Disparities in healthcare transition support received by adolescents with special healthcare needs

被引:10
作者
Heron, Laura M. [1 ]
Agarwal, Rumi [2 ]
Greenup, Joel [3 ]
Maddux, Marlaina [4 ]
Attong, Nicole [5 ]
Burke, Shanna L. [4 ]
机构
[1] Florida Int Univ, Dept Ind & Org Psychol, FIU Embrace, BRAINN Lab, Miami, FL 33199 USA
[2] Florida Int Univ, Robert Stempel Coll Publ Hlth & Social Work, FIU Embrace, Dept Hlth Promot & Dis Prevent,BRAINN Lab, Miami, FL 33199 USA
[3] Florida Int Univ, Coll Publ Hlth & Social Work, Dept Biostat, FIU Embrace,BRAINN Lab, Miami, FL 33199 USA
[4] Florida Int Univ, Robert Stempel Coll Publ Hlth & Social Work, Sch Social Work, BRAINN Lab, Miami, FL 33199 USA
[5] Florida Int Univ, FIU Embrace, Off Res & Econ Dev, Miami, FL 33199 USA
关键词
adolescents; healthcare transition; intellectual and developmental disabilities; special healthcare needs; AUTISM SPECTRUM DISORDERS; ATTENTION-DEFICIT/HYPERACTIVITY DISORDER; DEVELOPMENTAL-DISABILITIES; PSYCHIATRIC-DISORDERS; UNITED-STATES; CHILDREN; FAMILY; YOUTH; PERSPECTIVES; PREVALENCE;
D O I
10.1111/jar.12658
中图分类号
G44 [教育心理学];
学科分类号
0402 ; 040202 ;
摘要
BackgroundTransitioning to adult healthcare systems can be challenging, especially if left unaddressed for adolescents with special healthcare needs (ASHCN), such as those with autism spectrum disorder and attention-deficit/ hyperactivity disorder. While there is evidence of disparities between different demographics regarding general healthcare services, research on healthcare-specific transition planning is lacking. Thus, there is a critical need to continually investigate these disparities. MethodUsing nationally representative data from the 2016 National Survey for Children's Health, several analyses were conducted to examine doctor-patient interactions and discussions about transitioning to adult health care. Accounting for demographic and diagnostic indicators allowed for the assessment of disparities. ResultsFindings revealed significant disparities between age, disability and race relative to various healthcare transition support services. ConclusionsFindings provide valuable information that can inform the development of training programmes for healthcare providers, influence policy, modify procedures and interventions and highlight the need for increased advocacy for ASHCN.
引用
收藏
页码:180 / 192
页数:13
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