Multiple sclerosis registries in Europe - An updated mapping survey

被引:52
作者
Glaser, A. [1 ,2 ]
Stahmann, A. [3 ]
Meissner, T. [4 ]
Flachenecker, P. [5 ]
Horakova, D. [6 ,7 ,8 ]
Zaratin, P. [9 ,10 ]
Brichetto, G. [10 ,11 ]
Pugliatti, M. [12 ,13 ]
Rienhoff, O. [4 ]
Vukusic, S. [14 ,15 ,16 ,17 ,18 ]
de Giacomoni, A. C. [14 ,15 ,16 ,17 ,18 ]
Battaglia, M. A. [9 ,10 ,19 ]
Brola, W. [20 ,21 ]
Butzkueven, H. [22 ]
Casey, R. [14 ,15 ,16 ,17 ,18 ]
Drulovic, J. [23 ]
Eichstaedt, K. [3 ]
Hellwig, K. [24 ]
Iaffaldano, P. [25 ]
Ioannidou, E. [26 ]
Kuhle, J. [27 ,28 ,29 ]
Lycke, K. [1 ]
Magyari, M. [30 ]
Malbasa, T. [31 ]
Middleton, R. [32 ]
Myhr, K. M. [33 ,34 ]
Notas, K. [26 ,35 ]
Orologas, A. [35 ]
Otero-Romero, S. [36 ,37 ]
Pekmezovic, T. [38 ]
Sastre-Garriga, J. [37 ]
Seeldrayers, P. [39 ]
Soilu-Hanninen, M. [40 ,41 ]
Stawiarz, L. [1 ]
Trojano, M. [25 ]
Ziemssen, T. [42 ]
Hillert, J. [1 ,2 ]
Thalheim, C. [43 ]
机构
[1] Karolinska Inst, Dept Clin Neurosci, Stockholm, Sweden
[2] Karolinska Inst, Ctr Mol Med, Stockholm, Sweden
[3] MS Forsch & Projektentwicklungs gGmbH, MS Register German MS Soc, Hannover, Germany
[4] Univ Med Ctr Gottingen, Dept Med Informat, Gottingen, Germany
[5] Neurol Rehabil Ctr Quellenhof, Bad Wildbad, Germany
[6] Charles Univ Prague, Dept Neurol, Fac Med 1, Prague, Czech Republic
[7] Charles Univ Prague, Ctr Clin Neurosci, Fac Med 1, Prague, Czech Republic
[8] Gen Univ Hosp Prague, Prague, Czech Republic
[9] Italian Multiple Sclerosis Fdn, Via Operai 40, I-16149 Genoa, Italy
[10] MS Int Federat, London, England
[11] Italian MS Soc, Sci Res Area, Genoa, Italy
[12] Univ Ferrara, Dept Biomed & Surg Sci, Ferrara, Italy
[13] S Anna Univ Hosp, Via Aldo Moro 8-1C3, I-44124 Ferrara, FE, Italy
[14] Hosp Civils Lyon, Serv Neurol Sclerose Plaques Pathol Myeline & Neu, F-69677 Bron, France
[15] INSERM 1028, Observ Francais Sclerose Plaques, Ctr Rech Neurosci Lyon, F-69003 Lyon, France
[16] CNRS, UMR5292, F-69003 Lyon, France
[17] Univ Claude Bernard Lyon 1, Univ Lyon, F-69000 Lyon, France
[18] Eugene Devic EDMUS Fdn Multiple Sclerosis, State Approved Fdn, F-69677 Bron, France
[19] Univ Siena, Dept Life Sci, Siena, Italy
[20] Specialist Hosp, Dept Neurol, Konskie, Poland
[21] Jan Kochanowski Univ, Inst Physiotherapy, Fac Med & Hlth Sci, Kielce, Poland
[22] Monash Univ, Cent Clin Sch, Alfred Ctr, 99 Commercial Rd, Melbourne, Vic 3004, Australia
[23] Univ Belgrade, Clin Neurol, CCS, Fac Med, Belgrade, Serbia
[24] Ruhr Univ Bochum, Dept Neurol, St Josef Hosp Bochum, Bochum, Germany
[25] Univ Bari Aldo Moro, Dept Basic Med Sci Neurosci & Sense Organs, Bari, Italy
[26] Greek Multiple Sclerosis Soc, Thessaloniki, Greece
[27] Univ Basel, Univ Hosp Basel, Neurol, Dept Med, Basel, Switzerland
[28] Univ Basel, Univ Hosp Basel, Dept Biomed, Neurol, Basel, Switzerland
[29] Univ Basel, Univ Hosp Basel, Dept Clin Res, Neurol, Basel, Switzerland
[30] Univ Copenhagen, Danish Multiple Sclerosis Registry, Dept Neurol, Rigshosp, Copenhagen, Denmark
[31] Assoc Multiple Sclerosis Soc Croatia, Trnsko 34,Pp 74, Zagreb 10020, Croatia
[32] Swansea Univ, Med Sch, Swansea SA2 8PP, W Glam, Wales
[33] Univ Bergen, Dept Clin Med, Bergen, Norway
[34] Haukeland Hosp, Norwegian MS Registry & Biobank, Dept Neurol, Bergen, Norway
[35] Aristotle Univ Thessaloniki, Thessaloniki, Greece
[36] Univ Autonoma Barcelona, Prevent Med & Epidemiol Dept, Hosp Univ Vall dHebron, Barcelona, Spain
[37] Univ Autonoma Barcelona, Dept Neurol Neuroimmunol, Multiple Sclerosis Ctr Catalonia Cemcat, Hosp Univ Vall dHebron, Barcelona, Spain
[38] Univ Belgrade, Inst Epidemiol, Fac Med, Belgrade, Serbia
[39] Belgian Study Grp Multiple Sclerosis, Brussels, Belgium
[40] Turku Univ Hosp, Div Clin Neurosci, Turku, Finland
[41] Univ Turku, Turku, Finland
[42] Tech Univ Dresden, Dept Neurol, MS Ctr Dresden, Ctr Clin Neurosci,Univ Hosp Carl Gustav Carus, Dresden, Germany
[43] European Multiple Sclerosis Platform, Schaerbeek, Belgium
关键词
REAL-WORLD; EPIDEMIOLOGY;
D O I
10.1016/j.msard.2018.09.032
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
[No abstract available]
引用
收藏
页码:171 / 178
页数:8
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