Patient preference disability questionnaire in systemic sclerosis:: A cross-sectional survey

被引:39
作者
Mouthon, Luc [1 ,2 ]
Rannou, Francois [3 ,4 ]
Berezne, Alice [2 ]
Pagnoux, Christian [2 ]
Guilpain, Philippe [2 ]
Goldwasser, Fiancois
Revel, Michel [3 ,4 ]
Guillevin, Loic [2 ]
Fermanian, Jacques [5 ]
Poiraudeau, Serge [3 ,4 ]
机构
[1] Cochin Hosp, AP HP, Dept Internal Med, F-75679 Paris 14, France
[2] Paris Descartes Univ, UPRES EA 4058, Paris, France
[3] Paris Descartes Univ, AP HP, Cochin Hosp, Paris, France
[4] INSERM, Inst Federatif Rech Handicap IFR 25, Paris, France
[5] Hop Necker Enfants Malad, AP HP, Paris, France
来源
ARTHRITIS & RHEUMATISM-ARTHRITIS CARE & RESEARCH | 2008年 / 59卷 / 07期
关键词
D O I
10.1002/art.23819
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Objective. To assess patient priorities concerning disability in systemic sclerosis (SSc). Methods. A total of 150 SSc patients (22 men) fulfilling the American College of Rheumatology and/or LeRoy and Medsger criteria for SSc were evaluated by the McMaster Toronto Arthritis Patient Preference Disability Questionnaire (MACTAR), Karnofsky performance status (KPS), Cochin Hand Function Scale, Health Assessment Questionnaire (HAQ), Hospital Anxiety and Depression Scale, Mouth Handicap in SSc (MHISS) scale, and global perception regarding their health status. Correlations between scores were analyzed using Spearman's coefficient. Logistic regression analysis was used to determine factors associated with patients' global perception of their health. Results. Of the patients investigated, 81 (54%) had limited cutaneous SSc, 65 (43.3%) diffuse SSc, and 4 (2.7%) limited SSc. The 3 disability domains most often cited were walking (82 patients [54.6%]), housekeeping (67 patients [44.6%]), and sport activities (59 patients [39.3%]). The MACTAR score correlated moderately with KPS (r = 0.58) but only weakly with the HAQ score (r = 0.38). In multivariate analysis, 2 factors were associated with patients' negative global perception of their health status: KPS (odds ratio [OR] 1,07, 95% confidence interval [95% CI] 1.00-1.15) and MHISS score (OR 0.93, 95% CI 0.88-0.99). Conclusion. For assessing SSc patient priorities concerning disability, the MACTAR has acceptable construct validity. Its weak correlation with the HAQ suggests that it adds useful information on disability.
引用
收藏
页码:968 / 973
页数:6
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