Psychometric evaluation of the anticipatory grief scale in a sample of family caregivers in the context of palliative care

被引:33
作者
Holm, Maja [1 ]
Alvariza, Anette [2 ,3 ]
Furst, Carl-Johan [4 ,5 ]
Ohlen, Joakim [6 ,7 ]
Arestedt, Kristofer [8 ,9 ]
机构
[1] Sophiahemmet Univ, Dept Nursing Sci, Box 5605, S-11486 Stockholm, Sweden
[2] Ersta Skondal Univ Coll, Dept Hlth Care Sci, Box 11189, S-10061 Stockholm, Sweden
[3] Dalen Hosp, Palliat Care unit, Capio Geriatr, Astorpsringen 6, S-12187 Stockholm, Sweden
[4] Lund Univ, Dept Clin Sci, Scheelevagen 2, S-22381 Lund, Sweden
[5] Lund Univ, Inst Palliat Care, Scheelevagen 2, S-22381 Lund, Sweden
[6] Univ Gothenburg, Sahlgrenska Acad, Inst Hlth & Care Sci, Box 457, S-40530 Gothenburg, Sweden
[7] Univ Gothenburg, Ctr Person Centred Care, Arvid Wallgrens Backe 1, S-41346 Gothenburg, Sweden
[8] Linnaeus Univ, Fac Hlth & Life Sci, S-39182 Kalmar, Sweden
[9] Reserch Sect, Lasarettsvagen 1, S-39244 Kalmar, Region Kalmar C, Sweden
关键词
Anticipatory grief; Palliative care; Family caregivers; Instrument development; Factor analysis; Nursing; COMPLICATED GRIEF; PROLONGED GRIEF; PRE-DEATH; LIFE; END; BEREAVEMENT; DEPRESSION; DEMENTIA;
D O I
10.1186/s12955-019-1110-4
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
IntroductionIn palliative care, family caregivers are often faced with experiences of grief in anticipation of the loss of a close person. An instrument designed to measure this form of grief is the Anticipatory Grief Scale, which includes 27 items and has been used in several studies in various contexts. However, the instrument has not been validated.AimThe aim was to evaluate the psychometric properties, focusing on the factor structure, of the Anticipatory Grief Scale in a sample of family caregivers in palliative care.MethodsThe study had a cross-sectional design. Data were collected from an intervention study in palliative home care that took place between 2013 and 2014. In total, 270 family caregivers in palliative care completed a baseline questionnaire, including the Anticipatory Grief Scale. The factor structure of the scale was evaluated using exploratory factor analysis.ResultsThe initial factor analysis suggested a four-factor solution, but, due to weak communalities, extensive crossloadings, and item inconsistencies, the model was problematic. Further analysis supported that the scale should be reduced to 13 items and two factors. The two subscales captured the behavioral and emotional reactions of grief in family caregivers in palliative care and were named Behavioral reactions and Emotional reactions. This modified version will hereafter be named AGS-13.ConclusionsThis validation study of the Anticipatory Grief Scale resulted in a revised two-factor model, AGS-13, that appears to be promising for use in palliative care but needs to be tested further.
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页数:11
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