Quality of investigations into unexpected deaths of infants and young children in England after implementation of national child death review procedures in 2008: a retrospective assessment

被引:8
作者
Fleming, Peter [1 ]
Pease, Anna [1 ]
Ingram, Jenny [1 ]
Sidebotham, Peter [2 ]
Cohen, Marta C. [3 ]
Coombs, Robert C. [4 ]
Ewer, Andrew K. [5 ]
Platt, Martin Ward [6 ]
Fox, John [7 ]
Marshall, David [8 ]
Lewis, Anne [9 ]
Evason-Coombe, Carol [9 ]
Blair, Peter [1 ]
机构
[1] Univ Bristol, Ctr Acad Child Hlth, Bristol BS2 8EG, Avon, England
[2] Univ Warwick, Hlth Sci Res Inst, Coventry, W Midlands, England
[3] Sheffield Childrens Hosp NHS Fdn Trust, Dept Histopathol, Sheffield, S Yorkshire, England
[4] Sheffield Teaching Hosp, Jessop Neonatal Unit, Sheffield, S Yorkshire, England
[5] Univ Birmingham, Inst Metab & Syst Res, Birmingham, W Midlands, England
[6] Publ Hlth England, Natl Congenital Anomaly & Rare Dis Registrat Serv, Newcastle Upon Tyne, Tyne & Wear, England
[7] Univ Portsmouth, Inst Criminal Justice Studies, Portsmouth, Hants, England
[8] Dave Marshall Consultancy, London, England
[9] Southwest Penninsula Child Death Overview Panel, Plymouth, Devon, England
关键词
bereavement care; child deaths; SIDS; unexpected deaths;
D O I
10.1136/archdischild-2019-317420
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Objectives In 2008, new statutory national procedures for responding to unexpected child deaths were introduced throughout England. There has, to date, been no national audit of these procedures. Study design Families bereaved by the unexpected death of a child under 4 years of age since 2008 were invited to participate. Factors contributing to the death and investigations after the death were explored. Telephone interviews were conducted, and coroners' documents were obtained. The nature and quality of investigations was compared with the required procedures; information on each case was reviewed by a multiagency panel; and the death was categorised using the Avon clinicopathological classification. Results Data were obtained from 91 bereaved families (64 infant deaths and 27 children aged 1-3 years); 85 remained unexplained after postmortem examination. Documentation of multiagency assessments was poorly recorded. Most (88%) families received a home visit from the police, but few (37%) received joint visits by police and healthcare professionals. Postmortem examinations closely followed national guidance; 94% involved paediatric pathologists; 61% of families had a final meeting with a paediatrician to explain the investigation outcome. There was no improvement in frequency of home visits by health professionals or final meetings with paediatricians between 2008-2013 and 2014-2017 and no improvement in parental satisfaction with the process. Conclusions Statutory procedures need to be followed more closely. The implementation of a national child mortality database from 2019 will allow continuing audit of the quality of investigations after unexpected child deaths. An important area amenable to improvement is increased involvement by paediatricians.
引用
收藏
页码:270 / 275
页数:6
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