Meaning in Life in Palliative Care Patients

被引:43
作者
Fegg, Martin Johannes [1 ]
Brandstaetter, Monika [1 ]
Kramer, Mechtild [1 ]
Koegler, Monika [1 ]
Haarmann-Doetkotte, Sigrid [1 ]
机构
[1] Univ Munich, Interdisciplinary Ctr Palliat Med, D-81371 Munich, Germany
关键词
Meaning in life; Schedule for Meaning in Life Evaluation; SMiLE; palliative care; representative sample; CANCER-PATIENT; DIGNITY; SCHEDULE; VALUES; DESIRE; END;
D O I
10.1016/j.jpainsymman.2010.02.010
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Context. The construct "meaning in life" (MiL) has recently raised the interest of clinicians working in psycho-oncology and end-of-life care and has become a topic of scientific investigation. Objectives. The aim of this study was to compare MiL in palliative care (PC) patients with a representative sample of the German population. Methods. In this cross-sectional study, all PC patients treated in the PC inpatient unit and through the PC consult service at Ludwig-Maximilians-University Hospital, Munich, from May 2005 to July 2007 were eligible to participate. Patients were interviewed by a doctoral student, psychologist, or physician, all previously trained to administer the Schedule for Meaning in Life Evaluation (SMiLE) in a standardized way. In the SMiLE, respondents first list individual areas that provide meaning to their life before rating their current level of importance and satisfaction with each area. Overall indices of weighting (IoW, range 20-100), satisfaction (IoS, range 0-100), and weighted satisfaction (IoWS, range 0-100) are calculated. Results. One hundred PC patients completed the SMiLE: the IoS was 70.2 +/- 19.7, the IoW was 84.7 +/- 11.5, and the loWS was 72.0 +/- 19.4. The representative sample (n = 977) scored significantly higher in the IoS (82.8 +/- 14.7) and IoWS (83.3 +/- 14.8) but not in the IoW (85.6 +/- 12.3). Compared with healthy individuals, PC patients are more likely to list partner, friends, leisure, spirituality, well-being, nature/animals, and pleasure as meaningful areas. Examining the satisfaction ratings, it is noteworthy that PC patients' satisfaction scores are fairly high (and not lower than their healthy counterparts') in a number of domains: family, partner, home/garden, spirituality, and finances. On the other hand, they score significantly lower in nature/animals, leisure, friends, well-being, altruism, work, pleasure, and health. Conclusion. These findings underscore the potential of the SMiLE for identifying areas that are particularly important to individuals, and that can be targeted by the PC team to improve overall life satisfaction at the end of life. J Pain Symptom Manage 2010;40:502-509. (C) 2010 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.
引用
收藏
页码:502 / 509
页数:8
相关论文
共 31 条
[1]  
Aaronson N, 2002, QUAL LIFE RES, V11, P193
[2]  
[Anonymous], 1998, HDB BASIC CLIN RES
[3]   Meaning-centered group psychotherapy for patients with advanced cancer: a pilot randomized controlled trial [J].
Breitbart, William ;
Rosenfeld, Barry ;
Gibson, Christopher ;
Pessin, Hayley ;
Poppito, Shannon ;
Nelson, Christian ;
Tomarken, Alexis ;
Timm, Anne Kosinski ;
Berg, Amy ;
Jacobson, Colleen ;
Sorger, Brooke ;
Abbey, Jennifer ;
Olden, Megan .
PSYCHO-ONCOLOGY, 2010, 19 (01) :21-28
[4]   Dignity-conserving cre - A new model for palliative care - Helping the patient feel valued [J].
Chochinov, HM .
JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2002, 287 (17) :2253-2260
[5]   Dying, dignity, and new horizons in palliative end-of-life care [J].
Chochinov, HM .
CA-A CANCER JOURNAL FOR CLINICIANS, 2006, 56 (02) :84-103
[6]   Dignity therapy: A novel psychotherapeutic intervention for patients near the end of life [J].
Chochinov, HM ;
Hack, T ;
Hassard, T ;
Kristjanson, LJ ;
McClement, S ;
Harlos, M .
JOURNAL OF CLINICAL ONCOLOGY, 2005, 23 (24) :5520-5525
[7]   Sources of meaning an investigation of significant commitments in life [J].
Debats, DL .
JOURNAL OF HUMANISTIC PSYCHOLOGY, 1999, 39 (04) :30-57
[8]   CATEGORIZATION OF COLLEGE-STUDENTS MEANING OF LIFE [J].
DEVOGLER, KL ;
EBERSOLE, P .
PSYCHOLOGICAL REPORTS, 1980, 46 (02) :387-390
[9]   ADULTS MEANING IN LIFE [J].
DEVOGLER, KL ;
EBERSOLE, P .
PSYCHOLOGICAL REPORTS, 1981, 49 (01) :87-90
[10]   Meaning in life in the federal Republic of Germany: results of a representative survey with the Schedule for Meaning in Life Evaluation (SMiLE) [J].
Fegg, Martin J. ;
Kramer, Mechtild ;
Bausewein, Claudia ;
Borasio, Gian D. .
HEALTH AND QUALITY OF LIFE OUTCOMES, 2007, 5