Goals of Care Conversations and Subsequent Advance Care Planning Outcomes for People with Dementia

被引:11
作者
Ma, Heather [1 ]
Kiekhofer, Rachel E. [2 ]
Hooper, Sarah M. [3 ]
Dulaney, Sarah [2 ]
Possin, Katherine L. [2 ,4 ]
Chiong, Winston [2 ]
机构
[1] Univ Calif San Francisco, Sch Med, San Francisco, CA 94143 USA
[2] Univ Calif San Francisco, Dept Neurol, Memory & Aging Ctr, UCSF Weill Inst Neurosci, San Francisco, CA USA
[3] UC Hastings Coll Law, UCSF UC Consortium Law Sci & Hlth Policy, San Francisco, CA USA
[4] Univ Calif San Francisco, Global Brain Hlth Inst, San Francisco, CA 94143 USA
关键词
Advance care planning; Alzheimer's disease; dementia; patient preference; terminal care; END-OF-LIFE; NURSING-HOME RESIDENTS; FAMILY-MEMBERS; ASSOCIATION; DIRECTIVES; DELPHI; ADULTS; HEALTH; IMPACT; COST;
D O I
10.3233/JAD-210720
中图分类号
Q189 [神经科学];
学科分类号
071006 ;
摘要
Background: Advance care planning has been shown to improve end of life decision-making for people with dementia. However, the impact of goals of care conversations between people with dementia and their caregivers has not been characterized. Objective: In this study, we evaluate the association between goals of care conversations and advance care planning outcomes. Methods: Retrospective advance care planning measures were collected via a questionnaire administered to 166 caregivers after the death of the person with dementia for whom they provided care. Results: At time of death, the majority of decedents with dementia had advance directives, health care agents, and previous goals of care conversations with their caregiver. Goals of care conversations were significantly associated with the perceived usefulness of advance directives, the perceived adherence to advance directives, and decedent dying at their desired place of death, but not with disagreements around end-of-life care. Conclusion: Our findings suggest that goals of care conversations are an important component of advance care planning. These findings support the development of interventions that facilitate such conversations between people with dementia and their caregivers.
引用
收藏
页码:1767 / 1773
页数:7
相关论文
共 43 条
  • [21] Quality of End-of-Life Care of Long-Term Nursing Home Residents with and without Dementia
    Li, Qinghua
    Zheng, Nan Tracy
    Temkin-Greener, Helena
    [J]. JOURNAL OF THE AMERICAN GERIATRICS SOCIETY, 2013, 61 (07) : 1066 - 1073
  • [22] Improving the end-of-life for people with dementia living in a care home: an intervention study
    Livingston, Gill
    Lewis-Holmes, Elanor
    Pitfield, Catherine
    Manela, Monica
    Chan, Diana
    Constant, Eleanor
    Jacobs, Hannah
    Wills, Gaby
    Carson, Natasha
    Morris, Jackie
    [J]. INTERNATIONAL PSYCHOGERIATRICS, 2013, 25 (11) : 1849 - 1858
  • [23] Mitchell SL, 2013, JAMA-J AM MED ASSOC, V290, P73
  • [24] The Clinical Course of Advanced Dementia
    Mitchell, Susan L.
    Teno, Joan M.
    Kiely, Dan K.
    Shaffer, Michele L.
    Jones, Richard N.
    Prigerson, Holly G.
    Volicer, Ladislav
    Givens, Jane L.
    Hamel, Mary Beth
    [J]. NEW ENGLAND JOURNAL OF MEDICINE, 2009, 361 (16) : 1529 - 1538
  • [25] Systematic implementation of an advance directive program in nursing homes -: A randomized controlled trial
    Molloy, DW
    Guyatt, GH
    Russo, R
    Goeree, R
    O'Brien, BJ
    Bédard, M
    Willan, A
    Watson, J
    Patterson, C
    Harison, C
    Standish, T
    Strang, D
    Darzins, PJ
    Smith, S
    Dubois, S
    [J]. JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2000, 283 (11): : 1437 - 1444
  • [26] Advance Directives And Nursing Home Stays Associated With Less Aggressive End-Of-Life Care For Patients With Severe Dementia
    Nicholas, Lauren H.
    Bynum, Julie P. W.
    Iwashyna, Theodore J.
    Weir, David R.
    Langa, Kenneth M.
    [J]. HEALTH AFFAIRS, 2014, 33 (04) : 667 - 674
  • [27] Attitudes toward advance care planning among persons with dementia and their caregivers
    Pettigrew, Corinne
    Brichko, Rostislav
    Black, Betty
    O'Connor, Maureen K.
    Austrom, Mary Guerriero
    Robinson, Maisha T.
    Lindauer, Allison
    Shah, Raj C.
    Peavy, Guerry M.
    Meyer, Kayla
    Schmitt, Frederick A.
    Lingler, Jennifer H.
    Domoto-Reilly, Kimiko
    Farrar-Edwards, Dorothy
    Albert, Marilyn
    [J]. INTERNATIONAL PSYCHOGERIATRICS, 2020, 32 (05) : 585 - 599
  • [28] Effect of Collaborative Dementia Care via Telephone and Internet on Quality of Life, Caregiver Well-being, and Health Care Use The Care Ecosystem Randomized Clinical Trial
    Possin, Katherine L.
    Merrilees, Jennifer J.
    Dulaney, Sarah
    Bonasera, Stephen J.
    Chiong, Winston
    Lee, Kirby
    Hooper, Sarah M.
    Allen, Isabel Elaine
    Braley, Tamara
    Bernstein, Alissa
    Rosa, Talita D.
    Harrison, Krista
    Begert-Hellings, Hailey
    Kornak, John
    Kahn, James G.
    Naasan, Georges
    Lanata, Serggio
    Clark, Amy M.
    Chodos, Anna
    Gearhart, Rosalie
    Ritchie, Christine
    Miller, Bruce L.
    [J]. JAMA INTERNAL MEDICINE, 2019, 179 (12) : 1658 - 1667
  • [29] Development of an adaptive, personalized, and scalable dementia care program: Early findings from the Care Ecosystem
    Possin, Katherine L.
    Merrilees, Jennifer
    Bonasera, Stephen J.
    Bernstein, Alissa
    Chiong, Winston
    Lee, Kirby
    Wilson, Leslie
    Hooper, Sarah M.
    Dulaney, Sarah
    Braley, Tamara
    Laohavanich, Sutep
    Feuer, Julie E.
    Clark, Amy M.
    Schaffer, Michael W.
    Schenk, A. Katrin
    Heunis, Julia
    Ong, Pauline
    Cook, Kristen M.
    Bowhay, Angela D.
    Gearhart, Rosalie
    Chodos, Anna
    Naasan, Georges
    Bindman, Andrew B.
    Dohan, Daniel
    Ritchie, Christine
    Miller, Bruce L.
    [J]. PLOS MEDICINE, 2017, 14 (03):
  • [30] Use of aggressive medical treatments near the end of life: Differences between patients with and without dementia
    Richardson, Samuel S.
    Sullivan, Greer
    Hill, Ariel
    Yu, Wei
    [J]. HEALTH SERVICES RESEARCH, 2007, 42 (01) : 183 - 200