Situating Ethics in Online Mourning Research: A Scoping Review of Empirical Studies

被引:4
|
作者
Myles, David [1 ]
Cherba, Maria [1 ]
Millerand, Florence [2 ]
机构
[1] Univ Montreal, Montreal, PQ, Canada
[2] Univ Quebec Montreal, Commun, Montreal, PQ, Canada
关键词
mourning; social media; research ethics; SOCIAL MEDIA; SPECIAL-ISSUE; FACEBOOK; DEATH; GRIEF; BEREAVEMENT; COMMUNICATION; INTERNET; SUPPORT; MEMORIALIZATION;
D O I
10.1177/1077800418806599
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
In the past decade, social media have put mourning practices at the forefront of daily life in ways that challenge assumptions made about the public disclosure of information often construed as being highly intimate. This article examines how researchers conceive online mourning in empirical studies and how such conceptions inform (or not) methodological and ethical decisions. Through a scoping review, we identified 40 empirical papers addressing online mourning. Our analysis shows that, while online mourning practices have overwhelmingly been problematized in terms of privacy and publicness within the current literature, ethical issues relating to their analysis have been scarcely addressed in empirical research. In line with Foucault's work on the dispositif, we then examine the performative role of privacy and data sensitivity in the context of online mourning research (notably in relation to consent procurement) and discuss our findings in light of emerging trends in context-based ethics.
引用
收藏
页码:289 / 299
页数:11
相关论文
共 50 条
  • [31] What influences consumers' online medication purchase intentions and behavior? A scoping review
    Limbu, Yam B.
    Huhmann, Bruce A.
    FRONTIERS IN PHARMACOLOGY, 2024, 15
  • [32] A scoping research literature review to map the evidence on grief triggers
    Wilson, Donna M.
    Underwood, Leah
    Errasti-Ibarrond, Begona
    SOCIAL SCIENCE & MEDICINE, 2021, 282
  • [33] Situating Wikipedia as a health information resource in various contexts: A scoping review
    Smith, Denise A.
    PLOS ONE, 2020, 15 (02):
  • [34] Gaming Disorder Across the Lifespan: a Scoping Review of Longitudinal Studies
    Richard, Jeremie
    Temcheff, Caroline E.
    Derevensky, Jeffrey L.
    CURRENT ADDICTION REPORTS, 2020, 7 (04) : 561 - 587
  • [35] CONDUCTING A SCOPING REVIEW OF COLLABORATIVE LEARNING IN ONLINE SETTINGS
    Makri, Agoritsa
    Vlachopoulos, Dimitrios
    11TH INTERNATIONAL CONFERENCE OF EDUCATION, RESEARCH AND INNOVATION (ICERI2018), 2018, : 4219 - 4228
  • [36] Online Ethnography for People With Chronic Conditions: Scoping Review
    Gao, Yajing
    Chen, Xuemei
    Zhang, Wei
    Wang, Qiuyi
    Liu, Jing
    Zhou, Lanshou
    JOURNAL OF MEDICAL INTERNET RESEARCH, 2022, 24 (11)
  • [37] Online Support Groups for Family Caregivers: Scoping Review
    Daynes-Kearney, Rosemary
    Gallagher, Stephen
    JOURNAL OF MEDICAL INTERNET RESEARCH, 2023, 25
  • [38] A Scoping Study on the Ethics of Health Systems Research
    Bachani, Abdulgafoor M.
    Rattani, Abbas
    Hyder, Adnan A.
    DEVELOPING WORLD BIOETHICS, 2016, 16 (03) : 124 - 132
  • [39] Main uses of Instagram in oral health research-A scoping review
    Oliveira, Leandro Machado
    Pilecco, Kimberly da Silva
    de Souza, Daniel Fagundes
    de Oliveira, Cicero Anghinoni
    Zanatta, Fabrico Batistin
    HEALTH POLICY AND TECHNOLOGY, 2022, 11 (01)
  • [40] Parental mediation in online practices of the Spanish minors: a review of empirical research
    Lopez de Ayala, Maria Cruz
    Ponte, Cristina
    DOXA COMUNICACION, 2016, (23):