Palliative Care in Pediatric Oncology and Hematopoietic Stem Cell Transplantation

被引:4
作者
Uber, Allison [1 ]
Ebelhar, Jonathan S. [2 ,3 ,4 ]
Lanzel, Ashley Foster [5 ,6 ]
Roche, Anna [2 ]
Vidal-Anaya, Viviana [7 ]
Brock, Katharine E. [2 ,3 ,4 ]
机构
[1] Phoenix Childrens Hosp, Sect Palliat Med, 1919 E Thomas Rd, Phoenix, AZ 85016 USA
[2] Childrens Healthcare Atlanta, Aflac Canc & Blood Disorders Ctr, Atlanta, GA 30322 USA
[3] Emory Univ, Div Pediat Hematol Oncol, Atlanta, GA 30322 USA
[4] Emory Univ, Div Palliat Care, Atlanta, GA 30322 USA
[5] Childrens Natl Hosp, Washington, DC USA
[6] George Washington Sch Med & Hlth Sci, Hospitalist Med, Div Pediat, Palliat Care, Washington, DC USA
[7] Cohen Childrens Med Ctr, Div Pediat Hematol Oncol & Stem Cell Transplant, New Hyde Pk, NY USA
关键词
Pediatric palliative care; End-of-life; Pediatric oncology; Cancer; Adolescent and young adult; Communication; OF-LIFE CARE; YOUNG-ADULTS; HEALTH-CARE; EARLY INTEGRATION; HOSPICE CARE; FOLLOW-UP; BEREAVED PARENTS; ADVANCED CANCER; CHILDREN; END;
D O I
10.1007/s11912-021-01174-z
中图分类号
R73 [肿瘤学];
学科分类号
100214 ;
摘要
Purpose of Review To summarize pediatric palliative care (PPC) research from 2016 to 2021 as it intersects with pediatric oncology and hematopoietic stem cell transplantation (HSCT). Recent Findings Children and adolescents with cancer who receive PPC have improved quality of life (QOL), symptom burden, advance care planning discussions, rates of hospice enrollment, home deaths, and receive less intensive therapy at the end-of-life (EOL). Parents report improved QOL and preparation for EOL. Though barriers to PPC utilization exist, new clinical models, oncology team education, and growing family awareness are leading to culture change. Summary PPC within pediatric oncology is considered a standard of care Families are accepting of PPC, as most wish for their children to live as well as possible for as long as possible. Although PPC remains underutilized, PPC should work collaboratively with pediatric oncology and HSCT teams to improve QOL and EOL outcomes of patients with cancer and their families.
引用
收藏
页码:161 / 174
页数:14
相关论文
共 187 条
  • [1] Randomized Clinical Trial of a Legacy Intervention for Quality of Life in Children with Advanced Cancer
    Akard, Terrah Foster
    Dietrich, Mary S.
    Friedman, Debra L.
    Wray, Sarah
    Gerhardt, Cynthia A.
    Hendricks-Ferguson, Verna
    Hinds, Pamela S.
    Rhoten, Bethany
    Gilmer, Mary Jo
    [J]. JOURNAL OF PALLIATIVE MEDICINE, 2021, 24 (05) : 680 - 688
  • [2] The Use of the Buzzy, Jet Lidokaine, Bubble-blowing and Aromatherapy for Reducing Pediatric Pain, Stress and Fear Associated with Phlebotomy
    Alemdar, Dilek Kucuk
    Aktas, Yesim Yaman
    [J]. JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES, 2019, 45 : E64 - E72
  • [3] A Stakeholder-Driven Qualitative Study to Define High Quality End-of-Life Care for Children With Cancer
    Ananth, Prasanna
    Mun, Sophia
    Reffat, Noora
    Li, Randall
    Sedghi, Tannaz
    Avery, Madeline
    Snaman, Jennifer
    Gross, Cary P.
    Ma, Xiaomei
    Wolfe, Joanne
    [J]. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2021, 62 (03) : 492 - 502
  • [4] Provider Perspectives on Use of Medical Marijuana in Children With Cancer
    Ananth, Prasanna
    Ma, Clement
    Al-Sayegh, Hasan
    Kroon, Leah
    Klein, Victoria
    Wharton, Claire
    Hallez, Elise
    Braun, Ilana
    Michelson, Kelly
    Rosenberg, Abby R.
    London, Wendy
    Wolfe, Joanne
    [J]. PEDIATRICS, 2018, 141 (01)
  • [5] Trends in Hospital Utilization and Costs among Pediatric Palliative Care Recipients
    Ananth, Prasanna
    Melvin, Patrice
    Berry, Jay G.
    Wolfe, Joanne
    [J]. JOURNAL OF PALLIATIVE MEDICINE, 2017, 20 (09) : 946 - 953
  • [6] [Anonymous], 2018, National Consensus Project for Quality Palliative Care. Clinical Practice Guidelines for Quality Palliative Care, V4th ed
  • [7] [Anonymous], 2010, PEDIAT ONCOLOGY PALL
  • [8] [Anonymous], 2018, INT PALL CAR SYMPT R
  • [9] [Anonymous], 2015, DYING AM IMPR QUAL H
  • [10] [Anonymous], PUTT PED PALL CAR PR