Informal care and the self-management partnership: implications for Australian health policy and practice

被引：29

作者：

Essue, Beverley M. ^{[1
,2
]}

Jowsey, Tanisha ^{[3
]}

Jeon, Yun-Hee ^{[3
,4
]}

Mirzaei, Masoud ^{[1
,5
]}

Pearce-Brown, Carmen L. ^{[3
]}

Aspin, Clive ^{[1
]}

Usherwood, Tim P. ^{[6
]}

机构：

[1] Univ Sydney, Menzies Ctr Hlth Policy, Camperdown, NSW 2006, Australia

[2] Univ Sydney, George Inst Global Hlth, Sydney, NSW 2050, Australia

[3] Australian Natl Univ, Menzies Ctr Hlth Policy, Australian Primary Hlth Care Res Inst, Canberra, ACT 0200, Australia

[4] Univ Sydney, Sydney Nursing Sch M02, Sydney Nursing Sch, Sydney, NSW 2006, Australia

[5] Shahid Sadoughi Univ, Afshar Hosp, Yazd Cardiovasc Res Ctr, Yazd 89179, Iran

[6] Univ Sydney, Sydney Med Sch Western, Dept Gen Practice, Westmead, NSW 2145, Australia

来源：

AUSTRALIAN HEALTH REVIEW | 2010年 / 34卷 / 04期

基金：

英国医学研究理事会;

关键词：

CHRONIC ILLNESS; HEART-FAILURE; FAMILY; PEOPLE; PERCEPTIONS; EXPLORATION; CAREGIVERS; DEMENTIA; SERVICES; SUPPORT;

D O I：

10.1071/AH09795

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

Objective. The Serious and Continuing Illness Policy and Practice Study (SCIPPS) aims to improve the care and support for patients with chronic illness and their family carers. Here we describe the carers' contribution to the self-management partnership and discuss the policy and practice implications that are relevant to improving the support available for informal care in Australia. Design. A secondary analysis of SCIPPS data. Fourteen carers of patients between 45 and 85 years with chronic heart failure, chronic obstructive pulmonary disease and diabetes were conveniently sampled from western Sydney and the Australian Capital Territory. Semi-structured interviews were conducted. Data were analysed using qualitative content analysis. Results. Key roles that carers perform in the self-management partnership included: home helper; lifestyle coach; advocate; technical care manager; and health information interpreter. Two negative consequences of juggling these roles included: self-neglect and conflict. Conclusions. Rigid eligibility criteria limit carers' access to essential support programs which underestimates and undervalues their contributions to the self-management partnership. Support services should focus on the development of practical skills to perform the caregiving roles. In addition, health professionals require support to work more effectively with carers to minimise the conflict that can overshadow the care and self-management partnership.

引用

页码：414 / 422

页数：9

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