    Leonard, Anne F. C.
    Zhang, Lihong
    Balfour, Andrewl
    Garside, Ruth
    Gaze, William H.
    [J]. ENVIRONMENT INTERNATIONAL, 2015, 82 : 92 - 100
  • [25] A Systematic Review of the Health and Well-Being Benefits of Biodiverse Environments
    Lovell, Rebecca
    Wheeler, Benedict W.
    Higgins, Sahran L.
    Irvine, Katherine N.
    Depledge, Michael H.
    [J]. JOURNAL OF TOXICOLOGY AND ENVIRONMENTAL HEALTH-PART B-CRITICAL REVIEWS, 2014, 17 (01): : 1 - 20
  • [26] 'You're there because you are unprofessional': patient and public involvement as liminal knowledge spaces
    Maguire, Kath
    Britten, Nicky
    [J]. SOCIOLOGY OF HEALTH & ILLNESS, 2018, 40 (03) : 463 - 477
  • [27] "How can anybody be representative for those kind of people?" Forms of patient representation in health research, and why it is always contestable
    Maguire, Kath
    Britten, Nicky
    [J]. SOCIAL SCIENCE & MEDICINE, 2017, 183 : 62 - 69
  • [28] MASSEY D, 1992, NEW LEFT REV, P65
  • [29] Reciprocal relationships and the importance of feedback in patient and public involvement: A mixed methods study
    Mathie, Elspeth
    Wythe, Helena
    Munday, Diane
    Millac, Paul
    Rhodes, Graham
    Roberts, Nick
    Smeeton, Nigel
    Poland, Fiona
    Jones, Julia
    [J]. HEALTH EXPECTATIONS, 2018, 21 (05) : 899 - 908
  • [30] Community participation in health: Perpetual allure, persistent challenge
    Morgan, LM
    [J]. HEALTH POLICY AND PLANNING, 2001, 16 (03) : 221 - 230