A Standard Set of Value-Based Patient-Centered Outcomes and Measures of Overall Health in Adults

被引:13
作者
Gangannagaripalli, Jaheeda [1 ,2 ]
Albagli, Andrea [3 ]
Myers, Stacie N. [3 ]
Whittaker, Sarah [3 ]
Joseph, Andria [3 ]
Clarke, Anna [3 ]
Matkin, Lucy [3 ]
Alonso, Jordi [4 ]
Byock, Ira
van den Berg, Michael [5 ]
Canfield, Carolyn [6 ]
Chaplin, John [7 ]
Dapueto, Juan [8 ]
de Almedia Fleck, Marcelo Pio [9 ]
Sidey-Gibbons, Chris [10 ]
Hazelzet, Jan [11 ]
Hess, Rachel [12 ]
Immonen, Kaisa [13 ]
Joyner, Serena [14 ]
Katz, Catherine [15 ]
Kerrigan, Carolyn [16 ]
Lam, Cindy [17 ]
Lunn, Joanne [18 ]
McKenzie, Fiona [19 ]
Roeves, Alastair [20 ]
Stowell, Caleb
Switaj, Timothy [21 ]
Tinsley, Melissa [22 ]
Zimlichman, Eyal [23 ]
Valderas, Jose M. [1 ,24 ]
机构
[1] Univ Exeter, Hlth Serv & Policy Res Grp, Med Sch, SJ02 Smeall Bldg,St Lukes Campus,Magdalen Rd, Exeter EX1 2LU, Devon, England
[2] Univ Strathclyde, Strathclyde Inst Pharm & Biomed Sci, Glasgow, Lanark, Scotland
[3] Int Consortium Hlth Outcomes Measurement, Boston, MA USA
[4] Pompeu Fabra Univ UPF, IMIM Hosp Mar Med Res Inst, CIBERESP, Barcelona, Spain
[5] Org Econ Cooperat & Dev OECD, Paris, France
[6] Univ British Columbia, Vancouver, BC, Canada
[7] Gothenburg Univ, Gothenburg, Sweden
[8] Univ Republica, Montevideo, Uruguay
[9] Univ Fed Rio Grande do Sul, Porto Alegre, RS, Brazil
[10] Univ Texas MD Anderson Canc Ctr, Houston, TX 77030 USA
[11] Erasmus MC, Rotterdam, Netherlands
[12] Univ Utah, Salt Lake City, UT USA
[13] European Patients Forum EPF, Brussels, Belgium
[14] Hlth Consumers NSW, Sydney, NSW, Australia
[15] Australian Commiss Safety & Qual Hlth Care, Sydney, NSW, Australia
[16] Dartmouth Hitchcock Med Ctr, Dartmouth Inst, Lebanon, NH 03766 USA
[17] Univ Hong Kong, Hong Kong, Peoples R China
[18] We Help Ourselves WHOS, Sydney, NSW, Australia
[19] He Tangata Consulting, London, England
[20] Univ Hlth Board, Bwrdd Iechyd Prifysgol Bae Abertawe Swansea Bay, Swansea, W Glam, Wales
[21] US Army, The Pentagon Arlington C, VA USA
[22] Agcy Clin Innovat, St Leonards, NSW, Australia
[23] Sheba Med Ctr, Ramat Gan, Israel
[24] Int Soc Qual Life Res, Milwaukee, WI 53202 USA
关键词
QUALITY-OF-LIFE; REPORTED OUTCOMES; CARE; CANCER; CLASSIFICATION; PATHWAYS; SYSTEM;
D O I
10.1007/s40271-021-00554-8
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background The definition of population-specific outcomes is an essential precondition for the implementation of value-based health care. We developed a minimum standard outcome set for overall adult health (OAH) to facilitate the implementation of value-based health care in tracking, comparing, and improving overall health care outcomes of adults across multiple conditions, which would be of particular relevance for primary care and public health populations. Methods The International Consortium for Health Outcomes Measurement (ICHOM) convened an international panel (patients, clinicians, and topic experts). Following the development of a conceptual framework, a modified Delphi method (supported by public consultations) was implemented to identify, in sequence, the relevant domains, the best instruments for measuring them, the timing of measurement, and the relevant adjustment variables. Findings Outcomes were identified in relation to overall health status and the domains of physical, mental, and social health. Three instruments covering these domains were identified: PROMIS Scale v1.2-Global Health (10 items), WHO Wellbeing Index (5 items), and the WHO Disability Assessment Schedule 2.0 (12 items). Case-mix variables included a range of sociodemographic and biometric measures. Yearly measurement was proposed for all outcomes and most case-mix variables. Interpretation The ICHOM OAH Standard Set has been developed through consensus-based methods based on predefined criteria following high standards for the identification and selection of high-quality measures The involvements of a wide range of stakeholders supports the acceptability of the set, which is readily available for use and feasibility testing in clinical settings.
引用
收藏
页码:341 / 351
页数:11
相关论文
共 44 条
[1]   The feasibility of implementing the ichom standard set for hip and knee osteoarthritis: A mixed-methods evaluation in public and private hospital settings [J].
Ackerman I.N. ;
Cavka B. ;
Lippa J. ;
Bucknill A. .
Journal of Patient-Reported Outcomes, 2 (1)
[2]   Standard set of health outcome measures for older persons [J].
Akpan, Asangaedem ;
Roberts, Charlotte ;
Bandeen-Roche, Karen ;
Batty, Barbara ;
Bausewein, Claudia ;
Bell, Diane ;
Bramley, David ;
Bynum, Julie ;
Cameron, Ian D. ;
Chen, Liang-Kung ;
Ekdahl, Anne ;
Fertig, Arnold ;
Gentry, Tom ;
Harkes, Marleen ;
Haslehurst, Donna ;
Hope, Jonathon ;
Hurtado, Diana Rodriguez ;
Lyndon, Helen ;
Lynn, Joanne ;
Martin, Mike ;
Isden, Ruthe ;
Raso, Francesco Mattace ;
Shaibu, Sheila ;
Shand, Jenny ;
Sherrington, Cathie ;
Sinha, Samir ;
Turner, Gill ;
De Vries, Nienke ;
Yi, George Jia-Chyi ;
Young, John ;
Banerjee, Jay .
BMC GERIATRICS, 2018, 18
[3]   The case for an international patient-reported outcomes measurement information system (PROMIS®) initiative [J].
Alonso, Jordi ;
Bartlett, Susan J. ;
Rose, Matthias ;
Aaronson, Neil K. ;
Chaplin, John E. ;
Efficace, Fabio ;
Leplege, Alain ;
Lu, Aiping ;
Tulsky, David S. ;
Raat, Hein ;
Ravens-Sieberer, Ulrike ;
Revicki, Dennis ;
Terwee, Caroline B. ;
Valderas, Jose M. ;
Cella, David ;
Forrest, Christopher B. .
HEALTH AND QUALITY OF LIFE OUTCOMES, 2013, 11
[4]  
[Anonymous], 2017, How's life? 2017: Measuring well-being, P1, DOI 10.1787/health_glance-2017-en
[5]   Patient-reported outcomes: pathways to better health, better services, and better societies [J].
Black, N. ;
Burke, L. ;
Forrest, C. B. ;
Sieberer, U. H. Ravens ;
Ahmed, S. ;
Valderas, J. M. ;
Bartlett, S. J. ;
Alonso, J. .
QUALITY OF LIFE RESEARCH, 2016, 25 (05) :1103-1112
[6]   Epoetin alfa treatment results in clinically significant improvements in quality of life in anemic cancer patients when referenced to the general population [J].
Cella, D ;
Zagari, MJ ;
Vandoros, C ;
Gagnon, DD ;
Hurtz, HJ ;
Nortier, JWR .
JOURNAL OF CLINICAL ONCOLOGY, 2003, 21 (02) :366-373
[7]   The Patient-Reported Outcomes Measurement Information System (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005-2008 [J].
Cella, David ;
Riley, William ;
Stone, Arthur ;
Rothrock, Nan ;
Reeve, Bryce ;
Yount, Susan ;
Amtmann, Dagmar ;
Bode, Rita ;
Buysse, Daniel ;
Choi, Seung ;
Cook, Karon ;
DeVellis, Robert ;
DeWalt, Darren ;
Fries, James F. ;
Gershon, Richard ;
Hahn, Elizabeth A. ;
Lai, Jin-Shei ;
Pilkonis, Paul ;
Revicki, Dennis ;
Rose, Matthias ;
Weinfurt, Kevin ;
Hays, Ron .
JOURNAL OF CLINICAL EPIDEMIOLOGY, 2010, 63 (11) :1179-1194
[8]  
Centers for Disease Control and Prevention, National Health and Nutrition Examination Survey (NHANES)
[9]  
de Bienassis K., 2021, International Journal for Quality in Health Care, V33
[10]  
European Commission, 2019, DEF VAL VAL BAS HLTH