Tracing the successful incorporation of assistive technology into everyday life for younger people with dementia and family carers

被引:45
作者
Arntzen, Cathrine [1 ]
Holthe, Torhild [2 ]
Jentoft, Rita [1 ]
机构
[1] Univ Tromso, N-9037 Tromso, Norway
[2] Norwegian Ctr Res Educ & Serv Dev, Ageing & Hlth, Oslo, Norway
来源
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE | 2016年 / 15卷 / 04期
关键词
assistive technology; young-onset dementia; family carer; embodied; everyday life-situated; occupational therapy; EARLY-ONSET DEMENTIA; PERSPECTIVES; CAREGIVERS;
D O I
10.1177/1471301214532263
中图分类号
R4 [临床医学]; R592 [老年病学];
学科分类号
1002 ; 100203 ; 100602 ;
摘要
Research shows that people with late-onset dementia and their relatives can benefit from using assistive technology (AT). Few researchers have investigated the use and utility of AT in everyday life for younger people with dementia (YPD) and their family carers. The aim of this study is to explore what characterised the implementation process when the AT was experienced as beneficial to the YPD and the family carer in their daily life. The qualitative longitudinal study followed 12 younger people (i.e. those under 65 years of age), who had recently been diagnosed with dementia and 14 of their family carers. In-depth interviews and observations during the process were conducted at the beginning, and were repeated every 3rd month for up to 12 months. The data were analysed, and the participants' experiences further discussed on the basis of embodied, social- and everyday life-situated approaches, in order to provide a deeper understanding of the interactive processes involved in the trajectory. Five elements in the process were identified as important for the experience of usefulness and successful incorporation of AT. The AT had to: (1) be valuable by addressing practical, emotional, and relational challenges; (2) fit well into, or be a better solution for, habitual practice and established strategies; (3) generate positive emotions, and become a reliable and trustworthy tool; (4) be user-friendly, adaptable, and manageable; and (5) interest and engage the family carer. The study demonstrated the importance of understanding the use and utility of AT on the basis of embodied and social participation in daily life. The family carers played a significant role in whether or not, and in which ways, AT was absorbed into the everyday life practice of YPD.
引用
收藏
页码:646 / 662
页数:17
相关论文
共 50 条
  • [31] Measuring the quality of life of family carers of people with dementia: development and validation of C-DEMQOL
    Anna Brown
    Thomas E. Page
    Stephanie Daley
    Nicolas Farina
    Thurstine Basset
    Gill Livingston
    Jessica Budgett
    Laura Gallaher
    Yvonne Feeney
    Joanna Murray
    Ann Bowling
    Martin Knapp
    Sube Banerjee
    [J]. Quality of Life Research, 2019, 28 : 2299 - 2310
  • [32] End-of-life care: A qualitative study comparing the views of people with dementia and family carers
    Poole, Marie
    Bamford, Claire
    McLellan, Emma
    Lee, Richard P.
    Exley, Catherine
    Hughes, Julian C.
    Harrison-Dening, Karen
    Robinson, Louise
    [J]. PALLIATIVE MEDICINE, 2018, 32 (03) : 631 - 642
  • [33] Measuring the quality of life of family carers of people with dementia: development and validation of C-DEMQOL
    Brown, Anna
    Page, Thomas E.
    Daley, Stephanie
    Farina, Nicolas
    Basset, Thurstine
    Livingston, Gill
    Budgett, Jessica
    Gallaher, Laura
    Feeney, Yvonne
    Murray, Joanna
    Bowling, Ann
    Knapp, Martin
    Banerjee, Sube
    [J]. QUALITY OF LIFE RESEARCH, 2019, 28 (08) : 2299 - 2310
  • [34] The experience of using prompting technology from the perspective of people with Dementia and their primary carers
    Evans, N.
    Boyd, H.
    Harris, N.
    Noonan, K.
    Ingram, T.
    Jarvis, A.
    Ridgers, J.
    Cheston, R.
    [J]. AGING & MENTAL HEALTH, 2021, 25 (08) : 1433 - 1441
  • [35] Informal carers' experience and outcomes of assistive technology use in dementia care in the community: a systematic review protocol
    Sriram, Vimal
    Jenkinson, Crispin
    Peters, Michele
    [J]. SYSTEMATIC REVIEWS, 2019, 8 (1)
  • [36] Suicidal ideation in family carers of people with dementia: a pilot study
    O'Dwyer, Siobhan T.
    Moyle, Wendy
    Zimmer-Gembeck, Melanie
    De Leo, Diego
    [J]. INTERNATIONAL JOURNAL OF GERIATRIC PSYCHIATRY, 2013, 28 (11) : 1182 - 1188
  • [37] What would most help improve the quality of life of older family carers of people with dementia? A qualitative study of carers' views
    Oliveira, Deborah
    Sousa, Lidia
    Aubeeluck, Aimee
    [J]. DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 2020, 19 (04): : 939 - 950
  • [38] Functional Requirements for Assistive Technology for People with Cognitive Impairments and Dementia
    Meiland, F. J. M.
    de Boer, M. E.
    van Hoof, J.
    van der Leeuw, J.
    de Witte, L.
    Blom, M.
    Karkowski, I.
    Mulvenna, M. D.
    Droes, R. M.
    [J]. CONSTRUCTURING AMBIENT INTELLIGENCE, 2012, 277 : 146 - +
  • [39] Informal carers' experience of assistive technology use in dementia care at home: a systematic review
    Sriram, Vimal
    Jenkinson, Crispin
    Peters, Michele
    [J]. BMC GERIATRICS, 2019, 19 (1)
  • [40] Informal carers’ experience of assistive technology use in dementia care at home: a systematic review
    Vimal Sriram
    Crispin Jenkinson
    Michele Peters
    [J]. BMC Geriatrics, 19