Situating Ethics in Online Mourning Research: A Scoping Review of Empirical Studies

被引:4
|
作者
Myles, David [1 ]
Cherba, Maria [1 ]
Millerand, Florence [2 ]
机构
[1] Univ Montreal, Montreal, PQ, Canada
[2] Univ Quebec Montreal, Commun, Montreal, PQ, Canada
关键词
mourning; social media; research ethics; SOCIAL MEDIA; SPECIAL-ISSUE; FACEBOOK; DEATH; GRIEF; BEREAVEMENT; COMMUNICATION; INTERNET; SUPPORT; MEMORIALIZATION;
D O I
10.1177/1077800418806599
中图分类号
C [社会科学总论];
学科分类号
03 ; 0303 ;
摘要
In the past decade, social media have put mourning practices at the forefront of daily life in ways that challenge assumptions made about the public disclosure of information often construed as being highly intimate. This article examines how researchers conceive online mourning in empirical studies and how such conceptions inform (or not) methodological and ethical decisions. Through a scoping review, we identified 40 empirical papers addressing online mourning. Our analysis shows that, while online mourning practices have overwhelmingly been problematized in terms of privacy and publicness within the current literature, ethical issues relating to their analysis have been scarcely addressed in empirical research. In line with Foucault's work on the dispositif, we then examine the performative role of privacy and data sensitivity in the context of online mourning research (notably in relation to consent procurement) and discuss our findings in light of emerging trends in context-based ethics.
引用
收藏
页码:289 / 299
页数:11
相关论文
共 50 条
  • [11] A scoping review of the literature featuring research ethics and research integrity cases
    Armond, Anna Catharina Vieira
    Gordijn, Bert
    Lewis, Jonathan
    Hosseini, Mohammad
    Bodnar, Janos Kristof
    Holm, Soren
    Kakuk, Peter
    BMC MEDICAL ETHICS, 2021, 22 (01)
  • [12] Cooling facilities in paediatric palliative care: a ritual form of mourning? A scoping literature review
    De Clercq, Eva
    Vokinger, Anna Katharina
    Pedraza, Eddy Carolina
    von Bueren, Andre Oscar
    Tinner, Eva Maria
    Michel, Gisela
    MORTALITY, 2024,
  • [13] A scoping review of the literature featuring research ethics and research integrity cases
    Anna Catharina Vieira Armond
    Bert Gordijn
    Jonathan Lewis
    Mohammad Hosseini
    János Kristóf Bodnár
    Soren Holm
    Péter Kakuk
    BMC Medical Ethics, 22
  • [14] The Use of Social Media for Health Research Purposes: Scoping Review
    Bour, Charline
    Ahne, Adrian
    Schmitz, Susanne
    Perchoux, Camille
    Dessenne, Coralie
    Fagherazzi, Guy
    JOURNAL OF MEDICAL INTERNET RESEARCH, 2021, 23 (05)
  • [15] Trends of infodemiology studies: a scoping review
    Zeraatkar, Kimia
    Ahmadi, Maryam
    HEALTH INFORMATION AND LIBRARIES JOURNAL, 2018, 35 (02) : 91 - 120
  • [16] Online Health Information Seeking Behaviors Among Older Adults: Systematic Scoping Review
    Zhao, Yuxiang Chris
    Zhao, Mengyuan
    Song, Shijie
    JOURNAL OF MEDICAL INTERNET RESEARCH, 2022, 24 (02)
  • [17] The growing field of interdisciplinary research on user comments: A computational scoping review
    Schindler, Max
    Domahidi, Emese
    NEW MEDIA & SOCIETY, 2021, 23 (08) : 2474 - 2492
  • [18] What methods are used in research of firsthand experiences with online self-harming and suicidal behavior? A scoping review
    Holm, Malene Eiberg
    Ostergaard, Louise Dorner
    Aamund, Kate
    Jorgensen, Kim
    Midtgaard, Julie
    Vinberg, Maj
    Nordentoft, Merete
    NORDIC JOURNAL OF PSYCHIATRY, 2024, : 165 - 180
  • [19] A scoping review of the characteristics and benefits of online prostate cancer communities
    Pyle, Denise
    Perry, Amanda
    Lamont-Mills, Andrea
    Tehan, Gerry
    Chambers, Suzanne K.
    PSYCHO-ONCOLOGY, 2021, 30 (05) : 659 - 668
  • [20] Online health information seeking behavior among breast cancer patients and survivors: a scoping review
    Chen, Jialin
    Duan, Yiwen
    Xia, Haozhi
    Xiao, Runxi
    Cai, Tingting
    Yuan, Changrong
    BMC WOMENS HEALTH, 2025, 25 (01)