Situating Ethics in Online Mourning Research: A Scoping Review of Empirical Studies

被引:4
|
作者
Myles, David [1 ]
Cherba, Maria [1 ]
Millerand, Florence [2 ]
机构
[1] Univ Montreal, Montreal, PQ, Canada
[2] Univ Quebec Montreal, Commun, Montreal, PQ, Canada
关键词
mourning; social media; research ethics; SOCIAL MEDIA; SPECIAL-ISSUE; FACEBOOK; DEATH; GRIEF; BEREAVEMENT; COMMUNICATION; INTERNET; SUPPORT; MEMORIALIZATION;
D O I
10.1177/1077800418806599
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
In the past decade, social media have put mourning practices at the forefront of daily life in ways that challenge assumptions made about the public disclosure of information often construed as being highly intimate. This article examines how researchers conceive online mourning in empirical studies and how such conceptions inform (or not) methodological and ethical decisions. Through a scoping review, we identified 40 empirical papers addressing online mourning. Our analysis shows that, while online mourning practices have overwhelmingly been problematized in terms of privacy and publicness within the current literature, ethical issues relating to their analysis have been scarcely addressed in empirical research. In line with Foucault's work on the dispositif, we then examine the performative role of privacy and data sensitivity in the context of online mourning research (notably in relation to consent procurement) and discuss our findings in light of emerging trends in context-based ethics.
引用
收藏
页码:289 / 299
页数:11
相关论文
共 50 条
  • [21] Face-to-Face Compared With Online Collected Accounts of Health and Illness Experiences: A Scoping Review
    Davies, Louise
    LeClair, Karissa L.
    Bagley, Pamela
    Blunt, Heather
    Hinton, Lisa
    Ryan, Sara
    Ziebland, Sue
    QUALITATIVE HEALTH RESEARCH, 2020, 30 (13) : 2092 - 2102
  • [22] The Impact of Online Social Networks on Health and Health Systems: A Scoping Review and Case Studies
    Griffiths, Frances
    Dobermann, Tim
    Cave, Jonathan A. K.
    Thorogood, Margaret
    Johnson, Samantha
    Salamatian, Kave
    Olive, Francis X. Gomez
    Goudge, Jane
    POLICY AND INTERNET, 2015, 7 (04): : 473 - 496
  • [23] Research Ethics Capacity Development in Anglophone West Africa: a Scoping Review
    Senghore, Thomas
    Omotosho, Tomilayo Felicity
    JOURNAL OF ACADEMIC ETHICS, 2025,
  • [24] Ethical guidance for conducting health research with online communities: A scoping review of existing guidance
    Harris, Jane
    Germain, Jennifer
    Mccoy, Ellie
    Schofield, Rosemary
    PLOS ONE, 2024, 19 (05):
  • [25] From Research Ethics to Researching Ethics in an Online Specific Context
    Ostman, Sari
    Turtiainen, Riikka
    MEDIA AND COMMUNICATION, 2016, 4 (04): : 66 - 74
  • [26] A scoping research literature review to explore bereavement humor
    Donna M. Wilson
    Kathleen Bykowski
    Ana M. Chrzanowski
    Michelle Knox
    Begoña Errasti-Ibarrondo
    Current Psychology, 2023, 42 : 16430 - 16441
  • [27] Approaches to Research Ethics in Health Research on YouTube: Systematic Review
    Tanner, Joshua P.
    Takats, Courtney
    Lathan, Hannah Stuart
    Kwan, Amy
    Wormer, Rachel
    Romero, Diana
    Jones, Heidi E.
    JOURNAL OF MEDICAL INTERNET RESEARCH, 2023, 25
  • [28] What Is the Psychological Role of the Virtual Self in Online Worlds? A Scoping Review
    Gabarnet, Adria
    Feixas, Guillem
    Montesano, Adrian
    Su, Mu-Chun
    MULTIMODAL TECHNOLOGIES AND INTERACTION, 2023, 7 (12)
  • [29] Going viral: A scoping review of the current state and impact of online research dissemination in emergency medicine
    Gray, James M.
    Schnadower, David
    LaFollette, Ryan
    Shah, Ashish S.
    Sobolewski, Brad
    AEM EDUCATION AND TRAINING, 2022, 6 (01)
  • [30] Ethics and Law in Research on Algorithmic and Data-Driven Technology in Mental Health Care: Scoping Review
    Gooding, Piers
    Kariotis, Timothy
    JMIR MENTAL HEALTH, 2021, 8 (06):