Parents' Perceptions of the Value of Children's Participation in Pediatric Rehabilitation Services: A Phenomenographic Study

被引:3
作者
Kronsell, Lisa [1 ]
Svedberg, Petra [1 ]
Nygren, Jens [1 ]
Larsson, Ingrid [1 ]
机构
[1] Halmstad Univ, Sch Hlth & Welf, Dept Hlth & Care, SE-30118 Halmstad, Sweden
关键词
child care; disabled children; interviews; parents; participation; phenomenography; value; CARE;
D O I
10.3390/ijerph182010948
中图分类号
X [环境科学、安全科学];
学科分类号
08 ; 0830 ;
摘要
Ensuring that children have opportunities to be involved in decision-making regarding their own care is associated with quality improvement in pediatric rehabilitation. The aim of the study was to explore parents' perceptions of the value of children's participation in pediatric rehabilitation services. Semi-structured interviews were conducted with 17 parents of children with disabilities who visited pediatric rehabilitation services. A phenomenographic analysis method was used. Three categories developed from the analysis describing how participation generated value in terms of empowerment, self-awareness, and independence. The outcome space describes a hierarchical relationship between the categories and their influence on each other. Independence achieved through participation was a core aspect and is at the highest level in the hierarchy since it includes and depends on the outcomes from both empowerment and self-awareness. Parents' perceptions of the value of children's participation in pediatric rehabilitation services include the possibility for the child to use their entire capacity through values created in terms of empowerment, self-awareness, and independence, in order to live the best life possible. Children with disabilities are diverse as a group, and further research to identify barriers and facilitators of participation is needed to adjust interventions within pediatric rehabilitation services to ensure that children with disabilities can be increasingly empowered, self-aware, and independent.
引用
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页数:16
相关论文
共 36 条
[1]  
[Anonymous], 2016, NURSING RES GENERATI
[2]   Involving disabled children and young people as partners in research: a systematic review [J].
Bailey, S. ;
Boddy, K. ;
Briscoe, S. ;
Morris, C. .
CHILD CARE HEALTH AND DEVELOPMENT, 2015, 41 (04) :505-514
[3]   Coproduction of healthcare service [J].
Batalden, Maren ;
Batalden, Paul ;
Margolis, Peter ;
Seid, Michael ;
Armstrong, Gail ;
Opipari-Arrigan, Lisa ;
Hartung, Hans .
BMJ QUALITY & SAFETY, 2016, 25 (07) :509-517
[4]   Barriers and facilitators of pediatric shared decision-making: a systematic review [J].
Boland, Laura ;
Graham, Ian D. ;
Legare, France ;
Lewis, Krystina ;
Jull, Janet ;
Shephard, Allyson ;
Lawson, Margaret L. ;
Davis, Alexandra ;
Yameogo, Audrey ;
Stacey, Dawn .
IMPLEMENTATION SCIENCE, 2019, 14 (1)
[5]   Creating a communication space in the healthcare context: Children's perspective of using the eHealth service, Sisom [J].
Carlsson, Ing-Marie ;
Arvidsson, Susann ;
Svedberg, Petra ;
Nygren, Jens M. ;
Viklund, Asa ;
Birkeland, Anna-Lena ;
Larsson, Ingrid .
JOURNAL OF CHILD HEALTH CARE, 2021, 25 (01) :31-43
[6]   Reframing the focus from a family-centred to a child-centred care approach for children's healthcare [J].
Coyne, Imelda ;
Hallstrom, Inger ;
Soderback, Maja .
JOURNAL OF CHILD HEALTH CARE, 2016, 20 (04) :494-502
[7]   A Preliminary Investigation of the Relationship between Motivation for Physical Activity and Emotional and Behavioural Difficulties in Children Aged 8-12 Years: The Role of Autonomous Motivation [J].
Farmer, Erin ;
Papadopoulos, Nicole ;
Emonson, Chloe ;
Fuelscher, Ian ;
Pesce, Caterina ;
McGillivray, Jane ;
Hyde, Christian ;
Olive, Lisa ;
Rinehart, Nicole .
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2020, 17 (15) :1-11
[8]  
Foster M., 2015, Nursing Praxis in New Zealand, V31, P4
[9]   Impact of an Electronic Health Service on Child Participation in Pediatric Oncology Care: Quasiexperimental Study [J].
Gilljam, Britt-Mari ;
Nygren, Jens M. ;
Svedberg, Petra ;
Arvidsson, Susann .
JOURNAL OF MEDICAL INTERNET RESEARCH, 2020, 22 (07)
[10]   Promoting participation in healthcare situations for children with JIA: a grounded theory study [J].
Gilljam, Britt-Mari ;
Arvidsson, Susann ;
Nygren, Jens M. ;
Svedberg, Petra .
INTERNATIONAL JOURNAL OF QUALITATIVE STUDIES ON HEALTH AND WELL-BEING, 2016, 11