Diabetes distress: understanding the hidden struggles of living with diabetes and exploring intervention strategies

被引:56
作者
Berry, Emma [1 ]
Lockhart, Sam [2 ]
Davies, Mark [3 ]
Lindsay, John R. [4 ]
Dempster, Martin [1 ]
机构
[1] Queens Univ Belfast, Sch Psychol, Belfast BT9 7BL, Antrim, North Ireland
[2] Queens Univ Belfast, Sch Med Dent & Biol Sci, Belfast BT9 7BL, Antrim, North Ireland
[3] Belfast City Hosp, Dept Clin Psychol, Belfast BT9 7AD, Antrim, North Ireland
[4] Mater Hosp, Dept Diabet & Endocrinol, Belfast, Antrim, North Ireland
关键词
EDUCATION & TRAINING (see Medical Education & Training); CROSS-NATIONAL BENCHMARKING; PROBLEM-AREAS; GLYCEMIC CONTROL; EMOTIONAL DISTRESS; PSYCHOMETRIC PROPERTIES; CLINICAL DEPRESSION; NEEDS; 2ND; SELF-CARE; SCALE; PEOPLE;
D O I
10.1136/postgradmedj-2014-133017
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Diabetes distress is a rational emotional response to the threat of a life-changing illness. Distinct from depression, it is conceptually rooted in the demands of diabetes management and is a product of emotional adjustment. Diabetes distress has been found to be significantly associated with glycated haemoglobin (HbA(1c)) level and the likelihood of an individual adopting self-care behaviours. The lack of perceived support from family, friends and healthcare professionals significantly contributes to elevated diabetes distress, and this issue tends to be overlooked when designing interventions. Pioneering large-scale research, DAWN2, gives voices to the families of those with diabetes and reaffirms the need to consider psychosocial factors in routine diabetes care. Structured diabetes education programmes are the most widely used in helping individuals cope with diabetes, but they tend not to include the psychological or interpersonal aspects of diabetes management in their curricula. The need for health practitioners, irrespective of background, to demonstrate an understanding of diabetes distress and to actively engage in discussion with individuals struggling to cope with diabetes is emphasised.
引用
收藏
页码:278 / 283
页数:6
相关论文
共 64 条
[1]   Quality and Outcomes Framework screening questions for depression in patients with diabetes: effective but non-efficient [J].
Abu-Roomi, S. R. ;
Mallipedhi, A. ;
Bain, S. C. ;
Price, D. E. ;
Stephens, J. W. .
DIABETIC MEDICINE, 2012, 29 (07) :957-958
[2]   Training in flexible, intensive insulin management to enable dietary freedom in people with type 1 diabetes: dose adjustment for normal eating (DAFNE) randomised controlled trial [J].
Amiel, S ;
Beveridge, S ;
Bradley, C ;
Gianfrancesco, C ;
Heller, S ;
James, P ;
McKeown, N ;
Newton, D ;
Newton, L ;
Oliver, L ;
Reid, H ;
Roberts, S ;
Robson, S ;
Rollingson, J ;
Scott, V ;
Speight, J ;
Taylor, C ;
Thompson, G ;
Turner, E ;
Wright, F .
BRITISH MEDICAL JOURNAL, 2002, 325 (7367) :746-749
[3]   The psychometric properties of the Swedish version of the Problem Areas in Diabetes Scale (Swe-PAID-20): Scale development [J].
Amsberg, Susanne ;
Wredling, Regina ;
Lins, Per-Eric ;
Adamson, Ulf ;
Johansson, Unn-Britt .
INTERNATIONAL JOURNAL OF NURSING STUDIES, 2008, 45 (09) :1319-1328
[4]  
[Anonymous], 2008, MIND GAP PROV PSYCH
[5]   What's distressing about having type 1 diabetes? A qualitative study of young adults' perspectives [J].
Balfe, Myles ;
Doyle, Frank ;
Smith, Diarmuid ;
Sreenan, Seamus ;
Brugha, Ruairi ;
Hevey, David ;
Conroy, Ronan .
BMC ENDOCRINE DISORDERS, 2013, 13
[6]  
Beverly EA, 2012, DIABETES CARE, V35, P1466, DOI [10.2337/dc11-2422, 10.2337/dc12-0661]
[7]   Diabetes Attitudes, Wishes and Needs second study (DAWN2™): Cross-national benchmarking indicators for family members living with people with diabetes [J].
Burns, K. Kovacs ;
Nicolucci, A. ;
Holt, R. I. G. ;
Willaing, I. ;
Hermanns, N. ;
Kalra, S. ;
Wens, J. ;
Pouwer, F. ;
Skovlund, S. E. ;
Peyrot, M. .
DIABETIC MEDICINE, 2013, 30 (07) :778-788
[8]   A Mixed Methods Study Exploring the Factors and Behaviors That Affect Glycemic Control Following a Structured Education Program: The Irish DAFNE Study [J].
Casey, Dympna ;
O'Hara, Mary Clare ;
Meehan, Ben ;
Byrne, Molly ;
Dinneen, Sean F. ;
Murphy, Kathy .
JOURNAL OF MIXED METHODS RESEARCH, 2016, 10 (02) :182-203
[9]   Translation and adaptation of the "Diabetes Distress Scale - DDS" in Brazilian culture [J].
Curcio, Raquel ;
Costa Alexandre, Neuza Maria ;
Torres, Heloisa de Carvalho ;
Melo Lima, Maria Helena .
ACTA PAULISTA DE ENFERMAGEM, 2012, 25 (05) :762-767
[10]   Effectiveness of the diabetes education and self management for ongoing and newly diagnosed (DESMOND) programme for people with newly diagnosed type 2 diabetes: cluster randomised controlled trial [J].
Davies, M. J. ;
Heller, S. ;
Skinner, T. C. ;
Campbell, M. J. ;
Carey, M. E. ;
Cradock, S. ;
Dallosso, H. M. ;
Daly, H. ;
Doherty, Y. ;
Eaton, S. ;
Fox, C. ;
Oliver, L. ;
Rantell, K. ;
Rayman, G. ;
Khunti, K. .
BMJ-BRITISH MEDICAL JOURNAL, 2008, 336 (7642) :491-495