Controlling futures? Online Genetic Testing and Neurodegenerative Disease Comment on "Personal Genomic Testing, Genetic Inheritance, and Uncertainty"

被引：0

作者：

Warren, Narelle ^{[1
]}

Gardner, John ^{[1
]}

机构：

[1] Monash Univ, Sch Social Sci, Level 4,20 Chancellors Walk, Clayton, Vic 3800, Australia

来源：

JOURNAL OF BIOETHICAL INQUIRY | 2017年 / 14卷 / 04期

关键词：

Genetic testing; Neurodegenerative disease; Heredity; Parkinson's disease; Uncertainty;

D O I：

10.1007/s11673-017-9820-y

中图分类号：

B82 [伦理学（道德学）];

学科分类号：

摘要：

Online personalized genetic testing services offer accessible and convenient options for satisfying personal curiosity about health and obtaining answers about one's genetic provenance. They are especially attractive to healthy people who wish to learn about their future risk of disease, as Paul Mason's (2017) case study of "Jordan" illustrates. In this response, we consider how online genetic testing services are used by people diagnosed with a common neurodegenerative disease, Parkinson's disease, to gain a sense of certainty regarding the future.

引用

页码：593 / 594

页数：2