Spiritual and Religious Coping of Medical Decision Makers for Hospitalized Older Adult Patients

被引:2
|
作者
Maiko, Saneta M. [1 ,2 ,3 ]
Ivy, Steven [4 ]
Watson, Beth Newton [5 ]
Montz, Kianna [1 ]
Torke, Alexia M. [2 ,3 ,6 ]
机构
[1] Indiana Univ Hlth, Indianapolis, IN USA
[2] Values Healthcare, Daniel F Evans Ctr Spiritual & Religious, Indianapolis, IN USA
[3] Indiana Univ, Regenstrief Inst Inc, Ctr Aging Res, Indianapolis, IN 46204 USA
[4] ACPE, Decatur, GA USA
[5] Indiana Univ Hlth, Spiritual Care & Chaplaincy Serv, Indianapolis, IN USA
[6] Indiana Univ, Div Gen Med & Geriatr, Indianapolis, IN 46204 USA
关键词
coping; medical decision making; religion; spiritual care; spirituality; surrogate; INTENSIVE-CARE-UNIT; HEALTH-CARE; FAMILY CAREGIVERS; CANCER-PATIENTS; LIFE; END; OUTCOMES; SURROGATES; SUPPORT; QUALITY;
D O I
10.1089/jpm.2018.0406
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Critically ill adult patients who face medical decisions often delegate others to make important decisions. Those who are authorized to make such decisions are typically family members, friends, or legally authorized representatives, often referred to as surrogates. Making medical decisions on behalf of others produces emotional distress. Spirituality and/or religion provide significant assistance to cope with this distress. We designed this study to assess the role of surrogates' spirituality and religion (S/R) coping resources during and after making medical decisions on behalf of critically ill patients. The study's aim was to understand the role that S/R resources play in coping with the lived experiences and challenges of being a surrogate. Methods: Semistructured interviews were conducted with 46 surrogates by trained interviewers. These were audio-recorded and transcribed by research staff. Three investigators conducted a thematic analysis of the transcribed interviews. The codes from inter-rater findings were analyzed, and comparisons were made to ensure consistency. Results: The majority (67%) of surrogates endorsed belief in God and a personal practice of religion. Five themes emerged in this study. Personal prayer was demonstrated as the most important coping resource among surrogates who were religious. Trusting in God to be in charge or to provide guidance was also commonly expressed. Supportive relationships from family, friends, and coworkers emerged as a coping resource for all surrogates. Religious and nonreligious surrogates endorsed coping strategies such as painting, coloring, silent reflection, music, recreation, and reading. Some surrogates also shared personal experiences that were transformative as they cared for their ill patients. Conclusion: We conclude that surrogates use several S/R and other resources to cope with stress when making decisions for critically ill adult patients. The coping resources identified in this study may guide professional chaplains and other care providers to design a patient-based and outcome-oriented intervention to reduce surrogate stress, improve communication, increase patient and surrogate satisfaction, and increase surrogate integration in patient care. We recommend ensuring that surrogates have S/R resources actively engaged in making medical decisions. Chaplains should be involved before, during, and after medical decision making to assess and address surrogate stress. An interventional research-design project to assess the effect of spiritual care on surrogate coping before, during, and after medical decision making is also recommended.
引用
收藏
页码:385 / 392
页数:8
相关论文
共 50 条
  • [31] Screening for Religious/Spiritual Concerns in Adult Outpatient Cancer Patients
    Labuschagne, Dirk
    Palmer, Patricia
    Deshields, Teresa
    Gerhart, James
    Fitchett, George
    PSYCHO-ONCOLOGY, 2024, 33
  • [32] Religious and Spiritual Beliefs of Gynecologic Oncologists May Influence Medical Decision Making
    Ramondetta, Lois
    Brown, Alaina
    Richardson, Gwyn
    Urbauer, Diana
    Thaker, Premal H.
    Koenig, Harold G.
    Gano, Jacalyn B.
    Sun, Charlotte
    INTERNATIONAL JOURNAL OF GYNECOLOGICAL CANCER, 2011, 21 (03) : 573 - 581
  • [33] Religious Coping and Depressive Symptoms among Religious Belgian Hospitalized Patients: The Mediating Role of Hope
    Buelens, Eva
    Dezutter, Jessie
    Vandenhoeck, Anne
    Dillen, Annemie
    JOURNAL OF EMPIRICAL THEOLOGY, 2022, 35 (01) : 24 - 46
  • [34] The use of religious/spiritual coping among patients with cancer undergoing chemotherapy treatment
    Mesquita, Ana Claudia
    Lopes Chaves, Erika de Cassia
    Valcanti Avelino, Carolina Costa
    Nogueira, Denismar Alves
    Panzini, Raquel Gerhke
    de Carvalho, Emilia Campos
    REVISTA LATINO-AMERICANA DE ENFERMAGEM, 2013, 21 (02): : 539 - 545
  • [35] Quality of life and religious-spiritual coping in palliative cancer care patients
    de Sousa Matos, Ticiane Dionizio
    Meneguin, Silmara
    da Silva Ferreira, Maria de Lourdes
    Miot, Helio Amante
    REVISTA LATINO-AMERICANA DE ENFERMAGEM, 2017, 25
  • [36] Spiritual/religious coping strategies and religiosity of patients living with cancer in palliative care
    Meneguin, Silmara
    Pollo, Camila Fernandes
    de Sousa Matos, Ticiane Dionizio
    Zorzi Segalla, Amanda Vitoria
    Fortaleza Generoso, Fary Jaqueline
    de Oliveira, Cesar
    INTERNATIONAL JOURNAL OF PALLIATIVE NURSING, 2023, 29 (04) : 170 - 178
  • [37] Religious Coping and Spiritual Struggle Among Emergency Room Patients With Suicidal Intent
    Bailey, Rosanna J. S.
    McMinn, Mark R.
    Peterson, Mary A.
    Gathercoal, Kathleen
    SPIRITUALITY IN CLINICAL PRACTICE, 2018, 5 (01) : 25 - 36
  • [38] Perceptions of hospitalized patients and their surrogate decision makers on dialysis initiation: a pilot study
    Bansal, Amar D.
    O'Connor, Nina R.
    Casarett, David J.
    BMC NEPHROLOGY, 2018, 19
  • [39] Perceptions of hospitalized patients and their surrogate decision makers on dialysis initiation: a pilot study
    Amar D. Bansal
    Nina R. O’Connor
    David J. Casarett
    BMC Nephrology, 19
  • [40] Religious and Spiritual Coping Elements in Dealing with Chronic Diseases: A Qualitative Exploration of the Perspectives of Older Iranian Zoroastrians
    Hassan Rezaeipandari
    Mohammad Ali Morowatisharifabad
    Abdolreza Shaghaghi
    Journal of Religion and Health, 2023, 62 : 3017 - 3041